Validation of the “Good2Go”: the first French-language transition readiness questionnaire

Mellerio, Hélène; Jacquin, Paul; Trelles, Nelson; Roux, Énora Le; Bélanger, Richard E.; Alberti, Corinne; Tubiana‐Rufi, N.; Stheneur, Chantal; Guilmin-Crépon, Sophie; Devilliers, H.

doi:10.1007/s00431-019-03450-4

Cited by 22 publications

(15 citation statements)

References 33 publications

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“…Indeed, most adolescents become truly independent years later and holistic life-skills are not associated with transition outcome [11]. This reinforces our choice of the Good2Go among others validated questionnaires [19,33].…”

Section: Discussionmentioning

confidence: 73%

“…Because adolescents often minimized the treatment burden, the TBQ was abandoned to only assess the most burdensome topics (tests, appointments, diet). Thus, to involve parents [4,5,15,19] bearing in mind their organizational di culties, we now offer them individual interviews with the AD'venir coordinator or a psychologist and speci c information on-line (https://advenir-robertdebre.aphp.fr/). Raising adolescents' awareness of their own situation, the Good2Go is now completed at the very end of the PTC to give a more accurate indication of what to work before transfer [2].…”

Section: Discussionmentioning

confidence: 99%

“…Raising adolescents' awareness of their own situation, the Good2Go is now completed at the very end of the PTC to give a more accurate indication of what to work before transfer [2]. However, the failure of transfer for one adolescent reminds that the predictive value of transition readiness questionnaires remains unclear in terms of transition success [19,33]. Thus, we found no correlation between Good2Go scores and level of information regarding the transition or social context, which are nevertheless both key-points of transition success.…”

Section: Discussionmentioning

confidence: 99%

“…During almost 1 hour, a transition pediatrician (TP) receives each adolescent alone to explore chronologically their perceived experience and view of their CC: past, present, future. It includes: an interview structured according to the HEADSS checklist [17]; the Treatment Burden Questionnaire (TBQ, 15 items) [18] and the Good2Go questionnaire (25 items) [19]; and a physical examination. At the end, the TP and the adolescent each highlight the points requiring further transition support.…”

Section: Content Of the Ptcmentioning

confidence: 99%

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Pre-Transition Consultations for Adolescents With Chronic Conditions in a General Pediatric Hospital: Lessons Learned

Mellerio

Dumas

Alberti

et al. 2021

Preprint

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The objective of the study was to assess the clinically relevant features of the pre-transition consultation (PTC) offered in AD’venir transition unit (R.Debré hospital, Paris) to all adolescents with a chronic condition.PTCs include a face-to-face interview with pediatricians trained in adolescent medicine, exploring the past (disease history), present (daily life, Treatment Burden Questionnaire, family/peer relationships, school, hobbies, sexuality, drugs) and future (global life project, transition, Good2Go questionnaire). Twenty-seven PTC recordings were qualitatively analyzed (girls=56%/median age=17.7yrs) within a multidisciplinary group (clinicians/sociologists/psychologist/public health researchers). Respectively 6-months and 2-years after PTC, benefits of PTC were assessed in referent healthcare providers (questionnaire) and in adolescents (phone interview). PTCs were a form of training for adult care, adolescents meeting a practitioner alone often for the first time. Naming their chronic condition was frequently difficult. All complained of limitations experienced in their social life (notably diet, tiredness, laboratory/medical appointments), but not treatment itself. Most were willing to talk about sexuality. Feelings concerning transition were various, with poor representations of adult healthcare. Transfer was often unplanned, but this did not influence transition readiness. After PTC, healthcare providers often changed their practices. Two years later, transition was successful for most of adolescents. ConclusionThe PTC is a relevant, easily implemented tool to help empower adolescents and customize their transition preparation within a holistic approach. A dedicated and long consultation, with an external/non-prescriber practitioner, including a physical examination are key factors promoting the establishment of trust, sharing of intimate issues and the assessment of potential barriers to transition.

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Section: Discussionmentioning

confidence: 73%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Content Of the Ptcmentioning

confidence: 99%

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Pre-Transition Consultations for Adolescents With Chronic Conditions in a General Pediatric Hospital: Lessons Learned

Mellerio

Dumas

Alberti

et al. 2021

Preprint

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“…The program is dynamic and has evolved each year since its launch, the evolutions are discussed and decided with the steering committee. Additional elements based on the observation of patients' needs have been added over time: additional time dedicated to coordination, creation of explanatory leaflets about patients' diseases intended for professionals outside the hospital, dedicated therapeutic education sessions, questionnaires that allow to complete the tools available for the patients' needs' assessment (questionnaire to define patient expectations developed specifically for the program, questionnaire to assess patients' autonomy using the Good2Go (18)). Table 1.…”

Section: Tidier Checklist (17) -Supplementary Materials 2)mentioning

confidence: 99%

Transition of young adults with endocrine and metabolic diseases: the ‘TRANSEND’ cohort

Roux

Menesguen

Tejedor

et al. 2021

Endocrine Connections

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Objective. The transition period between paediatric and adult medicine is associated with poor patient outcomes and important numbers of patients lost to follow up. Describe the cohort of patients in adult care who benefit from a new transition program based on case management approach. Design. A longitudinal study was led since September 2016 in a French University Hospital. Methods. Patients with any endocrine or metabolic disease diagnosed during childhood and transferred to adult care were included. The transition program includes 3 steps based on case management: liaising with paediatric services, personalising care pathways, liaising with structures outside hospital (General practitioner, educational and social sector). Results. The cohort included 500 patients with malignant brain tumour (n=56 (11%)), obesity (n=55 (11%)), type 1 diabetes (n=54 (11%)), or other disease (n=335 (67%)). They were aged 19 in median at transfer, sex ratio: 0.5. At 21 months of follow-up in median, 439 (88%) have regular follow-up in or outside the hospital, 47 (9%) have irregular follow-up (absence at the last appointment or no appointment scheduled within the time recommended), 4 stopped care on the doctor's advice, 4 died, 3 moved, 3 refused care. The program involved 9,615 case management acts, 7% of patients required more than 50 acts. Patients who required most of support are usually affected by a neuro-cognitive disorder and have social issues. Conclusions. The case manager addresses the complex needs of patients. With time, the cohort will provide unprecedented long-term results of patients with various conditions who went through transition.

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Are transition preparation consultations for adolescents with chronic conditions valuable? A mixed-methods study

et al. 2022

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Validation of the “Good2Go”: the first French-language transition readiness questionnaire

Cited by 22 publications

References 33 publications

Pre-Transition Consultations for Adolescents With Chronic Conditions in a General Pediatric Hospital: Lessons Learned

Pre-Transition Consultations for Adolescents With Chronic Conditions in a General Pediatric Hospital: Lessons Learned

Transition of young adults with endocrine and metabolic diseases: the ‘TRANSEND’ cohort

Are transition preparation consultations for adolescents with chronic conditions valuable? A mixed-methods study

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