Evidence for and cost‐effectiveness of physiotherapy in haemophilia: a Dutch perspective

Kleijn, P. de; Mauser‐Bunschoten, Eveline P.; Fischer, Kathelijn; Smit, Cees; Holtslag, Herman R.; Veenhof, Cindy

doi:10.1111/hae.13076

Cited by 11 publications

(14 citation statements)

References 24 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…According to our clinical experiences and our review of the literature, we believe that physiotherapy is safe for haemophilia patients, and the probability of new haemorrhage induced by physiotherapy is very low in haemophilia patients.…”

Section: Discussionmentioning

confidence: 92%

Survey of non‐physiotherapy department medical staff in China and their understanding of physiotherapy in comprehensive management of haemophilia

Liu

Zhao

et al. 2019

Haemophilia

View full text Add to dashboard Cite

Introduction Physiotherapy plays a very important role in comprehensive care of patients with haemophilia. Due to limited resources and a lack of understanding among medical personnel, physiotherapy has not become a standard component of comprehensive management of haemophilia in China. Aim To investigate the understanding and practice of physiotherapy in the comprehensive management of haemophilia by non‐physiotherapy department medical staff engaged in haemophilia work in China. Methods A specifically designed questionnaire was used to investigate the medical staff who participated in the 10th World Federation of Hemophilia—Hemophilia Conference China held in Xi'an, China, from 14 October to 16 October 2016. Results Among all respondents, 97.2% believed that haemophilia patients needed physiotherapy. However, only 17.5% of the respondents were found to have a very accurate understanding of the timing of physiotherapeutic interventions for haemophilia patients; 83.9% of the respondents worried that physiotherapy would increase the incidence of new haemorrhagic episodes in haemophilia patients, and 11.1% of the respondents never recommended physiotherapy for haemophilia patients. Factors that independently affected the respondents’ knowledge of the timing of physiotherapy in haemophilia patients were their professional rank and participation in continuing education that included haemophilia physiotherapy. One factor that independently affected respondents’ recommendation of physiotherapy to patients was participation in continuing education that included haemophilia physiotherapy. Conclusion Haemophilia continuing education covering physiotherapy should be strengthened for new non‐physiotherapy medical staff in the haemophilia field.

show abstract

Section: Discussionmentioning

confidence: 92%

Survey of non‐physiotherapy department medical staff in China and their understanding of physiotherapy in comprehensive management of haemophilia

Liu

Zhao

et al. 2019

Haemophilia

View full text Add to dashboard Cite

show abstract

“…Evaluation of cost effectiveness is also necessary. 79 Furthermore, we encourage and support the recommendations of Strike and colleagues 36 that there is a need for more well designed randomized clinical studies with larger numbers of participants.…”

Section: Resultsmentioning

confidence: 68%

Recent advances in musculoskeletal physiotherapy for haemophilia

Stephensen

Bladen

McLaughlin

2018

Therapeutic Advances in Hematology

View full text Add to dashboard Cite

Physiotherapy is directed towards the movement needs and potential of individuals, providing treatment and rehabilitation to develop, maintain and restore maximum movement and functional ability throughout the lifespan. Recent systematic reviews and randomized controlled trials have extended evidence for the clinical efficacy of physiotherapy interventions and rehabilitation for people with haemophilia. This narrative review synthesizes recent evidence to discuss; differentiating musculoskeletal bleeding and haemophilic arthropathy, efficacy of physiotherapy and rehabilitation for acute musculoskeletal bleeding and arthropathy, as well as monitoring musculoskeletal health. Whilst robust evidence is emerging, there is a need for more well designed randomized clinical studies with larger numbers and homogeneity of participants and collaboration of all researchers and clinicians to identify a core set of outcome measures that can be used to monitor musculoskeletal health.

show abstract

“…Haemophilic arthropathy has an onset early in life, is progressive, irreversible, and involves multiple peripheral joints, weight bearing as well as non‐weight bearing, leading to marked functional impairments . The role of physiotherapy in haemophilia is described as: general health prevention, rehabilitation following acute musculoskeletal bleeding, maintenance of mobility and function to maximize physical activities and participation in chronic situations as well as preoperative and postoperative rehabilitation . How these roles are implemented is likely to vary depending on the specific health care resources and autonomy of physiotherapists in each country, as well as the haemophilia treatment centre (HTC).…”

Section: Introductionmentioning

confidence: 99%

Scope of practice of haemophilia physiotherapists: A European survey

et al. 2019

View full text Add to dashboard Cite

Introduction European guidelines on the care of haemophilia recommend ready access to a range of services provided by a multidisciplinary team of specialists including physiotherapy. However, the scope of physiotherapy provided is unknown. Methods The Physiotherapists Committee of the European Association for Haemophilia and Allied Disorders (EAHAD) conducted a web‐based survey to quantify the role and scope of practice of physiotherapists involved in haemophilia care. The survey was sent to more than 200 physiotherapists registered on the EAHAD database. Questions concerned their work practices including assessment and treatment activities and level of autonomy. Results Eighty physiotherapists from twenty‐four European countries responded. Considerable heterogeneity exists in roles, responsibilities, and clinical practice of physiotherapists, particularly in access to and type of physiotherapy treatment provided, as well as the skill set and autonomy of physiotherapists to make independent assessment and treatment decisions. Discussion This pan‐European survey establishes a context to support physiotherapy role development and professional identity. Key recommendations include the following: (a) establishing a pan‐European network to support collaboration and education for physiotherapists working in haemophilia, (b) developing a core skills and capability framework to ensure person‐centred approaches are central as well as working in partnership with those with the condition to maximize early recovery, support self‐management and enablement in remaining active and independent, (c) regular training, standardized validation and maintenance of competency for assessment tools, (d) well‐designed randomized clinical studies with larger numbers of participants from multiple sites should be the focus of future research.

show abstract

Evidence for and cost‐effectiveness of physiotherapy in haemophilia: a Dutch perspective

Cited by 11 publications

References 24 publications

Survey of non‐physiotherapy department medical staff in China and their understanding of physiotherapy in comprehensive management of haemophilia

Survey of non‐physiotherapy department medical staff in China and their understanding of physiotherapy in comprehensive management of haemophilia

Recent advances in musculoskeletal physiotherapy for haemophilia

Scope of practice of haemophilia physiotherapists: A European survey

Contact Info

Product

Resources

About