Factors Associated with Fulfilling the Preference for Dying at Home among Cancer Patients: The role of General Practitioners

Ko, Winne; Miccinesi, Guido; Beccaro, Monica; Moreels, Sarah; Donker, Gé; Alonso, Tomás Vega; Deliëns, Luc; Block, Lieve Van den

doi:10.1177/082585971403000303

Cited by 16 publications

(22 citation statements)

References 46 publications

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“…The overall percentage of deaths in the preferred place was 68.7%; this is lower than the percentages of between 83% and 88% for deaths in the preferred place reported by earlier studies conducted in the Netherlands. [2,7,8,19] This could be a result of the fact that this study was carried out among bereaved relatives of patients with various diseases, whereas earlier studies mainly covered cancer patients; a cancer diagnosis is associated with a greater likelihood of dying in the preferred place. [12] It is noteworthy that, at the univariate level, our analysis showed that cancer patients were more likely to die in the preferred place than patients with dementia and organ failure diagnosis.…”

Section: Discussionmentioning

confidence: 99%

“…Other research also identified provision of palliative care by the GP as a factor associated with a congruence between the actual and preferred place of death. [8] The causality of this relationship, however, needs to be further investigated.. Coordination between all professionals involved is important, as this is also associated with dying in the preferred place.…”

Section: Discussionmentioning

confidence: 99%

“…More specifically, the percentage of people who ultimately die in their preferred place is 83-91% in the Netherlands, 88% in Spain, 66-70% in Italy and 71-81% in Belgium. [2,5,7] There are many reasons why people are not able to die in the place they prefer; some of these might be unalterable, but others might be susceptible to change, such as a lack of contact with the GP in the last phase of life [8]. A wide body of evidence exists about factors that influence a home death, as extensively summarized by Gomes and Higginson.…”

Section: Introductionmentioning

confidence: 99%

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Which patients die in their preferred place? A secondary analysis of questionnaire data from bereaved relatives

et al. 2017

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Positive associations were found between continuity of care between healthcare professionals and contact with the general practitioner and the chance of people dying in their preferred place. Moreover, special attention for people who have had a stroke and for people with dementia who want to die at home seems indicated as their diagnosis is negatively associated with dying in their preferred place.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Which patients die in their preferred place? A secondary analysis of questionnaire data from bereaved relatives

et al. 2017

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“…As cancer progresses, patients often express a preference to receive care at home and to die at home, if possible, 456 which may be facilitated by PPC providers. 457 In addition, these physicians support families during bereavement, offering excellent continuity of care that is highly valued by patients and their families. 458 There is wide variability internationally in the engagement of family physicians and general practitioners in palliative care from less than 50% in some countries such as Canada and Japan, 459,460 to up to 85% in the United Kingdom, the Netherlands and Australia.…”

Section: Figure 3: Conceptual Model Of Palliative Care Delivery Basedmentioning

confidence: 99%

Integration of oncology and palliative care: a Lancet Oncology Commission

Kaasa

Loge

Aapro

et al. 2018

The Lancet Oncology

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540

539

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Presence of palliative care inpatient consultation team Presence of palliative care outpatient clinic Presence of community based / home palliative care Clinical processes (*) Presence of multidisciplinary specialized palliative care team Routine symptom screening in the outpatient oncology clinic Administration of systemic cancer therapy (e.g. chemo and targeted agents) possible in patients admitted to PC service oncology-and palliative care as well as their cultures. Local variations in terms of resources and practices also probably play a role. By acknowledging integration of oncology and PC as a complex process including different parts of the health care system, both horizontally and vertically, and also involving the patient, we propose SCPs as a means for future efforts to promote integration. For the same reasons, this paper will address integration in different panels. Each panel will address different aspects of integration, ranging from how to focus on the patient, to societal changes and new research areas. Introduction of panels Policy-challenges and frameworks Societal challenges Prognostication Patient-centredness-content methodology and clinical implications Models of palliative care integration The role of education: challenges and recommendations Research The commission is an international collaboration between 30 experts in oncology, PC, public health and psycho-oncology. In October 2016 a kick-off meeting was held in Milan where panel leaders were appointed, the structure of the commission was decided, and a plan for the work was agreed upon. During the two following years each panel expanded with experts within the relevant field, conducted topical literature searches, and an interactive writing process was conducted. Both administrative and academic organization were run from Norway, by Stein Kaasa, Jon Håvard Loge and Tonje Lundeby. Policy-challenges and frameworks Questions to be addressed What type of recommendations is given for integration at the national and international level on policy and public health at present? What are the current examples of different practices in organization of palliative care in different national policies in European countries? What kind of policies and approaches are needed for integration of oncology and palliative care? Patient-centredness-content, methodology and clinical implications Questions to be addressed What is patient-centredness? What are the main elements of patient-centred care in practice? How do we involve the family? Communication-a necessary tool for patient-centred care What are the barriers and solutions to succeed? Research Questions to be addressed What are some opportunities and challenges for integrating oncology and palliative care teams to conduct research together? What are some key research priorities related to integration of palliative care and oncology? What are some key research priorities related to symptom assessment and treatment? What are some key research priorities related to psychosocial support, communication and dec...

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“…Badrakalimuthu and Barclay, 2014;Calanzani et al, 2014;Campbell et al, 2014;Chen et al, 2014;De Roo et al, 2014;Fleet et al, 2014;Gomes et al, 2012;Hedinger et al, 2014;Hunt et al, 2014;Ko et al, 2014;Lee et al, 2014;McHugh et al, 2014;Reyniers et al, 2014;Venkatasalu et al, 2014); this is a rapidly expanding area of interest. However, surprisingly little has been written about the experience of the surroundings in which dying and death take place.…”

Section: Introduction and Aimmentioning

confidence: 96%

Room for Death – International museum-visitors’ preferences regarding the end of their life

Lindqvist

Tishelman

2015

Social Science & Medicine

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Factors Associated with Fulfilling the Preference for Dying at Home among Cancer Patients: The role of General Practitioners

Cited by 16 publications

References 46 publications

Which patients die in their preferred place? A secondary analysis of questionnaire data from bereaved relatives

Which patients die in their preferred place? A secondary analysis of questionnaire data from bereaved relatives

Integration of oncology and palliative care: a Lancet Oncology Commission

Room for Death – International museum-visitors’ preferences regarding the end of their life

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