Exploring role strain and experiences of caregivers of children living with disabilities

Abstract

Aim To explore and describe caregiver role strain in caregivers of children living with disabilities. Design This study used qualitative explorative, descriptive and contextual design. Methods Eleven participants were purposively chosen from caregivers of children receiving help from the social and community development office. Data collection used semistructured interviews and data saturation occurred with the 11 participants. The data were analysed using content analysis process. The Consolidated Criteria for Reporting Qualitative Research Guidelines were used for reporting. Results Four main themes were identified: caring for a child with disability affects the overall health of the caregiver; caring for children living with disabilities puts financial strain on the caregivers; caring for children living with disabilities has an impact on other roles; and strategies employed to cope with the strain of caring for a child living with disability.

Lifelong Fitness in Ambulatory Children and Adolescents with Cerebral Palsy II: Influencing the Trajectory

“…They often reported feeling hesitant and responsible for providing accessibility for their child. The barrier to a parent's investment in a child's activities[49,50] can be addressed by a supportive community with consideration for the timing of sessions, carpooling options, and convenient facility locations. By supporting the parents and aiding them in overcoming barriers, the child can receive support for their autonomy in participation[49,51].Environmental domain: The impact of the environment was the third domain of influence brought up by participants.…”