Factors associated with the quality of life of subjects with Parkinson's disease and burden on their caregivers

Rodríguez‐Violante, Mayela; Camacho-Ordóñez, Azyadeh; Cervantes-Arriaga, Amin; Gonzàlez‐Latapi, Paulina; Velázquez-Osuna, Salvador

doi:10.1016/j.nrleng.2014.01.002

Cited by 26 publications

(22 citation statements)

References 22 publications

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“…We were interested in assessing the impact of specific MDS-UPDRS parts and patient cognition on caregivers' burden measured by the disease-specific and validated PDCB [10,17,45]. Rodriguez-Violantes et al reported MDS-UPDRS part II as most robustly correlating with caregiver burden measured by the Zarit Burden Inventory [9]. In contrast, in our study, part III of the MDS-UPDRS emerged as the only significant correlate of caregiver burden after correcting for multiple comparisons.…”

Section: Association Of Mds-updrs Moca and Caregivercontrasting

confidence: 66%

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Association of Motor and Cognitive Symptoms with Health-Related Quality of Life and Caregiver Burden in a German Cohort of Advanced Parkinson’s Disease Patients

Klietz

Schnur

Drexel

et al. 2020

Parkinson's Disease

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Parkinson’s disease (PD) is a chronic progressive movement disorder with severe reduction in patients’ health-related quality of life (HR-QoL). Motor and cognitive symptoms are especially linked with decreased PD patients’ HR-QoL. However, the relationship of these symptoms to caregiver burden is relatively unclear. Influence of the Montreal Cognitive Assessment scale (MoCA) as a cognitive screening tool and Movement Disorders Society Unified Parkinson’s disease Rating Scale MDS-UPDRS symptoms in relation to patients’ HR-QoL and caregivers` burden was analyzed. PD patients (n = 124) completed MDS-UPDRS, MoCA, and the PD questionnaire 8 (PDQ-8) as a measure of quality of life. Caregivers (n = 78) were assessed by the PD caregiver burden inventory (PDCB). PDQ-8 and PDCB scores were regressed on MDS-UPDRS subscales and MoCA subscores. PDQ-8 correlated with attention (R2 0.1282; p<0.001) and executive (R2 0.0882; p 0.001) MoCA subscores and all parts of the MDS-UPDRS. PDCB correlated most strongly with MDS-UPDRS part III motor symptoms (R2 0.2070; p<0.001) and the MoCA attention subscore (R2 0.1815; p<0.001). While all facets of PD symptoms assessed by the MDS-UPDRS relate to PD patients’ quality of life, motor symptoms are the most relevant factor for the prediction of caregiver burden. In addition, patients’ attentional symptoms seem to affect not only them, but also their caregivers. These findings show the potential of a detailed analysis of MDS-UPDRS and MoCA performance in PD patients.

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Section: Association Of Mds-updrs Moca and Caregivercontrasting

confidence: 66%

“…MDS-UPDRS symptom scores have been shown to relate to patients' health-related quality of life (HR-QoL) in international studies [6][7][8]. In contrast, the contribution of MDS-UPDRS symptoms to caregiver burden has only been investigated in smaller patient and caregiver samples [8,9].…”

Section: Introductionmentioning

confidence: 99%

Association of Motor and Cognitive Symptoms with Health-Related Quality of Life and Caregiver Burden in a German Cohort of Advanced Parkinson’s Disease Patients

Klietz

Schnur

Drexel

et al. 2020

Parkinson's Disease

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“…Among others, they reported patients' disease duration as well as the daily amount of time they dedicated to giving care to the patient. Based on prior research, we expected these variables to be positively related to scores on the PDCB (Huse et al, 2005;Martinez-Martin et al, 2008;Rodríguez-Violante et al, 2015;Schmotz et al, 2017).…”

Section: Methodsmentioning

confidence: 99%

Validating the Parkinson’s disease caregiver burden questionnaire (PDCB) in German caregivers of advanced Parkinson’s disease patients

Klietz

Rippena

Lange

et al. 2019

Int. Psychogeriatr.

