Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics

Brenner, Maria; Greene, Jo; Doyle, Carmel; Koletzko, Berthold; Torso, Stefano del; Bambir, Ivan; Guchtenaere, Ann De; Polychronakis, Theofilos; Reali, Laura; Hadjipanayis, Adamos

doi:10.3389/fped.2021.758415

Cited by 8 publications

(6 citation statements)

References 20 publications

(17 reference statements)

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“…In 2021 the EAP established a multidisciplinary Working Group to reconcile the wide variation in terminology used to refer to children living with complex needs across clinical, research, and policy settings and to support the effective development of programs of care for this group of children and their families. A position paper examining the current definitions of complex care existing in the literature concluded the phrase “complex and integrated care” to be the most adequate ( 10 ). Currently a survey is ongoing to support service development in complex care.…”

Section: Complex Integrated Care Task Groupmentioning

confidence: 99%

Is there a “European Paediatrics”?

Dornbusch,

Kurz,

del Torso

et al. 2024

Front. Pediatr.

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The journey from birth to adulthood is paved with threats to health and wellbeing, rendering this age group with its invaluable future potential particularly vulnerable. Therefore, children and adolescents deserve medical attention of the highest professional level based on solid, well founded training guidelines, the availability of a well-coordinated platform for the continuous acquisition of knowledge, exchange of ideas, and collaboration on research and clinical projects, and comprehensive continuing education. For the European region these crucial specifications are met to varying degrees by three major paediatric organisations: the European Academy of Paediatrics (EAP) with the European Board of Paediatrics (EBP) as the paediatric section of the European Union of Medical Specialists (UEMS PS), the European Paediatric Association (EPA/UNEPSA) and the European Confederation of Primary Care Paediatricians (ECPCP). A major goal of this paper is to call for the closest possible collaboration between these organizations in advocating for the health and rights of European children and adolescents and in effectively fostering the paediatric profession with a strong, unified voice.

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Section: Complex Integrated Care Task Groupmentioning

confidence: 99%

Is there a “European Paediatrics”?

Dornbusch,

Kurz,

del Torso

et al. 2024

Front. Pediatr.

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“…Integrated care is a term that has been frequently linked to children with CCNs and is increasingly viewed as a critical component of their care delivery [2,7]. There are a range of different models and frameworks that have been developed to support the integration of care; however, many are not targeted specifically towards the needs of children with CCNs.…”

Section: Introductionmentioning

confidence: 99%

Integrated care for children living with complex care needs: an evolutionary concept analysis

et al. 2023

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Children with complex care needs (CCNs) are in need of improved access to healthcare services, communication, and support from healthcare professionals to ensure high-quality care is delivered to meet their needs. Integrated care is viewed as a key component of care delivery for children with CCNs, as it promotes the integration of healthcare systems to provide family and child-centred care across the entire health spectrum. There are many definitions and frameworks that support integrated care, but there is a lack of conceptual clarity around the term. Furthermore, it is often unclear how integrated care can be delivered to children with CCNs, therefore reinforcing the need for further clarification on how to define integrated care. An evolutionary concept analysis was conducted to clarify how integrated care for children with CCNs is defined within current literature. We found that integrated care for children with CCNs refers to highly specialised individualised care within or across services, that is co-produced by interdisciplinary teams, families, and children, supported by digital health technologies. Conclusion: Given the variation in terms of study design, outcomes, and patient populations this paper highlights the need for further research into methods to measure integrated care. What is Known: • Children with complex care needs require long-term care, and are in need of improved services, communication, and information from healthcare professionals to provide them with the ongoing support they need to manage their condition. • Integrated care is a key component in healthcare delivery for children with complex care needs as it has the potential to improve access to family-centred care across the entire health spectrum. What is New: • Integrated care for children with CCNs refers to highly specialised individualised care within or across services, that is co-produced by interdisciplinary teams, families, and children, supported by digital health technologies. • There is a need for the development of measurement tools to effectively assess integrated care within practice.

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“…Nursing children with complex healthcare needs in the community is a growing field in Ireland and, in a wider context, globally. The definition of complex healthcare needs varies throughout the world with the use of terminology such as life-limiting conditions, medically dependent children, and children with complex care needs [1]. Researchers have undertaken systemic concept analysis of the multidisciplinary language of children with complex care needs.…”

Section: Introductionmentioning

confidence: 99%

Paediatric Homecare Risk Management: An Application of Functional Resonance Analysis Method (FRAM)

Hoy,

Fallon,

Kelly

2023

Safety

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Paediatric homecare is an advancing field of healthcare, bringing care direct to patients in their own homes. Risk management is an integral component of homecare services, including incident and risk assessment management. The objective of the study was to investigate risk management in homecare focusing on two aspects: incident reporting and risk assessments. A Grounded Theory approach was used to gather key functions of these aspects; these were then mapped using the Functional Resonance Analysis method (FRAM). Nineteen nurses working in paediatric homecare services were interviewed for the study. The interviews were semi-structured and focused on risk, quality, complaints, audit, care, and management. The interview data were transcribed and coded using Nvivo; the data were then converted into functions for utilization in the FRAM tool. The FRAM detailed the process of incident reporting and risk assessment management of the actual work carried out as viewed by the participants of the study. The information was then analysed and contrasted with the organizational policy to gain an understanding of the systems of incident reporting and risk assessments, which then led to the development of a refined process that could have less variability in function. Consequently, changes to policy and training in risk management were recommended to enhance the systems.

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Increasing the Focus on Children's Complex and Integrated Care Needs: A Position Paper of the European Academy of Pediatrics

Cited by 8 publications

References 20 publications

Is there a “European Paediatrics”?

Is there a “European Paediatrics”?

Integrated care for children living with complex care needs: an evolutionary concept analysis

Paediatric Homecare Risk Management: An Application of Functional Resonance Analysis Method (FRAM)

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