Exploring palliative care nursing of patients with pre-existing serious persistent mental illness

Brown, Russell; Chambers, Shirley; Rosenberg, John P.

doi:10.1080/09699260.2019.1619964

Cited by 9 publications

(23 citation statements)

References 34 publications

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“…For instance, the initialism SMI was not just used for “severe mental illness” but also for “severe and persistent mental illness” instead of SPMI [e.g., ( 5 , 24 , 29 )]. The initialism SPMI was used for “severe and persistent mental illness” as well as “serious and persistent mental illness” ( 7 ). Half of the papers addressed the lack of a consensus definition ( 1 – 5 , 10 , 13 , 15 , 24 , 29 – 31 , 35 , 37 , 38 ).…”

Section: Resultsmentioning

confidence: 99%

“…The articles in our final sample included descriptive studies (1,3,5,8,10,(24)(25)(26)(27)(28)(29)(30)(31)(32), systematic literature reviews (2, 4, 9, 15), a non-systematic literature review (33), qualitative case studies (11,34,35), a mixed-method approach (36), and theoretical papers (7,12,13,(37)(38)(39)(40). Eleven articles originated in the United States, five in Canada, three each in Australia and Italy, two in Switzerland, one each in Sweden, Taiwan, Belgium, Netherlands, New Zealand, and the United Kingdom.…”

Section: Identified Literaturementioning

confidence: 99%

“…Nine articles discussed SPMI in connection with palliative care (7-13, 15, 39). Four out of the nine papers were theoretical (7,12,13,39) and five empirical (8)(9)(10)(11)15). The definitions of SPMI used in these papers were those from the National Institute of Mental Health 6 Among the palliative care-related articles, only three address the lack of a consensus definition of SPMI (10,13,15).…”

Section: Definitions Of Severe and Persistent Mental Illnessmentioning

confidence: 99%

“…Recently, a debate has emerged that connects SPMI with palliative care (7)(8)(9)(10)(11)(12)(13)(14)(15). A paradigm shift to "palliative psychiatry" for SPMI has been proposed as this population is at risk of therapeutic neglect and/or overly aggressive care within the existing care paradigms (13).…”

Section: Introductionmentioning

confidence: 99%

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Defining Severe and Persistent Mental Illness—A Pragmatic Utility Concept Analysis

Zumstein

Riese

2020

Front. Psychiatry

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The concept of severe and persistent mental illness (SPMI) lacks a consensual definition. Variations in definitions stem above all from different meanings about the constituent features of the concept and how to operationalize them. Our objective was to clarify the concept of SPMI and to explore the level of concept maturity through pragmatic utility (PU) concept analysis. Our findings suggest that SPMI is a partially mature concept that needs further clarification. We argue that the lack of a uniform definition is inherent to the problem: SPMI refers to a patient population rather than a disease entity, and the term has to be useful for different stakeholder purposes. Therefore, while an agreement on the principle three dimensions included in a definition may be possible (diagnosis, disability, and duration), their operationalization will have to be context-dependent and specific for the task at hand.

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Section: Resultsmentioning

confidence: 99%

Section: Identified Literaturementioning

confidence: 99%

Section: Definitions Of Severe and Persistent Mental Illnessmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Defining Severe and Persistent Mental Illness—A Pragmatic Utility Concept Analysis

Zumstein

Riese

2020

Front. Psychiatry

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“…3 However, palliative care for patients with SMI (see box 1 for an overview of the care structure for patients with SMI in the Netherlands) and physical health issues is still not widely implemented, and research on this topic for this patient group is scarce. [4][5][6][7][8][9][10][11] As the interplay between physical and psychiatric symptoms of patients with SMI and physical health issues makes them particularly vulnerable and complicates healthcare provision, 7 12-15 such research would be extremely relevant.…”

Section: Introductionmentioning

confidence: 99%

Severe mental illness and palliative care: patient semistructured interviews

Knippenberg

Zaghouli²,

Engels³

et al. 2020

BMJ Support Palliat Care

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ObjectivesTo explore perceptions, experiences and expectations with respect to palliative care of patients with severe mental illness (SMI) and an incurable, life-limiting chronic illness.MethodsFace-to-face semistructured interviews were conducted with 12 patients (10 of them living in a mental healthcare institution) with severe mental and physical health issues in the Netherlands. A semistructured interview guide was used to elicit perceptions of, experiences with and expectations regarding palliative care. Data were analysed using inductive content analysis.ResultsAnalysis of the data revealed eight categories: perceptions on health and health issues, coping with illness and symptoms, experiences with and wishes for current healthcare, contact with relatives and coresidents, experiences with end of life of relatives and coresidents, willingness to discuss end of life and death, wishes and expectations regarding one’s own end of life and practical aspects relating to matters after death. These categories were clustered into two separate themes: current situation and anticipation of end of life. Interviewees with SMI appeared not accustomed to communicate about end-of-life issues, death and dying due to their life-threatening illness. They tended to discuss only their current situation and, after further exploration of the researcher, the terminal phase of life. They seemed not engaged in their future palliative care planning.ConclusionsFindings of this study highlight inadequacies in advance care planning for patients with SMI. Results suggest using values, current and near wishes, and needs as a starting point for establishing a gradual discussion concerning goals and preferences for future medical and mental treatment and care.

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Lean in, don’t step back: The views and experiences of patients and carers with severe mental illness and incurable physical conditions on palliative and end of life care

Jerwood

Ward

Phimister

et al. 2021

Progress in Palliative Care

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Exploring palliative care nursing of patients with pre-existing serious persistent mental illness

Cited by 9 publications

References 34 publications

Defining Severe and Persistent Mental Illness—A Pragmatic Utility Concept Analysis

Defining Severe and Persistent Mental Illness—A Pragmatic Utility Concept Analysis

Severe mental illness and palliative care: patient semistructured interviews

Lean in, don’t step back: The views and experiences of patients and carers with severe mental illness and incurable physical conditions on palliative and end of life care

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