Factors Influencing the Quality of Life of the Primary Caregiver of a Palliative Patient: Narrative Review

Pop, Rodica; Puia, Aida; Moşoiu, Daniela

doi:10.1089/jpm.2021.0322

Cited by 14 publications

(14 citation statements)

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“…Anxiety and depression are two important factors associated with a decrease in the quality of life of caregivers [22]. These are aspects that negatively influence the quality of medical and nursing interventions and decrease the quality of care.…”

Section: Discussionmentioning

confidence: 99%

The United States May Currently Be Living in A Pre-Trumpian or Pre-Trump 2 Time Period: A Combined Progressive Politics and Humanistic Psychology Perspective

2022

NABCC

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Objectives: This study aims to measure the primary caregiver’s (PrC) anxiety, depression and burden of care and to identify the correlation between the outcomes. Material and Methods: This prospective observational longitudinal study assessed the burden of care for patients with palliative needs comparatively between two groups: caregivers of patients with cancer and caregivers of patients with non-malignant diseases. At the same time, the score of anxiety and depression of these caregivers was measured. The researcher used the Burden Scale for Family Caregivers (BSFC) to measure the burden of care and Hospital Anxiety and Depression Scale (HAD) to measure the anxiety and depression of primary caregivers. These questionnaires were applied at the initial moment (T0) and periodically for three months. If the patient died in this period, the caregivers were evaluated two months after the event. Statistical analysis used the Mann Whitney U test and the Wilcoxon test to compare the two groups and Pearson test to assess the correlation between burden and anxiety/ depression. Results: The burden assessment of caregivers for cancer patients showed a statistically significant increase over 3 months (p=0.001). At the initial moment (T0), a statistically significant difference is observed between the burden of the oncological group and the non-oncological one. The correlation between the caregiver's burden and anxiety/ depression was statistically significant (p = 0.001). Conclusions: The load had a direct and statistically significant impact on the PrC's psycho-emotional state, and there is a strong link between it and the caregiver's anxiety and sadness when caring for a palliative patient. From a practical point of view, it is important to early identify the burden of care and to know how the PrC is relating to it, as well as to assess his/her psycho-emotional state in order to act through appropriate and individualized interventions.

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Section: Discussionmentioning

confidence: 99%

The United States May Currently Be Living in A Pre-Trumpian or Pre-Trump 2 Time Period: A Combined Progressive Politics and Humanistic Psychology Perspective

2022

NABCC

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“…The caregiver's burden may be considerably reduced by the reassessment of care objectives, 19,25 giving up useless medication, 26 using guidelines for deprescribing useless medication, 26 reassessment of drug interactions, 18 simplifying administration regimen, 18 information about drugs and possible side effects, 25,27 and knowledge about the patient's disease and especially management of symptoms. 28,29 The study raises concerns about potential excessive drug prescribing for complex patients with multimorbidity and potential lack of collaboration between different clinical disciplines working in isolation.…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Caregiver Burden Correlates With Complexity of Drug Regimen in Non-oncological Palliative Medicine

