Exploring the needs and experiences of palliative home care from the perspectives of patients with advanced cancer in China: a qualitative study

Liu, Xiaocheng; Liu, Zhili; Zheng, Ruihua; Li, Wenyuan; Chen, Qiudi; Cao, Wei; Li, Ruina; Ying, Wenjuan

doi:10.1007/s00520-021-06037-8

Cited by 17 publications

(20 citation statements)

References 47 publications

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“…All studies were conducted in mainland China: five in Shanghai, 8 18–21 two in Tianjin, 22 23 two in Jiangsu, 24 25 two in Guangdong 26 27 and one each in Xinjiang, 28 Hebei, 29 Beijing 30 and Hunan. 31 Wang et al 32 Wang et al 33 and Liu et al 34 did not specify the study setting in their reports. Eight studies explored the needs of family caregivers of dying patients, while six focused on dying patients and four on both patients and their family members.…”

Section: Resultsmentioning

confidence: 99%

“…Moreover, none of the studies included statements regarding the cultural or theoretical perspectives of the researchers or addressed the influences of researchers' perspectives on the study results. Additionally, evidence of ethical approval by the respective body was not presented by any study, except the study by Liu et al 34 The methodological quality varied between the nine quantitative studies. The inclusion criteria were clearly stated by all studies, except the study by Liu et al 29 The study subjects and setting were described in all studies, except in the study by Zhao et al 30 Two studies 21 29 did not measure the exposure using valid and reliable methods.…”

Section: Quality Of Studiesmentioning

confidence: 99%

“…20 It is reported that patients wish to obtain more illness-related and care-related information. 34 Some patients also hope that the government A tertiary hospital in Guangdong 121 cancer patients (M:F=66:55) and 90 family members (M: F=43:47) Self-designed questionnaire to investigate their expectation of good death Patients and their family members showed differences in the importance of items. However, there was a close positive correlation between the expectation of good death among patients and their family members.…”

Section: Category 3: Emotional and Spiritual Carementioning

confidence: 99%

“…Open access would provide financial support 34 through the state's medical policy or insurance system.…”

Section: Category 3: Emotional and Spiritual Carementioning

confidence: 99%

“…Some patients also expressed their wish of interpersonal Open access communication without discrimination and being looked down on by others. 34 My father also died from cancer. At that time, he was in great pain and didn't want to be treated.…”

Section: Category 5: Maintain Autonomy Rightsmentioning

confidence: 99%

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Care needs of dying patients and their family caregivers in hospice and palliative care in mainland China: a meta-synthesis of qualitative and quantitative studies

Zhu

Zhang

et al. 2021

BMJ Open

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ObjectiveTo investigate the care needs of dying patients and their family caregivers in hospice and palliative care in mainland China.MethodsA search for English and Chinese quantitative and qualitative studies was performed using the following English databases: PubMed (Medline), CINAHL and PsycINFO, as well as Chinese databases: SinoMed and CNKI. The records were independently screened by two reviewers and critiqued using Joanna Briggs Institute Critical Appraisal tools. All quantitative data were transformed into qualitative data, which were converted into textual descriptions. Due to the diversity of included studies, a three-step analysis was performed: narrative summary, thematic analysis and presentation of integrated results in a narrative form. The qualitative findings were pooled using the meta-aggregation approach.ResultsThe literature search identified 2964 papers after removing duplicates, from which 18 were included (9 quantitative and 9 qualitative studies). All studies were conducted in mainland China. Quantitative studies involved cross-sectional surveys, and qualitative studies involved interviews for data collection. Two synthesised results of patients’ needs were identified, including needs to be comfortable and experience a good death. Another two synthesised results of family caregivers’ needs included needs to care for and improve the quality of life of patients, and to care for themselves well.ConclusionThis study identified that patients and family caregivers have an increasing demand for professional care at the end of life. Professionals, especially nurses, should enact a patients’ demand-centred practice to overcome the challenges of organisation, education, emotion and communication to provide high-quality end-of-life care.

