Existential Anxiety and Growth

Woodgate, Roberta L.; West, Christina H.; Tailor, Ketan

doi:10.1097/ncc.0b013e31829ded29

Cited by 47 publications

(72 citation statements)

References 12 publications

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“…We did not find any other association between the characteristics of the drawings and the Brief IPQ. This is in contrast to earlier studies, which found more associations between drawings and illness perceptions [ 16 , 17 , 19 , 20 ]. One reason for this discrepancy may be that the participants were asked to draw the blood cells of “someone” with the blood disorder, whereas most other drawings studies have asked participants to draw themselves.…”

Section: Discussioncontrasting

confidence: 99%

“…Using this method, people are asked to draw a picture of their disease, which is later assessed by identifying salient facets in those drawings [ 14 , 15 ]. Drawing overcome the limitations of questionnaires (which measure only predefined aspects of illness representations) by assessing the perceptions individuals have of their disease in a more direct and uncensored way [ 14 , 16 – 18 ] leading to a deeper understanding [ 19 , 20 ]. Earlier studies have used drawings to study perceptions of people with Cushing’s syndrome [ 21 ], myocardial infarction [ 22 , 23 ], heart failure [ 24 ], headache [ 25 ], melanoma [ 15 ], vestibular schwannoma [ 26 ], and systemic lupus erythematosus [ 18 , 27 ].…”

Section: Introductionmentioning

confidence: 99%

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Drawings of Blood Cells Reveal People’s Perception of Their Blood Disorder: A Pilot Study

et al. 2016

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ContextSickle cell disease (SCD) and thalassemia are rare but chronic blood disorders. Recent literature showed impaired quality of life (QOL) in people with these blood disorders. Assessing one of the determinants of QOL (i.e. illness perceptions) therefore, is an important next research area.ObjectiveWe aimed to explore illness perceptions of people with a blood disorder with drawings in addition to the Brief Illness Perception Questionnaire (Brief IPQ). Drawings are a novel method to assess illness perceptions and the free-range answers drawings offer can add additional insight into how people perceive their illness.MethodWe conducted a cross-sectional study including 17 participants with a blood disorder. Participants’ illness perceptions were assessed by the Brief IPQ and drawings. Brief IPQ scores were compared with reference groups from the literature (i.e. people with asthma or lupus erythematosus).ResultsParticipants with SCD or thalassemia perceived their blood disorder as being more chronic and reported more severe symptoms than people with either asthma or lupus erythematosus. In the drawings of these participants with a blood disorder, a greater number of blood cells drawn was negatively correlated with perceived personal control (P<0.05), indicating that a greater quantity in the drawing is associated with more negative or distressing beliefs.ConclusionParticipants with a blood disorder perceive their disease as fairly threatening compared with people with other chronic illnesses. Drawings can add additional insight into how people perceive their illness by offering free-range answers.

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Section: Discussioncontrasting

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Drawings of Blood Cells Reveal People’s Perception of Their Blood Disorder: A Pilot Study

et al. 2016

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“…Most of the studies (n=58; 71.6%) involve cancer patients; of these, 46 studies provided details on types of cancer, with treatment status reported in all studies (Table 2). 54,[59][60][61][62][63][64][65] The process surrounding data collection with young people has rarely been explained in detail.…”

Section: Study Selection Processmentioning

confidence: 99%

Symptoms and Concerns Among Children and Young People with Life-Limiting and Life-Threatening Conditions: A Systematic Review Highlighting Meaningful Health Outcomes

Namisango

Bristowe

Allsop

et al. 2018

Patient

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Background: The design and provision of quality paediatric palliative care should prioritize issues that matter to children and their families, for optimal outcomes. Aim: This review aims to identify symptoms concerns and outcomes, that matter to children and young development of a relevant framework of health outcomes. Study Design: This is a systematic literature review across multiple databases for identification of eligible primary evidence. Data sources: Data sources such as PsychINFO, Medline, EMBASE, CINAHL, OpenGrey, and Science Direct Journals have been searched from 1 August 2016 to 30th July 2017. The study also incorporates consultations with experts in the field, citation searchers via Scopus, and a hand search for reference lists of included studies. Results: Out of the 13,567 articles that have been evaluated, 81 studies were included. Of these, (n=68) are from high-income countries and (n=58) are cancer patients studies. A total of 3,236 young people, 2,103 family carers, 108 families, and 901 healthcare providers are included in the studies. Young people have not contributed to data in 30% of studies. Themes on priority concerns are presented by domain and health outcome; for example, 1) Physical (n=62 studies); e.g. physical symptoms, 2) psychological (n=65); e.g. worry 3) psycho-social (n=31); e.g. relationships, 4) existential Conclusion: Burdensome symptoms and concerns affect young people with malignant and nonmalignant conditions and occur across the disease trajectory, so paediatric palliative care should not be limited to the end of life phase. A child-family centred framework of health outcomes, spanning the patient, family, and quality of service levels is proposed to inform service development. Future

