Experiences and Resistance Strategies Utilized by Fathers of Children with Cancer

Nicholas, David; Gearing, Robin E.; McNeill, Ted; Fung, Karen; Lucchetta, Sonia; Selkirk, Enid K.

doi:10.1080/00981380802591734

Cited by 48 publications

(148 citation statements)

References 22 publications

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“…The studies used phenomenology (N=6), grounded theory (N=3), mixed methods (N=2) and qualitative description (N=5). Four of them (21,29,31,36) did not specify the theoretical framework adopted and were named as generic qualitative (37) . Data were collected through interviews (N=13), focus group (N=1) or the combination of both (N=2).…”

Section: Resultsmentioning

confidence: 99%

“…The final sample consisted of 16 studies (21)(22)(23)(24)(25)(26)(27)(28)(29)(30)(31)(32)(33)(34)(35)(36) . As shown in Chart 1, the articles were published between 2001 and 2013 in six different countries: Australia (N=4), the United States (N=4), Canada (N=4), Brazil (N=2), China (N=1) and Ireland (N=1).…”

Section: Resultsmentioning

confidence: 99%

“…Was the recruitment strategy appropriate to the aims of the research? 2 (27)(28)(29)(30)(31)(32) 10 (21,23,(25)(26)(29)(30)(31)(32)(33)(34) 4 (24,(27)(28)36) 5. Was the data collected in a way that addressed the research issue?…”

Section: Wills 2009mentioning

confidence: 99%

“…Was the data collected in a way that addressed the research issue? 10 (22,(25)(26)29,(31)(32)(33)(34)(35)(36) 6 (21,(24)(25)(26)(27)34) 0 6. Has the relationship between researcher and participants been adequately considered?…”

Section: Wills 2009mentioning

confidence: 99%

“…Was the research design appropriate to address the aims of the research? 12 (23)(24)(25)(26)(28)(29)(30)(31)(33)(34)(35) 4 (22,27,32,36) 0 4. Was the recruitment strategy appropriate to the aims of the research?…”

Section: Wills 2009mentioning

confidence: 99%

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Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis

et al. 2018

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Approval: 03-18-2017 ABSTRACT Objective: To synthesize and interpret fi ndings and conclusions of qualitative research addressing the experience of the father in the care of the child with cancer. Method: Meta-synthesis of 16 qualitative studies from six databases, analyzed through taxonomic analysis. Results: Child and adolescent cancer have several repercussions on the daily life of the father, especially related to the stigma around the disease, the fear of the unknown and the social and family role. Faced with the illness and the need to care for the child, the father seeks to recover normality in the family and transitions between hegemonic masculine behaviors and practices culturally recognized as female. Final Considerations: The complex experience of the father, infl uenced by masculinities, was evidenced. The limitations regard the restricted understanding of the contextual specifi cities of the experiences, due to the limited characteristics of the parents and children described in the studies. The knowledge produced is useful to promote involvement of fathers in the care of the child, as well as to strengthen and assist him in this task. Descriptors: Fathers; Pediatric Nursing; Qualitative Research; Cancer; Family Nursing. RESUMO Objetivo: Sintetizar e interpretar resultados e conclusões de pesquisas qualitativas sobre a experiência do pai no cuidado do fi lho com câncer. Método: Metassíntese de 16 estudos qualitativos capturados em seis bases de dados e analisados por meio da análise taxonômica. Resultados: O câncer infantojuvenil impõe inúmeras repercussões ao cotidiano do pai, sobretudo relacionadas ao estigma da doença, ao medo do desconhecido e ao papel social e familiar. Diante da doença e da necessidade de cuidado do fi lho, o pai busca resgatar a normalidade na família e transita entre comportamentos hegemonicamente masculinizantes e práticas reconhecidas culturalmente como femininas. Considerações fi nais: Evidenciou-se a complexa experiência paterna infl uenciada pelas masculinidades. As limitações referem-se à restrita compreensão das especifi cidades contextuais das experiências, pelas escassas características dos pais e fi lhos descritas nos estudos. O conhecimento produzido revela-se útil para promover o engajamento paterno no cuidado do fi lho, bem como fortalecê-lo e auxiliá-lo nesta tarefa. Descritores: Pai; Enfermagem Pediátrica; Pesquisa Qualitativa; Neoplasia; Enfermagem Familiar. RESUMENObjetivo: Sintetizar e interpretar resultados y conclusiones de investigaciones cualitativas sobre la experiencia del padre en el cuidado del hijo con cáncer. Método: Metasíntesis de 16 estudios cualitativos recogidos en seis bases de datos y examinados mediante análisis taxonómica. Resultados: El cáncer infantojuvenil repercute considerablemente en la vida cotidiana del padre, sobre todo con relación al estigma de la enfermedad, al miedo a lo desconocido y al papel social y familiar. Ante la enfermedad y la necesidad de Care provided by the father to the child with cancer under the infl uence of m...