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Section: Resultsmentioning

confidence: 99%

Section: Quality Of Studiesmentioning

confidence: 99%

Section: Category 3: Emotional and Spiritual Carementioning

confidence: 99%

“…Open access would provide financial support 34 through the state's medical policy or insurance system.…”

Section: Category 3: Emotional and Spiritual Carementioning

confidence: 99%

Section: Category 5: Maintain Autonomy Rightsmentioning

confidence: 99%

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Care needs of dying patients and their family caregivers in hospice and palliative care in mainland China: a meta-synthesis of qualitative and quantitative studies

Zhu

Zhang

et al. 2021

BMJ Open

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Exploring the symptoms and psychological experiences among lung cancer convalescence patients after radical lobectomy: A qualitative study

Xiao,

Peng,

et al. 2024

Cancer Medicine

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ObjectiveThis study aims to explore the symptom experiences and psychological feelings of lung cancer patients after radical lobectomy in China.MethodsA qualitative study was conducted using face‐to‐face semistructured interviews with lung cancer patients who had a radical lobectomy for treatment of their cancer during the convalescence period. Participants (n = 18) were recruited from a general hospital in China, and patients were selected using purposive sampling from September 2021 to February 2022. Interviews were recorded and transcribed verbatim, and Colaizzi's seven‐step method of phenomenology was used. The Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist was conducted to report the study.ResultsFour themes were extracted from the interview data: physiological dimensions (fatigue, cough or sputum, chest tightness and shortness of breath, daily activities affected, sleep disturbance, lack of appetite); psychological dimensions (negative emotion, fear of cancer recurrence, learning to accept reality, strengthened faith and hope); family dimensions (heavy economic burden, perceived family care, improved health management behavior); and social dimensions (perceived support of medical staff, decreased sense of social value and self‐identity, changes in social and working style).ConclusionLung cancer patients are still troubled by many problems during the postoperative recovery period. Medical staff should design and implement effective evaluations and targeted interventions for patients' physical and mental health as soon as possible to improve patients' physical and mental health, as well as their quality of life.

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Development and preliminary testing of a questionnaire to measure mobile health information‐seeking behaviour in people with cancer

Zhang

Hong

et al. 2023

Nursing Open

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Aim:The aim of the study was to develop and psychologically test the mobile health information-seeking behaviour (MHISB) questionnaire in people with cancer.Design: Instrument development. Methods:The study was conducted in three phases in a southeastern city of China from May 2017 to April 2018. In phase one, an item pool was constructed based on a literature review and semistructured interviews. In phase two, expert evaluation and cognitive interviews were used to evaluate the content validity of the questionnaire. In phase three, a cross-sectional study was conducted with people with cancer.Cronbach's α was calculated for reliability analysis. Validity evaluation included content validity and construct validity. Results:The developed MHISB questionnaire has four dimensions (informationseeking frequency, information-seeking self-efficacy, health information evaluation and information-seeking willingness) and 25 items. Psychometric findings were satisfactory and supported the questionnaire's reliability. Conclusions:The construction process of the MHISB questionnaire was scientific and feasible. The MHISB questionnaire had acceptable validity and reliability, and it requires further improvement in future studies.

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Exploring the needs and experiences of palliative home care from the perspectives of patients with advanced cancer in China: a qualitative study

Cited by 17 publications

References 47 publications

Care needs of dying patients and their family caregivers in hospice and palliative care in mainland China: a meta-synthesis of qualitative and quantitative studies

Care needs of dying patients and their family caregivers in hospice and palliative care in mainland China: a meta-synthesis of qualitative and quantitative studies

Exploring the symptoms and psychological experiences among lung cancer convalescence patients after radical lobectomy: A qualitative study

Development and preliminary testing of a questionnaire to measure mobile health information‐seeking behaviour in people with cancer

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