Experiencing Support During Needle-Related Medical Procedures: A Hermeneutic Study With Young Children (3–7 Years)

Karlsson, Katarina; Englund, Ann-Charlotte Dalheim; Enskär, Karin; Nyström, Maria; Rydström, Ingela

doi:10.1016/j.pedn.2016.06.004

Cited by 30 publications

(36 citation statements)

References 51 publications

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“…Some parents blamed themselves for their child’s suffering. Specific programs that provide appropriate educational and psychological support need to be developed and evaluated to improve parents’ and children’s experience to reduce the psychological impacts of certain medication and alleviate the caregiving burden (Karlsson, Dalheim Englund, Enskar, Nystrom, & Rydstrom, 2016). …”

Section: Discussionmentioning

confidence: 99%

Struggling in the Dark to Help My Child: Parents' Experience in Caring for a Young Child with Juvenile Idiopathic Arthritis

Yuwen

Lewis

Walker

et al. 2017

Journal of Pediatric Nursing

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Purpose The purpose of this study is to describe parents’ experiences in caring for 2–5-year-old children with juvenile idiopathic arthritis (JIA). Design and methods A qualitative study using single-occasion in-depth interviews was conducted. Nine parents (eight mothers and one father) were interviewed in-person or via telephone. Data were analyzed using inductive content analysis. Methods used to protect the trustworthiness of study results included maintenance of an audit trail, peer debriefing, and member checks. Results The core construct Struggling in the Dark to Help My Child explained parents’ experience in six domains: not knowing, trying to reach out in the dark, feeling my child’s pain, working out the kinks to stay on top to manage, feeling drained by the whole process, and being hard on the entire household. Parents struggled with the unknown, searched for resources, witnessed their child’s suffering without knowing how to help, and tried every possible way to stay on top of the child’s illness and treatment, even when they felt drained physically and emotionally. JIA not only consumed their lives, but also affected the entire family, including the siblings and spouse, and the relationships among family members. Conclusion and implications Findings highlight the day-to-day lived challenges parents face when caring for a young child with JIA. Healthcare providers including nurses need to assess the particular needs of an ill child and parents as well as the impact of the illness on the physical and psychosocial health of the entire family so that proper resources can be provided.

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Section: Discussionmentioning

confidence: 99%

Struggling in the Dark to Help My Child: Parents' Experience in Caring for a Young Child with Juvenile Idiopathic Arthritis

Yuwen

Lewis

Walker

et al. 2017

Journal of Pediatric Nursing

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“…A protesting child is highly unlikely to have consented to the implementation of the painful medical procedure. In such scenarios, Nurses, contest the UN Convention (UNCRC, 1989), the Swedish Health Care Act (SFS, 1982:763 Papers that form the basis of this study (Darcy et al, 2014b(Darcy et al, , 2015(Darcy et al, , 2014aKarlsson et al, 2016bKarlsson et al, , 2014Karlsson et al, , 2016a, show the importance for a child to trust adults during medical procedures. Children and adults need to be in connection with others in order to experience togetherness and belonging (Todres et al, 2009).…”

Section: Discussionmentioning

confidence: 99%

“…Child: I want to see. The child looks upset and quickly takes the book away with one hand [Observation, six-year-old girl, for example, from Karlsson, Dalheim Englund, Enskär, Nyström, and Rydström (2016b)]. Therefore, a sense of insiderness can be connected with when the child feels that adults make effort to make the procedure convenient and comfortable: Nurse: Are you lying comfortably now?…”

Section: Insiderness ↔ Objectificationmentioning

confidence: 99%

“…For meaning-making to occur the child needs to be allowed to participate and in order to do so, they need to know what is going to happen. In order to gain this specific knowledge the child is often curious (Darcy et al, 2015;Karlsson et al, 2016b). They ask questions about the procedure and they can be invited to tell the nurse how the procedure should be performed: For example, the nurse is about to pull the needle out from the central venous port.…”