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Background:Advanced Parkinson’s disease (PD) may place a high burden on patients and their caregivers. Understanding the determinants of caregiver burden is of critical importance. This understanding requires the availability of adequate assessment tools. Recently, the Parkinson’s disease caregiver burden questionnaire (PDCB) has been developed as a PD-specific measure of caregiver burden. However, the PDCB has only been evaluated in a sample of Australian caregivers of patients at a less advanced stage of the disease.Objective:We tested whether a German translation of the PDCB qualifies as an adequate measure of caregiver burden in a German sample of caregivers of advanced patients with PD.Methods:We collected PDCB data from 65 caregivers of advanced patients with PD. Reliability of the scale was assessed and compared against the original version. To validate the German version of the PDCB, we examined the correlations with the caregiver burden inventory (CBI), the short form 36 health survey (SF-36), the Parkinson’s disease quality of life questionnaire 39 (PDQ-39), disease duration, and the amount of caregiving time.Results:The total PDCB score proved to be reliable and to be significantly related to CBI and SF-36 scores. PDCB scores also increased with increasing amounts of caregiving time.Conclusions:The German version of the PDCB appears to be an adequate measure of caregiver burden in caregivers of advanced PD patients.

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“…Typically, studies use standardised scales to assess the burden that care-giving imposes on carers' health and quality of life, and key mediating factors (Choo et al, 2003;Sousa et al, 2016). They also assess the extent to which care-giver characteristics and burden are associated with the health and quality of life of the person receiving care (Rodríguez-Violante, Camacho-Ordoñez, Cervantes-Arriaga, González-Latapí, & Velázquez-Osuna, 2015;Tamanini et al, 2011). These studies usually identify an individual who is understood to be the 'main carer' and analysis is based on dyads of carers and cared-for.…”

Section: Introductionmentioning

confidence: 99%

Allocating Family Responsibilities for Dependent Older People in Mexico and Peru

Lloyd‐Sherlock

Mayston

Acosta

et al. 2017

The Journal of Development Studies

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This paper applies different analytical frameworks to explore processes of family bargaining about providing care for dependent older people in Mexico and Peru. These frameworks include cultural norms, life course effects and material exchange. The paper is based on 19 in-depth qualitative family case studies, which are linked to a wider set of quantitative survey data. Care arrangements and bargaining processes are revealed to be highly gendered, and largely conform to prevailing cultural norms. Rather than neutral and objective, the selfidentified role as main carer is found to be subjective and potentially ambiguous. The few men who self-identify as main carers are more likely to play an indirect, organisational role than engage directly in daily care. As such, bargaining mainly relates to which woman performs the main care role, and large family networks mean that there is usually more than one candidate carer. Bargaining can occur inter-generationally and conjugally, but bargaining between siblings is of particular importance. Bargaining is framed by the uncertain trajectory of older people's care needs, and arrangements are sometimes reconfigured in response to changing care needs or family circumstances. Taking the narratives at face value, the influence of life course effects on bargaining and care arrangements is more obvious than material exchange. There are, however, indications that economic considerations, particularly inheritance, still play an important behind the scenes role.

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Factors associated with the quality of life of subjects with Parkinson's disease and burden on their caregivers

Cited by 26 publications

References 22 publications

Association of Motor and Cognitive Symptoms with Health-Related Quality of Life and Caregiver Burden in a German Cohort of Advanced Parkinson’s Disease Patients

Association of Motor and Cognitive Symptoms with Health-Related Quality of Life and Caregiver Burden in a German Cohort of Advanced Parkinson’s Disease Patients

Validating the Parkinson’s disease caregiver burden questionnaire (PDCB) in German caregivers of advanced Parkinson’s disease patients

Allocating Family Responsibilities for Dependent Older People in Mexico and Peru

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