Experiences of Caregivers as Clients of a Patient Navigation Program for Children and Youth with Complex Care Needs: A Qualitative Descriptive Study

Luke, Alison; Luck, Kerrie E.; Doucet, Shelley

doi:10.5334/ijic.5451

Cited by 22 publications

(25 citation statements)

References 20 publications

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“…This project is part of a larger program evaluation being undertaken to study the impact of NaviCare. Please see Luke et al (2020) for additional details on the larger program evaluation.…”

Section: Objectivementioning

confidence: 99%

“…While the first patient navigation centres focused on cancer patients (Freeman & Rodriguez, 2011), it is becoming evident that patient navigation programs may be useful for other medically underserved populations, such as those who live in rural areas, due to the limited resources in these communities (Paskett et al, 2011;Weinhold & Gurtner, 2014). A recent environmental scan identified 19 pediatric patient navigator models in Canada (Luke et al, 2020). Patient navigation is an area of research that is increasingly shown to improve outcomes for children with complex care needs (American Academy of Pediatrics Council on Children with Disabilities, 2005).…”

Section: Introductionmentioning

confidence: 99%

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A Qualitative Case Study Exploring the Experiences of Caregivers Using a Patient Navigation Centre for Children with Complex Care Needs

Knight

Luke

Doucet

2021

hpj

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“…This project is part of a larger program evaluation being undertaken to study the impact of NaviCare. Please see Luke et al (2020) for additional details on the larger program evaluation.…”

Section: Objectivementioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

A Qualitative Case Study Exploring the Experiences of Caregivers Using a Patient Navigation Centre for Children with Complex Care Needs

Knight

Luke

Doucet

2021

hpj

Self Cite

View full text Add to dashboard Cite

“…A qualitative Canadian study explored caregivers’ experiences caring for a child or youth with complex care needs, and their experiences and satisfaction as clients of a patient navigation center. As participants reported overwhelming organizational tasks, employed navigators supported the caregivers in bureaucratic matters and thus, among other things, improved the quality of life of the caring parents [ 29 ]. A study from the USA explored oncology navigators’ perceptions of cancer-related financial burden and financial assistance resources via an online survey.…”

Section: Discussionmentioning

confidence: 99%

Patient Navigation—Who Needs What? Awareness of Patient Navigators and Ranking of Their Tasks in the General Population in Germany

Schnitzer

Kohl

Fügemann

et al. 2022

IJERPH

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The aim of the present study was to investigate the awareness of patient navigation (PN) in the general population in Germany and to assess which navigator tasks are considered most important. The analysis drew on a 2019 nationwide telephone survey of 6110 adults. We compared rankings of emotional support, administrative support and information among respondents with and without experience of patient navigation. One-fifth of the sample reported having heard of PNs; 13% of this group already had experience with PN. In both groups, the majority (>47%) considered assistance with applications to be most important. This was particularly the case among younger adults and those with a chronic disease. Within the inexperienced group, higher educated people had higher odds of ranking provision of information as most important for them, whereas women and those without a partner had higher odds of ranking emotional support as the most important task. This study shows that the majority of people predominantly expect PN services to offer administrative support, irrespective of their socioeconomic and health status. Whether these expectations are met by the diverse existing PN programs, which often have a strong focus on other tasks (e.g., increasing health literacy), has yet to be evaluated.

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“…For example, poorly developed integrated care services have been identified as a barrier to comprehensive care delivery for children with complex needs ( 3 ). An integrated care approach was identified as necessary to support a person-centered approach to the care of children with complex care needs ( 4 , 5 ), while cross-sector, integrated and assertive care delivery was identified as necessary for safeguarding the well-being and development of children with complex care needs ( 6 ). Principles of integrated care were also frequently mentioned in the literature reviewed ( 7 – 11 ).…”

Section: Discussionmentioning

confidence: 99%

Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics

et al. 2021

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There is wide variation in terminology used to refer to children living with complex needs, across clinical, research and policy settings. It is important to seek to reconcile this variation to support the effective development of programmes of care for this group of children and their families. The European Academy of Pediatrics (EAP) established a multidisciplinary Working Group on Complex Care and the initial work of this group examined how complex care is defined in the literature. A scoping review was conducted which yielded 87 papers with multiple terms found that refer to children living with complex needs. We found that elements of integrated care, an essential component of care delivery to these children, were repeatedly referred to, though it was never specifically incorporated into a term to describe complex care needs. This is essential for practice and policy, to continuously assert the need for integrated care where a complex care need exists. We propose the use of the term Complex and Integrated Care Needs as a suitable term to refer to children with varying levels of complexity who require continuity of care across a variety of health and social care settings.

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Experiences of Caregivers as Clients of a Patient Navigation Program for Children and Youth with Complex Care Needs: A Qualitative Descriptive Study

Cited by 22 publications

References 20 publications

A Qualitative Case Study Exploring the Experiences of Caregivers Using a Patient Navigation Centre for Children with Complex Care Needs

A Qualitative Case Study Exploring the Experiences of Caregivers Using a Patient Navigation Centre for Children with Complex Care Needs

Patient Navigation—Who Needs What? Awareness of Patient Navigators and Ranking of Their Tasks in the General Population in Germany

Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics

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