Assessment Of Health Related Quality Of Life Among Patients With Multiple Sclerosis At Minia University Hospital

Abstract

Background: Multiple sclerosis (MS) is the most common autoimmune disease affecting the central nervous system (CNS). It is a demyelinating disease of the central nervous system, which leads to impaired cognitive, motor and or sensory functions. Aim: The study aimed to assess health related quality of life among patients with multiple sclerosis at Minia University Hospital. Design: Descriptive research design.Sample: A convenience sample consists of 60 patients with multiple sclerosis. Settings: The present study was conducted at out patient's neuropsychiatric clinic at Minia university hospital. Tools: Data were collected by two tools; the first tool: Personal Data; the second tool: Multiple Sclerosis Quality of Life (MSQOL) structured interviewing questionnaire. Results: The current study shows that the mean age was 33 ± 7.7 years and two-thirds of them were females, also, 50% of sample has fair quality of life. There are highly statistically significant difference between overall quality scores and physical health, role limitations due to physical problems, role limitations due to emotional problems, pain, emotional well-being, energy, social function, cognitive function and health distress. Conclusion: The current study concluded that there was significant impairment in quality of life for multiple sclerosis patients, in addition that multiple sclerosis patients suffer from impairment in their quality of life among all domains. Recommendations: Perform a continuous health assessment and observation to the multiple sclerosis patients (health status, emotional status, skin integrity, pain sensation, and balance and movement ability).

Nursing Intervention for Empowering Quality of Life for Adolescents with Multiple Sclerosis: A quasi –experimental study

“…Concerning to health perception of the studied adolescents, the result of current study showed that less than one fifth of the studied adolescents their total score of QOL was best and few of them their total score of QOL was worse in relation to their health perception in pre nursing intervention, while less than three quarters of them their quality of life was best and very few of them their total score of QOL was in post nursing intervention program, there were high statistical significant difference ( p<0.001 ) pre and post nursing intervention. This finding was matched with study by Abdallah et al, (2022) who conducted study about " assessment of health related quality of life among patients with multiple sclerosis at Minia University Hospital" and founded that most of the studied patients had poor quality of life and recommended performing nursing intervention program is very important to improve health perception among patients with MS.…”

“…Table (2): Table displayed that, the majority (88%) of studied adolescents were not smokers, regarding their family history, more than one quarter (28%) of them their families had history of multiple sclerosis disease, more than three quarters (78%) had chronic disease, 20% and 22% of them had neurological and auto immune diseases respectively. Concerning past history of studied adolescents with multiple sclerosis disease, very few (4%) of them had collagen diseases, and 8% had Covid-19.…”