Exploring patient experiences and concerns in the online Cochlear Implant community: a natural language processing approach

Williams, Christopher Y.K.; Li, Rosia X; Luo, Michael Y; Bance, Manohar

doi:10.1101/2022.03.22.22272761

Cited by 1 publication

(2 citation statements)

References 34 publications

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“…Tweets regarding the malfunctioning of the implants were mostly centered around limited battery life, and confusing ambient sounds for malfunctioning of the implant. The frustration that patients voiced on Twitter regarding living with CI's corroborates a recently published analysis of posts that found CI connectivity, adults considering surgery, surgery‐related posts, and day‐to‐day living with CI were the most discussed themes on Reddit, another social media platform 23 . The experience of living with CI was prominent in both the liked and negative cohorts, underscoring the extent and relatability of frustration.…”

Section: Discussionsupporting

confidence: 67%

“…The frustration that patients voiced on Twitter regarding living with CI's corroborates a recently published analysis of posts that found CI connectivity, adults considering surgery, surgery-related posts, and day-to-day living with CI were the most discussed themes on Reddit, another social media platform. 23 The experience of living with CI was prominent in both the liked and negative cohorts, underscoring the extent and relatability of frustration. Understanding the unfiltered experiences of living with CI can help otolaryngologists set expectations appropriately.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Twitter Perspectives on Cochlear Implantation: Sentiment and Thematic Analysis

Feier

Nguyen

Choi

2023

Otolaryngol.--head neck surg.

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ObjectiveTo identify themes that contribute to the most positive and negative perspectives of cochlear implants (CIs) on Twitter.Study DesignA cross‐sectional qualitative study.SettingSocial media (Twitter).MethodsIn this study, all English‐language original tweets mentioning “cochlear implant” from 2019 to 2021 were collected from Twitter's Academic Research Database using a custom Python script. Sentiment analysis was performed using VADER, a sentiment analysis tool built to analyze the inherent positivity or negativity of social media posts. Tweets were quantitatively sorted by compound sentiment score (range −1 [most negative] to 1 [most positive]). Thematic analysis based on grounded theory was performed on the most positive, negative, and “liked” tweets.ResultsOf the 19,376 tweets included, the average (standard deviation) compound sentiment score was 0.21 (0.46). A total of 10,375 (53.5%) tweets had a positive tone, 4965 (25.6%) were neutral and 4036 (20.8%) were negative. Of the 100 most negative tweets, the most prominent themes were media representation (21.9%), the controversy of CI within the Deaf community (19.8%), and unrelated to direct patient experience (16.7%). Of the 100 most positive tweets, the most prominent themes were tweets of happiness and support (25.0%), tweets unrelated to direct patient experience (18.0%), and tweets about hearing new sounds (10.0%).ConclusionWhile the majority of tweets on CI carried a positive tone, there are ongoing challenges with the stigma surrounding CI. Public perspectives of CI on social media may help clinicians counsel CI patients and elucidate issues that lead to newfound acceptance or ongoing stigma of CI in the general population.

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Section: Discussionsupporting

confidence: 67%

Section: Discussionmentioning

confidence: 99%