Factors Affecting Access to the Kidney Transplant Waiting List in Eastern Hungary

Barth, Anita; Szöllösi, Gergő József; Nemes, Balázs

doi:10.1016/j.transproceed.2021.01.044

Cited by 6 publications

(20 citation statements)

References 28 publications

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“…These findings she light on the need for health services and their professionals to inform individuals on hemodialysis and their families about the possibility of transplantation, since lack of information is the main reason mentioned by individuals for not being registered on a waiting list and is present in all demographic, socioeconomic and clinical characteristics. This finding may reflect the fragility in the training of health professionals, as well as regarding the involvement of individuals and their families in health education (16)(17)(18)(19)(20) .…”

Section: Discussionmentioning

confidence: 99%

“…These individuals are more likely to report having been well or very well informed about the two categories of transplants (living or deceased donor) and, most importantly, they are more likely to seek information about the diseases and from healthcare professionals. In addition, there is evidence that low education contributes to a higher incidence of renal pathologies, a more frequent transition to end-stage renal disease, resulting in reduced access to registration on the kidney transplant waiting list (12)(13)(16)(17)(18)(19)(20) .…”

Section: Discussionmentioning

confidence: 99%

“…The benefits for groups of individuals that attended school for a longer period of time are also known, as a higher level of education is considered one of the protective factors in the worsening of the effects of health problems (16)(17)(18)(19)(20) . Thus, in the most advanced stage of CKD, when renal replacement is necessary, groups with a higher level of education benefit from access to the best available therapy, kidney transplantation.…”

Section: Discussionmentioning

confidence: 99%

“…However, for individuals with time elapsed since diagnosis ≥ 5 years, the reasons lack of information, not wanting to be on the list, and multimorbidity fluctuated little. The time elapsed until access to primary health services for the diagnosis of CKD is not adequate, especially in developing countries, and even the density of health professionals such as nephrologists is deficient (11)(12)(13)16,17) . On the other hand, the time elapsed between diagnosis and the beginning of treatment in relation to access to the waiting list can be strategic.…”

Section: Discussionmentioning

confidence: 99%

“…The variables for this article, as well as the way in which the data were treated, were determined based on recent studies on renal replacement therapy (16)(17)(18)(19) . The variables age (≥18-39, 40-59, 60-79, ≥ 80 years) were selected; skin color (white, black, brown and yellow); family income, corresponding to the value of the Brazilian minimum wage in 2016 (≤BRL880.00; BRL880.01-BRL2640.00;≥BRL2640.01); marital status (married or stable union, single, separated/ divorced and widowed); years of schooling (0, 1-4, 5-9, 10-12, ≥ 13 years); time elapsed since diagnosis of chronic kidney disease and time elapsed since the beginning of therapy, which were divided (≤ 60 months or ≥ 61 months); the dichotomous variables: reading ability, having multimorbidities, having spending on chronic kidney disease, having had a transplant, hospitalization, being enrolled on the waiting list, living alone, having children, gender and area of residence.…”

Section: Methodsmentioning

confidence: 99%

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Reasons referred by individuals who were not on kidney transplantation waiting lists

Dall'Agnol

Schwartz

Zanín

et al. 2023

Rev. Gaúcha Enferm.

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Objective: To describe the reasons reported by individuals in hemodialysis that were not registered on kidney transplantation waiting lists. Methods: Cross-sectional study conducted in six renal replacement therapy services in Rio Grande do Sul, Brazil with 214 individuals undergoing hemodialysis who reported the reasons for not being registered on kidney transplantation waiting lists. The data collection was carried out through a questionnaire from March 2016 to March 2017. The Stata software was used to the statistical analysis and independence test. Results: The main reasons reported by the 214 individuals who were not registered on kidney transplantation waiting lists were due to the lack of information of the individuals, not wanting to be on list, due to morbidities and age. Conclusions: The lack of information was associated with the variables low education, male, ≤ 5 years of time since diagnosis and ≤ 5 years in renal replacement therapy. The reason for not wanting to be on the list was associated with the variables illiteracy and age.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

See 3 more Smart Citations

Reasons referred by individuals who were not on kidney transplantation waiting lists

Dall'Agnol

Schwartz

Zanín

et al. 2023

Rev. Gaúcha Enferm.

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Experience of Chronic Kidney Disease and Perceptions of Transplantation by Sex

Adoli,

Campeon,

Chatelet

et al. 2024

JAMA Netw Open

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ImportanceThe pathway to kidney transplantation (KT) begins with the patient’s acceptance of this surgical procedure after discussion with the nephrologist. The patients’ perceptions of the disease and of KT may influence their willingness to undergo transplantation.ObjectiveTo describe patients’ experiences of kidney disease and their perceptions of KT and the nephrologists’ perceptions of the patient experience.Design, Setting, and ParticipantsThis qualitative study collected data through semistructured interviews with patients with chronic kidney disease and nephrologists in the Bretagne, Île-de-France and Normandie regions, France. Researchers involved in the study in each region purposely selected 99 patients with chronic kidney disease who initiated dialysis in 2021, based on their age, sex, dialysis facility ownership, and also 45 nephrologists, based on their sex and years of experience. Data analysis was performed from January to October 2023.Main Outcomes and MeasuresThemes were identified using inductive thematic analysis. Specific characteristics of men and women as well as the nephrologist’s views for each theme were described.ResultsThis study included 42 men and 57 women (56 [57%] aged 60 years or older) who started dialysis in 2021 and 45 nephrologists (23 women and 22 men). Six major themes were identified: (1) burden of chronic kidney disease on patients and their families, (2) health care professional–patient relationship and other factors that modulate chronic kidney disease acceptance, (3) dialysis perceived as a restrictive treatment, (4) patients’ representation of the kidney graft, (5) role of past experiences in KT perception, and (6) dualistic perception of KT. In some cases, women and nephrologists indicated that women’s perceptions and experiences were different than men’s; for example, the disease’s psychological impact and the living donor KT refusal were mainly reported by 8 women.Conclusions and RelevancePatients’ past experience of chronic kidney disease in general and of KT in particular, as well as their relationship with their family and nephrologist, were substantial determinants of KT perception in this qualitative study. Targeted policies on these different factors might help to improve access to KT, and more research is needed to understand whether there are sex-based disparities.

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Equity of access to renal transplantation: a European perspective

Oniscu

2021

Current Opinion in Organ Transplantation

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Purpose of review Renal transplantation offers the chance for patients with end-stage renal disease (ESRD) to have a significantly longer, healthier and better quality life compared with remaining on dialysis. Inequities have been demonstrated at multiple points in the transplantation pathway. In this review, the factors contributing to inequity in access to renal transplantation will be explored from a European perspective. Recent findings Despite improvements in patient assessment and revision of organ-offering schemes, there remain persistent inequities in access to the waiting list, allocation of a deceased donor transplant, receiving a living donor transplant and achieving preemptive transplantation. Older age, lower socioeconomic status and health literacy are key factors that continue to impact equity of access to transplantation. Summary A number of modifiable factors have been identified affecting access to transplantation, Increased patient education together with a better access to and promotion of living donation may help address some of these inequities.

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Factors Affecting Access to the Kidney Transplant Waiting List in Eastern Hungary

Cited by 6 publications

References 28 publications

Reasons referred by individuals who were not on kidney transplantation waiting lists

Reasons referred by individuals who were not on kidney transplantation waiting lists

Experience of Chronic Kidney Disease and Perceptions of Transplantation by Sex

Equity of access to renal transplantation: a European perspective

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