Factors affecting quality of life of caregivers of children diagnosed with autism spectrum disorder

Abstract

Context:Since autism spectrum disorder (ASD) is a lifelong disease and because of its nature, the negative effects of the disease on the quality of life (QoL) of caregivers as well as patients are incontrovertible.Aims:It was aimed to evaluate the effect of the variables related to both parents and children on the QoL scores of the parents of the children with ASD.Settings and Design:This is a causality analysis study.Subjects and Methods:Questionnaire on sociodemographic/disease-related variables, QoL in Autism Questionnaire-Parent Version (QoLA-P), autism behavior checklist and Clinical Global Impression scale were assessed of 162 patients with ASD.Statistical Analysis Used:Unpaired t- test, Mann–Whitney U test, Kruskal–Wallis test, and one-way ANOVA test were used for comparing groups. The parameters found to be statistically significant for QoLA-P in different analyses were included as the independent variable in the logistic regression analysis. The backward (variable elimination) model was selected as the model in the analysis.Results:The causality has been established may be stated as the severity of autism, the presence of psychiatric disorder in the mother/father, attendance of the child at school, duration since the diagnosis of autism, and the child's medication use.Conclusions:Autism affects the QoL of caregivers. The intervention of treatment by considering the factors that affect the QoL positively or negatively may increase the QoL of caregivers.

Bumetanide Oral Liquid Formulation for the Treatment of Children and Adolescents with Autism Spectrum Disorder: Design of Two Phase III Studies (SIGN Trials)

“…Between 69 and 79% of individuals with ASD experience at least one additional psychiatric condition during their lifetime (Buck et al 2014 ; Lever and Geurts 2016 ). Furthermore, ASD and co-occurring conditions can impose a significant emotional burden and negatively affect the quality of life (QoL) of both patients and their families (Chiang and Wineman 2014 ; Özgür et al 2018 ; Picardi et al 2018 ).…”

The moderating effect of financial stress and autism severity on development of depression among parents and caregivers of Autistic children in Taif, Saudi Arabia

“…[ 31 ] Local surveys confirmed that longer duration of ASD could directly lead to poorer quality of life among carers. [ 32 33 ] Mothers tend to harbour a wide range of negative thoughts related to death and mortality that help shape their depressive cognitions. [ 34 ] The constellation of distress, depressive symptoms, and difficulties coping with ASD children needs, substantially negatively impact parents' quality of life.…”

Factors affecting quality of life among parents having a child with autism spectrum disorder in Jeddah, 2019 (cross-sectional study)

“…This is in line with the studies in which mothers exhibited more depressive symptoms and had lower QoL the more time spent with their children compared to the fathers in the sampling group. 18,19 Hence, since mothers are typically displayed as the caregivers of the household, their QoL is often more affected negatively. The lower social relationship scores were due to mothers having less time for leisure activities in their personal relationships since they would often attend to the demands of their children.…”

“…Moreover, a dissatisfied, satisfied, and neither dissatisfied nor satisfied health satisfaction reduced social relationship scores by 24.230 (Odds ratio: -24.230, 95% CI: -42.963 to -5.497), 23.299 (Odds ratio: -23.299, 95% CI: -41.474 to -5.123), and 19.263 (Odds ratio: -19.263, 95% CI: -37.999 to -0.528) points, respectively (Table7). These results suggest that a better social relationship was predicted in parents with an improved QoL and health satisfaction.A very poor, poor, and neither poor nor good QoL reduced environmental score by19.285 (Odds ratio: -19.285, 95% CI: -33.540 to -5.030), 15.054 (Odds ratio: -15.054, 95% CI: -28.081 to -2.027), and 14.182 (Odds ratio:…”