Facilitating choice and control for older people in long-term care

Boyle, Geraldine

doi:10.1111/j.1365-2524.2004.00490.x

Cited by 51 publications

(80 citation statements)

References 10 publications

(16 reference statements)

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“…35,36 Interviews The descriptions of the phenomenon were elicited through open-ended unstructured interviews 37 (Table 1). An interview guide based on previous studies was used, 5,6,[19][20][21][22][23][24][25][26][27][28][29][30] pre-tested in two pilot interviews, evaluated with the research group and used during the interviews. Small talk was used to establish a relaxed and confidential atmosphere.…”

Section: Samplementioning

confidence: 99%

Older people’s experiences of their free will in nursing homes

2014

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Section: Samplementioning

confidence: 99%

Older people’s experiences of their free will in nursing homes

2014

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“…Early research in this area was often focused on the staff: its participation in decision making (Boyle, 2004;Callaghan & Wistow, 2006;Clemens & Hayes, 1997;Dunér & Nordström, 2006;Karlsson Bucht, Rasmussen, & Sandman, 2000), its balancing between protection and empowerment (Askheim, 2003;Jakobsen & Sørlie, 2010;Stalker, 2003), and its attitudes toward, advocacy for, and relationships with residents (Cook & Brown-Wilson, 2010;Nelson, 2005;Nelson et al, 2008;Ono & Asahara, 2007;Perkins et al, 2012;Tailor, Zaturenskaya, Iwamasa, & Ferrari, 2007). Studies reporting the perspectives of older individuals are sparse, but some report that autonomy is highly valued (Ball et al, 2004;Glickman et al, 1997) and others report that it is normal to adapt to the prevailing conditions in the residential care of older people (Harnett, 2010;Roth & Eckert, 2011;Söderberg, Ståhl, & Melin Emilsson, 2012).…”

Section: Previous Researchmentioning

confidence: 99%

Autonomy and Control in Everyday Life in Care of Older People in Nursing Homes

Wikström

Emilsson

2014

Journal of Housing For the Elderly

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Self-control and autonomy are not guaranteed when people age and are in need of help from others, especially in institution-based housing. This occurs despite the fact that it is a generally accepted belief that care should be delivered with the greatest possible degree of independence and autonomy. This article discusses older people's experiences with and the opportunities for autonomy in institution-based housing. Through focus group interviews and observations, the daily lives of residents at two nursing homes in Sweden were studied through a comparative approach using the theoretical framework of organizational culture. Three themes emerged showing how autonomy was not a reality for the residents. The first theme revealed an ambivalent mission, indicating ambiguity as to whether the nursing home was a place to live in or a place in which to be cared for. The second theme was symbolic power, which encompassed the staff's power embedded in the organization. The third theme was the ageist approach to care, which was noted in the way staff considered the residents to be old people who were unable and unwilling to strive for autonomy. The three themes were embedded in the organizational culture and were created and recreated in the interaction between residents and staff. A key question for further research is how to change the culture to strengthen the residents' autonomy.

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“…Similar to other studies, older people who could no longer cope talked about being at the end of the line (Nay 1995), and believed there was no other option other than residential care. An article which compared 214 older people living in residential care with 44 older people living at home found that older people living at home perceived they had less choice than people in residential care (Boyle 2004). Most older people in this study living at home felt they had a choice and had themselves made the decision to remain at home; however, the majority of older people in residential care stated that the doctor had made the decision.…”

Section: Discussionmentioning

confidence: 59%

Why Do Older People in New Zealand Enter Residential Care Rather than Choosing to Remain at Home, and Who Makes that Decision?

et al. 2009

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To investigate why older people with high support needs entered residential care and who made that decision. Longitudinal study in three New Zealand cities. Participants: older people (n=144); (unpaid) caregivers (n=47); service co-ordinators (n=12); multidisciplinary team members (n=4). Questionnaires: InterRAI Minimum Data Set Assessments Home Care; Caregiver Reaction Assessment; Mastery and control. Semi-structured interview questions focussing on decision-making, and concerns that might result in residential care entry. Interviews were at baseline and 6 months, or on entering residential care. Significant factors were found, which increased the likelihood of residential care entry for older people. These included: high scoring dependency on the instrumental activities of daily living (IADL) scale, and an adult child living some distance away. The evidence from the study participant groups highlighted contrasting views about who was important in the decision making about entry to residential care. Older people who had moved into residential care generally thought that doctors had played a key role, whereas family members and professionals tended to consider the move was the caregiver's decision. Older people with good levels of knowledge about services and support, and good housing, were more likely to continue to live in the community. Policy makers and funders need to understand the importance of clear communi- Ageing Int (2009) 34:15-32

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Facilitating choice and control for older people in long-term care

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Cited by 51 publications

References 10 publications

Older people’s experiences of their free will in nursing homes

Older people’s experiences of their free will in nursing homes

Autonomy and Control in Everyday Life in Care of Older People in Nursing Homes

Why Do Older People in New Zealand Enter Residential Care Rather than Choosing to Remain at Home, and Who Makes that Decision?

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