Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review

Knisley, Lisa; Linton, Janice; Driedger, S. Michelle; Hartling, Lisa; Sun, Yuting; Scott, Shannon D.

doi:10.1136/bmjopen-2022-069697

Cited by 3 publications

(1 citation statement)

References 75 publications

(419 reference statements)

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“…This confirms that, even though customary law norms have been written down, the interpretation, concretization and application of customary law norms continues continuously, thus making customary law norms a living law in the MHA community. 18 Based on the three manifestations of customary law norms above, it can be seen that apart from customary rights, MHA also has special characteristics that need to be facilitated, namely customary law norms. In the view of Maria S.W.…”

Section: The Basic Principles Of Customary Law Communities and The Ur...mentioning

confidence: 99%

Ius Constituendum Formulating Basic Values of Indigenous Peoples in Constitutional Amendments

Buana,

Khalid,

Ma’ruf

2023

SASI

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Introduction: Regulation of Customary Law Communities in a state constitution is important to guarantee their existence and guarantee their protection. The regulation of Indigenous Law Communities in the constitution is also intended so that the regulations under the constitution can be in line with the constitution in facilitating Indigenous Law Communities.Purposes of the Research: The aim of this research is to formulate the basic principles of MHA which must be regulated in the constitution as well as efforts to amend the constitution to formulate the basic principles of MHA in the constitution.Methods of the Research: Normative legal research using case, concept and legislative approaches.Results of the Research: The basic principles of MHA that need to be formulated in the constitution include various basic values of MHA, such as having customary legal norms, having ulayat rights or traditional rights related to natural resource management, and having traditional apparatus with various characteristics that exist in each MHA. Revision of Article 18B paragraph (2) of the 1945 Constitution of the Republic of Indonesia as an effort to amend the constitution to include the basic principles and values of the MHA can be carried out by including basic values and principles in the MHA which include: the existence of customary legal norms, having customary rights or related traditional rights. With natural resource management, as well as having traditional apparatus with various characteristics that exist in each MHA..

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Section: The Basic Principles Of Customary Law Communities and The Ur...mentioning

confidence: 99%

Ius Constituendum Formulating Basic Values of Indigenous Peoples in Constitutional Amendments

Buana,

Khalid,

Ma’ruf

2023

SASI

View full text Add to dashboard Cite

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Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review

et al. 2023

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ObjectiveMapping literature on Indigenous families’ experiences seeking child health information and identifying barriers and facilitators to information access.DesignScoping review.Data sourcesWe searched Medline, EMBASE, PsycINFO, Scopus and CINAHL for peer-reviewed literature and Google Advanced for grey literature. We screened tables of contents of two Indigenous research journals not consistently indexed in online health databases and used snowball sampling to supplement searches.Eligibility criteriaWe included full-text, English-language articles, published from 2000 to the time of the search in April 2021, based on: participants (Indigenous families), concept (experiences of families seeking health information) and context (child health).Data extraction and synthesisTwo independent reviewers extracted: citation details, study purpose, country of study, publication type, study design, data collection method, Indigenous group, family member participants, home/healthcare setting, child health area, how health information was accessed, and information-seeking barriers and facilitators. Data were examined for patterns and trends, results and implications.ResultsAmong 19 papers (representing 16 research projects) included, nine described family/friends and 19 described healthcare professionals as sources of child health information. Barriers include racism/discrimination during healthcare visits, ineffective communication with healthcare providers and structural barriers (eg, transportation). Facilitators include easy access, improved communication and relationships with healthcare providers, and culturally safe healthcare.ConclusionIndigenous families perceive they do not have access to necessary child health information, which can lead to insensitive, ineffective and unsafe healthcare. A critical gap exists in understanding Indigenous families’ information needs and preferences when making decisions about children’s health.

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We’re here too: child health information-seeking experiences and preferences of Red River Métis families – a qualitative study

Knisley,

Driedger,

Hartling

et al. 2023

Int J Equity Health

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Background Red River Métis families need access to meaningful and appropriate resources when their children are sick. At the invitation of the Manitoba Métis Federation (MMF) to partner in this research, our aim was to understand Red River Métis parents’ experiences and preferences for seeking child health information when their child is acutely ill, to inform the adaptation of existing parent resources. Methods A qualitative descriptive approach underpinned by a participatory paradigm guided this study. Semi-structured interviews were conducted with 19 Red River Métis parents and Elders via Zoom or telephone. An inductive thematic analysis approach was used to explore patterns and themes across the data. Results Analysis generated four themes: (1) We’re here too; (2) We are not all the same; (3) Finding trustworthy information; and (4) Information needs to be widely available. Red River Métis pride was prominent in the results. Parents provided tangible ways to modify existing parent resources, including adding information on how to access Elders, healers and/or traditional medicines and showing different family structures, transport, living situations, Métis names, and incorporating Métis languages. While most parents reported looking for child health information online, they also stressed the need to provide multiple options, including information sheets, recognizing that parents seek information in different contexts. Parents also emphasized the importance of accessible, safe spaces to find child health information, including local schools, community centres, healthcare organizations and the MMF. Conclusion There is a lack of child health information created specifically for Red River Métis families. The development of this information can support their information needs and preferences and the ongoing efforts to revitalize Red River Métis culture and language. Study findings will inform the adaptation and dissemination of existing child health resources to ensure they reflect Red River Métis parents’ information needs and preferences. This research is a critical step in addressing an identified need for Red River Métis families to have culturally relevant and meaningful child health resources, and in the pursuit of equitable care for all children in Canada. Trial Registration N/A.

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Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review

Cited by 3 publications

References 75 publications

Ius Constituendum Formulating Basic Values of Indigenous Peoples in Constitutional Amendments

Ius Constituendum Formulating Basic Values of Indigenous Peoples in Constitutional Amendments

Examining the experiences of Indigenous families seeking health information about caring for sick or injured children: a scoping review

We’re here too: child health information-seeking experiences and preferences of Red River Métis families – a qualitative study

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