Expanding the concept of participatory rights

Secker, Emilie

doi:10.1080/13642980802533190

Cited by 9 publications

(5 citation statements)

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“…From the perspective of human rights, participation highlights inclusion, non-discrimination and equality, and draws attention to participation as a form of empowerment, self-worth and autonomy ( e.g. Secker, 2009). From the point of view of people living with dementia, this requires shifting the focus from deficits to repositioning them as active citizens within their communities (Birt et al , 2017; Nedlund et al , 2019).…”

Section: Autonomy As a Relational Phenomenonmentioning

confidence: 99%

Experiences of influencing one's own life when living with working-age dementia

et al. 2021

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Having opportunities to make decisions and choices regarding one's life is crucial when living with dementia. This inter-disciplinary study draws on the concept of relational autonomy to explore how working-age people living dementia seek to influence their lives, and what makes it easier or more difficult for them in their everyday life. The data consist of three focus group discussions conducted with 12 retired adults who developed dementia while still employed. The results illuminate various resources that enable a person to (a) handle their difficulties at work and related consequences with dignity, (b) manage everyday tasks and live a fulfilling life, and (c) fight the stigma associated with (working-age) dementia. Challenges related to these aspects reported by the participants reveal gaps and obstacles that impede the full realisation of the rights of people living with early onset dementia. This research highlights the need for workplace education for different stakeholders, equal and ongoing access to guidance and counselling for younger people who live with dementia, and an effort by society as a whole to eradicate stigma.

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Section: Autonomy As a Relational Phenomenonmentioning

confidence: 99%

Experiences of influencing one's own life when living with working-age dementia

et al. 2021

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“…However, from a human rights perspective, Secker argues that participation goes much further, taking into account both its content and purpose and requiring 'active, effective and meaningful participation, oriented to inclusion and empowerment'. 49 The involvement of civil society in negotiating the terms of the Good Friday Agreement led some to argue that the right of participation, not in terms of traditional representative politics or even parallel and consultative bodies such as the Civic Forum which was established as part of the agreement, 50 but in terms of empowerment and ownership of its future, was mandated in the agreement. 51 In post-agreement Northern Ireland, participation, rather than representation, thus emerged as one of the key ways in which human rights advocates sought to create solidarity across communities.…”

Section: Participation and Solidaritymentioning

confidence: 98%

Ethno-nationalist conflict, participation and human rights-based solidarity in Northern Ireland

Lamb

2013

The International Journal of Human Rights

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This article discusses the potential for human rights principles and practices to provide a foundation for building cross-community solidarity between the 'two communities' of Northern Ireland through an analysis of two case studies. The article draws on ethnographic and interview data collected in Belfast between 2005 and 2009. It begins with a theoretical examination of the relationship between two important concepts in the study of ethno-nationalist conflict and reconciliation -loyalty and solidarity. It then examines ways in which participation in human rights activities both recognises and challenges particularistic loyalties in divided communities, providing a foundation for an emergent solidarity between local communities. Finally the article proposes a theoretical model of 'thick' and 'thin' solidarity as a way of understanding these processes in the context of the ongoing Northern Ireland peace process.

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“…The second way in which human rights relates to collaboration involves the charge to include clients in the process. Within the international human rights community, this participation has been conceptualized as a human right (Bessell & Gal, 2009;Secker, 2009). Human rights documents explicitly promote the right to participate in decision making at both societal and personal levels.…”

Section: Collaborationmentioning

confidence: 99%