Exploring psychosocial correlates of physical activity among children and adolescents with spina bifida

Marques, Adilson; Maldonado, Inês; Santos, Sofía

doi:10.1016/j.dhjo.2014.06.008

Cited by 10 publications

(15 citation statements)

References 30 publications

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“…Social participation was analysed in five studies: one research paper used qualitative methodology [22] while others were large quantitative studies exploring different aspects of community participation [18,20,21,22]. Three cross-sectional studies were focused on attendance issues [20,21,22] and found that children with SB had lower social participation rates than their healthy peers [20,22] and children with other disorders (learning disabilities or asthma) [21].…”

Section: Resultsmentioning

confidence: 99%

“…Three cross-sectional studies were focused on attendance issues [20,21,22] and found that children with SB had lower social participation rates than their healthy peers [20,22] and children with other disorders (learning disabilities or asthma) [21]. The study conducted by Flanagan et al (2013) compared different dimensions of attendance and involvement in social activities for children with early-onset ASCI and SB.…”

Section: Resultsmentioning

confidence: 99%

“…Competence in both simple and complex abilities (transfers, wheelchair skills) was the important positive factor for physical activities [15]. Issues with communication and learning disability had adverse effects on community participation in the study of Liptak et al (2010) [21]. Peny-Dahlstrand et al (2013) indicated that processing skills were the important contributory factor in the setting of a classroom, mealtime/snacks, and playground/recess [19].…”

Section: Resultsmentioning

confidence: 99%

“…Barriers to participation were revealed in school and work environments, physical and built environment, within institutional and government policies, services and assistance, attitudes and social support. The most significant barriers to participation were: poverty [21,22], lack of family support and time [22], insufficient information [15,22,23], lack of transportation and community programmes, unsafe environment [22], shortage and limited access to playgrounds and sport facilities, the overprotective attitude towards children and adolescents with disabilities, the inability of parents and/or teachers to be open-minded and flexible [15]. Facilitators for participation included caregivers employment [20], information for parents, a solution-oriented approach within the family, parental encouragement of physically active and independent lifestyles for their children [15], good assistive devices for mobility and personal care [15,24], and services/support at school [21].…”

Section: Resultsmentioning

confidence: 99%

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Participation of Children with Spina Bifida: A Scoping Review Using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY) as a Reference Framework

et al. 2018

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Background and objectives. Participation is a fundamental right of the child, regardless of his health status. Assessing and supporting the participation of children with spina bifida (SB) presents a significant challenge for practitioners. The purpose of this study was to examine what is known about the participation of children with SB. Materials and Methods. The framework for scoping reviews from Arksey & O’Malley was used. A literature search in Cumulative Index to Nursing and Allied Health Literature (CINAHL), Medical Literature Analysis and Retrieval System Online (Medline), PsychINFO and the Education Resources Information Centre (ERIC) databases retrieved 136 papers, 10 of which met the criteria for inclusion and were selected for analysis. Synthesis of the results on participation within occupational domains of leisure, school and community, and factors influencing participation of children with SB was performed. Results. All the included studies were non-experimental and used cross-sectional, population-based or qualitative design. Most studies analysed social participation or participation in physical activities, except one that focused on school participation. Data from these studies have shown that children with SB experience greater participation restrictions compared to their typical peers or children with other chronic diseases. The participation was mainly affected by contextual factors. Relationships between pathology and participation were not sufficiently validated. Conclusions. There is little research on the participation of children with SB. Future studies must consider contextual factors and interventions facilitating or impeding participation.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Participation of Children with Spina Bifida: A Scoping Review Using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY) as a Reference Framework

et al. 2018

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“…The management and the neurourology monitoring of children victims of spina bifi da in the Department of Physical Medicine and Rehabilitation of Ibn Rochd in University Teaching Hospital of Casablanca, wasthe result of inter department collaboration that allows to make many observations. It was the youth of these patients[13], the average age of 11.9 +/-5.8 years table 1. A study by Szymanski and al.,[8], on a larger population (369 patients) reported a similar mean age 10.8 years.…”

mentioning

confidence: 90%

Neuro-urological surveillance of Spina bifida in Morocco

Azanmasso¹,

Tchonda²,

Alagnidé³

et al. 2019

J Nov Physiother Phys Rehabil

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Objective: Spina bifi da is one of the fi rst caused of disability with children in USA. This incidence was estimated to 3.5 per 10000 habitants. In France, it was mostly, 0.5 per 1000 habitants. The improvement in neuro surgy and in urology allowed a veritable reduction of mortality with spina bifi da. Method: It was a retrospective descriptive and analytic study with children suffering of spina bifi da and followed up between january 2013 and december 2015 at the department of Physical Medicine of Casablanca. Results: Twenty six patients were followed up. The average age was 11.9 +/-5.8 years. These urinary disorders were frequency 100%, urinary incontinence 65.4%, urgency 73.1% and intermittent stream or training 46.2% with signifi cant post void residual 26.9%. In urodynamic studies, bladder sphincter dysynergia was 7.7%, low bladder compliance with 61.5%, phasic or terminal detrusor overactivity 84.6% with 38.5% dangerous. In ultrason, they were 23.1% fi ght bladder with urinary retrogress and two children had dilatation of upper urinary tract and end stage renal disease, in list for renal transplantation. Conclusion: The children with spina bifi da need follow-up and managment of requirement of care relative to the weight of this affection for children and their parents.

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Examining factors of physical activity participation in youth with spina bifida using the Theoretical Domains Framework

Volfson

McPherson

Tomasone

et al. 2020

Disability and Health Journal

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Spina Bifida (SB) is a congenital neural tube defect that involves the incomplete development of the spinal cord, resulting in varying health ailments. Given the high rate of inactivity reported for youth with SB and using the Theoretical Domains Framework as a guide, the purpose of this study was to explore the physical, psychological, social and environmental factors influencing physical activity (PA) participation in this population. Nine eligible youth (6 females; mean age = 15.9 years) took part in one, semi-structured individual interview. The most commonly reported perceived PA facilitators were: self-efficacy, positive consequences of PA, positive affect, and social influences. Lack of knowledge and independence, pain/fatigue, limited control over decision processes, and inaccessible environmental resources were the most commonly reported barriers to PA. These findings can be used to direct further research, testing the theoretical correlates that are most amenable to change in order to promote PA within this population.

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Exploring psychosocial correlates of physical activity among children and adolescents with spina bifida

Cited by 10 publications

References 30 publications

Participation of Children with Spina Bifida: A Scoping Review Using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY) as a Reference Framework

Participation of Children with Spina Bifida: A Scoping Review Using the International Classification of Functioning, Disability and Health for Children and Youth (ICF-CY) as a Reference Framework

Neuro-urological surveillance of Spina bifida in Morocco

Examining factors of physical activity participation in youth with spina bifida using the Theoretical Domains Framework

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