Explaining the individual challenges of women affected by neuromyelitis optica and multiple sclerosis: A comparative content analysis Study

Shabany, Maryam; Ayoubi, Saeideh; Moghadasi, Abdorreza Naser; Najafi, Masood; Eskandarieh, Sharareh

doi:10.1016/j.clineuro.2021.106789

Cited by 4 publications

(3 citation statements)

References 26 publications

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“…These fifth categories are benign; relapsing-remitting; primaryprogressive; secondary progressive, and; progressiverelapsing. (Shabany et al, 2021) People with MS typically develop symptoms in their late 20s; Symptoms of MS are unpredictable and vary greatly from person to person, and from time to time in the same person. Multiple Sclerosis can cause symptoms such as extreme fatigue, lack of coordination, weakness, tingling, impaired sensation, vision problems, bladder problems, and cognitive impairment and mood changes.…”

Section: Introductionmentioning

confidence: 99%

Assessment Of Health Related Quality Of Life Among Patients With Multiple Sclerosis At Minia University Hospital

Abdallah

Mohammed

Rabee

et al. 2022

Minia Scientific Nursing Journal

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Background: Multiple sclerosis (MS) is the most common autoimmune disease affecting the central nervous system (CNS). It is a demyelinating disease of the central nervous system, which leads to impaired cognitive, motor and or sensory functions. Aim: The study aimed to assess health related quality of life among patients with multiple sclerosis at Minia University Hospital. Design: Descriptive research design.Sample: A convenience sample consists of 60 patients with multiple sclerosis. Settings: The present study was conducted at out patient's neuropsychiatric clinic at Minia university hospital. Tools: Data were collected by two tools; the first tool: Personal Data; the second tool: Multiple Sclerosis Quality of Life (MSQOL) structured interviewing questionnaire. Results: The current study shows that the mean age was 33 ± 7.7 years and two-thirds of them were females, also, 50% of sample has fair quality of life. There are highly statistically significant difference between overall quality scores and physical health, role limitations due to physical problems, role limitations due to emotional problems, pain, emotional well-being, energy, social function, cognitive function and health distress. Conclusion: The current study concluded that there was significant impairment in quality of life for multiple sclerosis patients, in addition that multiple sclerosis patients suffer from impairment in their quality of life among all domains. Recommendations: Perform a continuous health assessment and observation to the multiple sclerosis patients (health status, emotional status, skin integrity, pain sensation, and balance and movement ability).

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Section: Introductionmentioning

confidence: 99%

Assessment Of Health Related Quality Of Life Among Patients With Multiple Sclerosis At Minia University Hospital

Abdallah

Mohammed

Rabee

et al. 2022

Minia Scientific Nursing Journal

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“…Another point regarding MS care and services in Iran is that more than half of the subjects (51.9%) mentioned experiencing high stress level for increased costs of rehabilitation services 24 while people with MS need long-term rehabilitation care. 52 …”

Section: Discussionmentioning

confidence: 99%

Economic and Social Standing of Individuals in Iran Diagnosed with Multiple Sclerosis

Ghadiri,

Sahraian,

Ashtari

et al. 2023

Arch Iran Med

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Background: Multiple sclerosis (MS) may be affected by socioeconomic status (SES). This study aims to explore the determinants of SES among Iranian patients with MS and examine how these factors relate to disability and disease progression. Methods: All patients with MS listed in the nationwide MS registry of Iran (NMSRI) until January 8, 2022, were included in this population-based study. Results: Among the 5153 patients, most were female (74.5%), married (70.8%), and did not hold an academic degree (53.8%). Unemployment (OR: 3.75) and being unmarried (OR: 2.60) were significantly associated with Expanded Disability Status Scale (EDSS)≥6, and the time to progression was shorter in the unemployed group (P value: 0.03). There was also a significant negative correlation between the time to progression and the age at disease onset. Conclusion: The study suggests that providing financial and social support to MS patients and their families through investment could reduce both individual and societal burdens.

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“…Three key objectives of self-care are illness monitoring, improving one's ability to function on one's own, and reducing complications. Therefore, to enhance these patients' quality of life at home, effective education and interventions, including teaching on self-care, are crucial (Shabany et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

Self-care Training Program for Patients Suffering from Multiple Sclerosis

Sobhy Hassan,

Hamdy Ahmed,

Abd ElKader Mohamed

et al. 2024

Egyptian Journal of Health Care

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Background: Multiple sclerosis is a chronic autoimmune disease affecting the central nervous system, often leading to significant impairments in quality of life and daily functioning for patients. Aim: The study aimed to evaluate the impact of a self-care training program for patients suffering from multiple sclerosis. Design: A quasiexperimental design was used. Setting: The study was carried out in an outpatient clinic at

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Explaining the individual challenges of women affected by neuromyelitis optica and multiple sclerosis: A comparative content analysis Study

Cited by 4 publications

References 26 publications

Assessment Of Health Related Quality Of Life Among Patients With Multiple Sclerosis At Minia University Hospital

Assessment Of Health Related Quality Of Life Among Patients With Multiple Sclerosis At Minia University Hospital

Economic and Social Standing of Individuals in Iran Diagnosed with Multiple Sclerosis

Self-care Training Program for Patients Suffering from Multiple Sclerosis

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