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Wills 2009mentioning

confidence: 99%

Section: Wills 2009mentioning

confidence: 99%

Section: Wills 2009mentioning

confidence: 99%

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Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis

et al. 2018

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Socioeconomic consequences of parenting a child with cancer for fathers and mothers in Sweden: A population‐based difference‐in‐difference study

Öhman

Woodford

Essén

2020

Intl Journal of Cancer

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Parents are the primary source of support for children with cancer. To inform clinical practice and health policies, the socioeconomic consequences of childhood cancer for fathers and mothers in Sweden were investigated. A total of 3865 mothers and 3865 fathers of 3865 children diagnosed with cancer in Sweden when 0 to 18 years were followed for 5 years before and 10 years after diagnosis. Socioeconomic consequences of the cancer diagnosis on earnings and employment, and mental health (number of inpatient diagnoses), were investigated exploiting variation in timing of cancer diagnosis. Data were obtained from the Swedish Childhood Cancer Registry, Intergenerational Registry and Inpatient Registry. Childhood cancer has a negative short‐term effect on fathers' and mothers' earnings; a negative long‐term effect on fathers' earnings; a positive long‐term effect on mothers' earnings; negative short‐ and long‐term effects on fathers' and mothers' employment; and no effect on the number of inpatient diagnosis of mental and behavioral disorders for fathers or mothers. Taken together, findings show that in Sweden childhood cancer has negative effects on parents' employment, a more negative impact on fathers' than mothers' earnings and no effect on inpatient diagnosis of mental and behavioral disorders. Future research should explore mechanisms possibly explaining, for example, mental health, social support and priorities regarding work and private life potentially resulting in changes from full‐time to part‐time work or vice versa. The novel findings should change clinical practice and help inform health policies for parents of children with cancer in Sweden and countries with a similar health and welfare system.

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Psychological trajectories of mothers and fathers following their child's diagnosis of a life‐threatening illness or injury: A longitudinal investigation

et al. 2019

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Objective Explore the mental health trajectories of parents following their child's life‐threatening illness/injury. Methods Participants were 217 parents (mean age: 34.9–40.0; 66 fathers) of 165 children who presented to a tertiary hospital with a life‐threatening illness/injury. Parents completed questionnaires about their mental health and psychosocial stressors within 4 weeks of the child's illness/injury (T1), and 4 months (T2), 7 months (T3), and 19 months (T4) postdiagnosis. Results For both mothers and fathers, mental health symptoms were elevated at diagnosis declining to normal levels by T3, with a pattern of increase at T4. Fathers demonstrated a faster decline in symptoms between T1 and T2, and fathers, but not mothers, experienced a relapse in depressive symptoms at T4. Fathers reported higher rates of work changes. Conclusions These findings have important implications for the design and timing of parental interventions to support families of children with life‐threatening disease/injury.

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Experiences and Resistance Strategies Utilized by Fathers of Children with Cancer

Cited by 48 publications

References 22 publications

Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis

Care provided by the father to the child with cancer under the influence of masculinities: qualitative meta-synthesis

Socioeconomic consequences of parenting a child with cancer for fathers and mothers in Sweden: A population‐based difference‐in‐difference study

Psychological trajectories of mothers and fathers following their child's diagnosis of a life‐threatening illness or injury: A longitudinal investigation

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