Pop

Moşoiu

Țînț

2022

American Journal of Therapeutics

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Background: Progressive chronic diseases presume a complex treatment plan that depends on the number of symptoms, their severity, and comorbidities. Drug management is an essential responsibility of the family caregiver of a palliative care patient, but has received limited attention in field research.Study Questions: The aim of this study is to identify the complexity of the therapeutic plan followed at home by cancer or noncancer patients needing palliative care, and to assess its impact on the burden of the family caregivers.Study Design: This observational study was conducted at patient's admission in a palliative care department. The study involved cancer and noncancer patients and their primary family caregivers. To measure the care burden, the Burden Scale for Family Caregiver was used and for the complexity of the therapeutic plan, the Medication Regime Complexity Index.Measures and Outcomes: To measure the care burden, the Burden Scale for Family Caregiver was used and for the complexity of the therapeutic plan, the Medication Regime Complexity Index.Results: One hundred and forty patients were enrolled with their family caregivers: patients with nononcological pathologies (n 5 63) and patients with cancer (n 5 77). Caregiver's burden score is statistically significantly correlated with the complexity of the medical plan in both groups (P 5 0.32 and P 5 0.012 respectively). The average family caregiver's burden was significantly higher in the nononcological group (45 6 14.45 vs. 36.52 6 15.05; P 5 0.001). The number of medications that family caregivers administer daily for patients without cancer is higher than in the other subset (8.25 6 4.94 vs. 5.89 6 4.93; P 5 0.004). Opioids were more frequently used for pain control in cancer patients (5 vs. 72; P 5 0.0001).Conclusions: The caregiver's burden is high for nononcological patients. The complexity of the treatment plan (number of drugs and frequency of administration) is significantly correlated with the care burden. Further studies are needed to understand which interventions targeted on family caregivers will minimize the burden of care.

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“…Anxiety and depression are two important factors associated with a decrease in the quality of life of caregivers 23 . These are aspects that negatively in uence the quality of medical and nursing interventions and decrease the quality of care.…”

Section: Study Limitationsmentioning

confidence: 99%

Anxiety, Depression and the Burden of Caring for Patients with Palliative Needs - Prospective Longitudinal Study

Pop

Țînț

Pop

et al. 2022

Preprint

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BackgroundPrimary caregivers of patients with palliative needs experience different psycho-emotional symptoms as insomnia, depression, anxiety, exhaustion, sadness, grief, uncertainty and hopelessness. The care burden depends on the demands of the patient and has a significant impact of the psycho-emotional status of the patient’s caregiver. This study aims to measure the primary caregiver’s (PrC) anxiety, depression and burden of care and to identify the correlation between the outcomes.MethodsThis prospective observational longitudinal study assessed the burden of care for patients with palliative needs comparatively between two groups: caregivers of patients with cancer and caregivers of patients with non-malignant diseases. At the same time, the score of anxiety and depression of these caregivers was measured. The researcher used the Burden Scale for Family Caregivers (BSFC) to measure the burden of care and Hospital Anxiety and Depression Scale (HAD) to measure the anxiety and depression of primary caregivers. These questionnaires were applied at the initial moment (T0) and periodically for three months. If the patient died in this period, the caregivers were evaluated two months after the event. Statistical analysis used the Mann Whitney U test and the Wilcoxon test to compare the two groups and Pearson test to assess the correlation between burden and anxiety/ depression.ResultsThe burden assessment of caregivers for cancer patients showed a statistically significant increase over 3 months (p=0.001). At the initial moment (T0), a statistically significant difference is observed between the burden of the oncological group and the non-oncological one. The correlation between the caregiver's burden and anxiety/ depression was statistically significant (p = 0.001).Conclusions:The load had a direct and statistically significant impact on the PrC's psycho-emotional state, and there is a strong link between it and the caregiver's anxiety and sadness when caring for a palliative patient. From a practical point of view, it is important to early identify the burden of care and to know how the PrC is relating to it, as well as to assess his/her psycho-emotional state in order to act through appropriate and individualized interventions.

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Factors Influencing the Quality of Life of the Primary Caregiver of a Palliative Patient: Narrative Review

Cited by 14 publications

References 67 publications

The United States May Currently Be Living in A Pre-Trumpian or Pre-Trump 2 Time Period: A Combined Progressive Politics and Humanistic Psychology Perspective

The United States May Currently Be Living in A Pre-Trumpian or Pre-Trump 2 Time Period: A Combined Progressive Politics and Humanistic Psychology Perspective

Caregiver Burden Correlates With Complexity of Drug Regimen in Non-oncological Palliative Medicine

Anxiety, Depression and the Burden of Caring for Patients with Palliative Needs - Prospective Longitudinal Study

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