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“…30,39 Capturing experiences adequately and accurately is an important step in validating health and illness models, including chronic pain models in children and youth. 40,41 Woodgate and colleagues have provided support for the effectiveness of qualitative, arts-based methods in understanding health and illness experiences in young people by using drawing 36,42 and photovoice. 36,37,[43][44][45][46][47][48][49] The aim of this article is to highlight the ways in which pain is a central experience for young people living with an anxiety disorder.…”

Section: Introductionmentioning

confidence: 99%

The lived experience of anxiety and the many facets of pain: A qualitative, arts-based approach

Woodgate

Tennent

Barriage

et al. 2020

Canadian Journal of Pain

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Background: Findings reported in this article emerged from the study titled "Youth's Voices: Their Lives and Experiences of Living with an Anxiety Disorder." Though the initial focus of this study was not on the pain experiences of youth living with an anxiety disorder, it became apparent from the very first interviews that pain and suffering was key in the youth lived experience, permeating their everyday lives and impeding their participation and functioning in the world. Aims: The aim of this article is to highlight the ways in which pain is a central experience for young people living with an anxiety disorder. Methods: The study was approached from the qualitative research design of hermeneutic phenomenology. Fifty-eight young people who were living with anxiety disorders and their parents participated in the study. Youth took part in multiple qualitative open-ended interviews and the participatory arts-based method of photovoice. Themes were developed using van Manen's method of data analysis. Results: The overall theme emerged as "anxiety is very much about pain." The four subthemes are (1) embodied experience of anxiety: physical pain; (2) a prominent symptom of anxiety: mentalemotional pain; (3) difficult interpersonal relationships: social pain; and (4) articulating their pain. Conclusions: Use of qualitative, arts-based methodologies provided the opportunity and space for youth with anxiety to articulate their multifaceted experience with pain in their own words. This work reinforces the need for use of qualitative approaches to understanding pain experiences in young people. RÉSUMÉ Contexte: Les conclusions présentées dans ce document sont issues de l'étude intitulée « La voix des jeunes : Leurs vies et leurs expériences de la vie avec un trouble anxieux ». Bien que l'objectif initial de cette étude n'était pas de s'intéresser aux expériences de douleur des jeunes vivant avec un trouble anxieux, il est apparu dès les premiers entretiens que la douleur et la souffrance étaient des éléments clés de l'expérience vécue par les jeunes, qui imprégnaient leur vie quotidienne et entravaient leur participation et leur fonctionnement dans le monde. Objectifs: Le présent document vise à mettre en lumière les façons dont la douleur constitue une expérience de premier plan pour les jeunes vivant avec un trouble anxieux. Méthodes: L'étude a été abordée à partir de la conception de la recherche qualitative de la phénoménologie herméneutique. Cinquante-huit jeunes vivant avec des troubles d'anxiété et leurs parents ont participé à l'étude. Les jeunes ont pris part à de multiples entretiens qualitatifs ouverts et à la méthode participative Photovoice, fondée sur les arts. Les thèmes ont été déterminés en utilisant le processus d'analyse des données inspiré de van Manen. Résultats: Le thème général qui s'est dégagé est le suivant : « L'anxiété est essentiellement liée à la douleur ». Les quatre sous-thèmes sont les suivants : (1) L'expérience de l'angoisse incarnée : La douleur physique ; (2) Un symptôme important de l'...

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Existential Anxiety and Growth

Cited by 47 publications

References 12 publications

Drawings of Blood Cells Reveal People’s Perception of Their Blood Disorder: A Pilot Study

Drawings of Blood Cells Reveal People’s Perception of Their Blood Disorder: A Pilot Study

Symptoms and Concerns Among Children and Young People with Life-Limiting and Life-Threatening Conditions: A Systematic Review Highlighting Meaningful Health Outcomes

The lived experience of anxiety and the many facets of pain: A qualitative, arts-based approach

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