Section: Meaning-making ↔ Loss Of Meaningmentioning

confidence: 99%

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Medical procedures in children using a conceptual framework that keeps a focus on human dimensions of care – a discussion paper

Karlsson

Galvin

Darcy

2019

International Journal of Qualitative Studies on Health and Well

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Purpose: Children’s perspectives in the context of health service delivery have historically been seen as unimportant. They have been viewed as unintelligent, unable to effectively share or tell of their experiences or fully participate in their care, potentially resulting in a sense of dehumanisation.Method: The present paper illustrates children’s experiences when undergoing medical procedures, using application of the eight dimensions of humanised care theoretical framework.Results: Findings from six published papers were reflectively interrogated to identify implicit findings related to the dimensions of humanised care. These implicit findings show ways of caring for childrenwhichcan lead to enhanced human sensitivity in care or conversely where the dimensions of being human are obscured to greater or lesser degrees and can result in forms of dehumanisation.Conclusions: Inadvertent dehumanising features of practice can be mediated by encouraging the inclusion of children’s own lifeworld perspective and make room for their voices in both care and research. In this way the present well documented power imbalance could be addressed. Adding the value of the theoretical framework highlights areas of need for young children to be cared for as human beings.

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“…Power et al, Salmela et al and Karlsson et al have showed that when children have to undergo an invasive medical procedure, it is important for children to have their parents present to help them to counteract their worries and fears. [48][49][50] Their active involvement can give support to their children and can enhance their feelings of usefulness. 51 According to these findings from the present study, we advocate that parents should be given appropriate opportunities to be present, appropriate information concerning their child's procedural pain and the use of non-pharmacological interventions for their children's pain relief.…”

Section: Open Accessmentioning

confidence: 99%

Perceptions of parents and paediatricians on pain induced by bone marrow aspiration and lumbar puncture among children with acute leukaemia: a qualitative study in China

Wang

Liu

et al. 2017

BMJ Open

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ObjectiveTo obtain in-depth insight into the perceptions of parents and paediatricians in China regarding current procedural pain management on bone marrow aspirations and lumbar punctures in paediatric haemato-oncology department.Design, setting and participantsThis qualitative study was conducted in a 4500-bed university hospital in northwest China. To collect data, in-depth semistructured interviews were conducted with parents of children with acute leukaemia (n=12) and haemato-oncology paediatricians (n=11) using purposive sampling. Interviews were audiotaped and transcribed and subjected to thematic analysis.ResultsThe suffering of procedural pain among paediatric patients was not adequately recognised and properly treated at the paediatric haemato-oncology department. The current paediatric procedural pain management is inadequate for paediatric patients. Crucial factors were identified including lack of awareness about the damage of uncontrolled pain in children, parents’ low supportive ability, the limited capacity to provide general analgesia by anaesthetists, inadequate knowledge in the usage of analgesia and sedation and lack of efficient analgesic for children’s procedural pain. The participants strongly expected optimal interventions to improve paediatric procedural pain management.ConclusionsThe result suggested a perceived and actual poor management of paediatric procedural pain in haemato-oncology department in northwest China. A relevant pain management education programme for paediatricians and parents as well as an effective pain medication are urgently needed in northwest China.Trial registrationChinese Clinical Trial Registry. Identifier: ChiCTR-INR-16007989.

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Experiencing Support During Needle-Related Medical Procedures: A Hermeneutic Study With Young Children (3–7 Years)

Cited by 30 publications

References 51 publications

Struggling in the Dark to Help My Child: Parents' Experience in Caring for a Young Child with Juvenile Idiopathic Arthritis

Struggling in the Dark to Help My Child: Parents' Experience in Caring for a Young Child with Juvenile Idiopathic Arthritis

Medical procedures in children using a conceptual framework that keeps a focus on human dimensions of care – a discussion paper

Perceptions of parents and paediatricians on pain induced by bone marrow aspiration and lumbar puncture among children with acute leukaemia: a qualitative study in China

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