Evaluation of an Innovative Methodology to Recruit Research Participants With Spinal Cord Injury Through Durable Medical Equipment Suppliers

Krahn, Gloria L.; McCarthy, Michael J.; Westwood, Dean; Powers, Laurie E.

doi:10.1016/j.apmr.2007.11.035

Cited by 5 publications

(6 citation statements)

References 28 publications

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“…Ninety-seven percent had at least one type of health care insurance: 55% were enrolled in Medicare, 50% Medicaid, and 31% had private insurance. This sample is highly comparable with samples of persons with SCI recruited through other means [34]. Path analysis…”

Section: Respondentsmentioning

confidence: 83%

“…The sample of adults with SCI used for this study has been demonstrated to be highly comparable in demographic characteristics to other SCI samples [34]. They experienced considerable difficulty with the physical secondary conditions that are common among persons with SCI.…”

Section: Discussionmentioning

confidence: 99%

“…The current recruitment method does not allow for the identification of non-responders, but some information on all potential responders was available. Binomial tests of proportions did not indicate significant differences on the variables of gender, or rural versus urban zip code, and calculation of 95% confidence intervals did not reveal differences in age between responders and potential responders [34].…”

Section: Respondentsmentioning

confidence: 99%

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Self-rated health in persons with spinal cord injury: relationship of secondary conditions, function and health status

2009

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Section: Respondentsmentioning

confidence: 83%

Section: Discussionmentioning

confidence: 99%

Section: Respondentsmentioning

confidence: 99%

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Self-rated health in persons with spinal cord injury: relationship of secondary conditions, function and health status

2009

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“…We also separated articles into those investigating the effects of acute bouts of exercise and others investigating vascular changes from a multiple-session (non-acute) training intervention. As access to patients with low incidence disabilities such as SCI is very limited 77 and the level of participation in physical activity within this population is lower than that of the AB population, 78,79 there is hesitation from researchers to design studies where half the willing and available participants would receive no intervention. Therefore, most research designs investigating SCI and exercise or physical activity involve poorly matched controls if present at all (level 2-5 evidence 46 ).…”

Section: Discussionmentioning

confidence: 99%

A systematic review of exercise as a therapeutic intervention to improve arterial function in persons living with spinal cord injury

Phillips

Coté

2011

Spinal Cord

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Study design: All randomized controlled trials, prospective cohort, case-controlled, pre-post studies and case reports that assessed exercise interventions, which influence arterial structure and function after spinal cord injury (SCI), were included. Objective: To review systematically the evidence for exercise as a therapy to alter arterial function in persons with SCI. Setting: Literature searches were conducted for appropriate articles using several electronic databases (e.g. MEDLINE, EMBASE). Methods: Three independent reviewers evaluated each investigation's quality, using the Physiotherapy Evidence Database Scale for randomized controlled trials and Downs and Black Scale for all other studies. Results were tabulated and levels of evidence assigned. Results: A total of 283 studies were found through the systematic literature search. Upon review of the articles, 27 were included. The articles were separated into those investigating arterial benefits, resulting from either acute bouts of exercise or long-term exercise interventions. The ability of both acute and long-term exercise interventions to improve arterial structure and function in those with SCI was supported by limited to moderate methodological quality. Upper body wheeling is the most commonly examined exercise therapy for improving arterial function. It appears from the evidence that a variety of exercise interventions, including passive exercise, upper body wheeling, functional electrical stimulation and electrically stimulated resistance exercise, can improve arterial function in those living with SCI. Conclusions: Although the quality and volume of evidence is low, the literature supports exercise as a useful intervention technique for improving arterial function in those with SCI.

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“…We partnered with several durable medical equipment (DME) companies to get information about the HP study directly to potential participants. We identified geographic areas closest to the intervention site and then worked with DME companies to target informational mailings to potential participants (see Krahn, McCarthy, Westwood, & Powers, for more information on this type of university‐private partnership recruitment method). The mailings were prepared to promote ease of physical accessibility; specific glue and paper clips were selected to ensure that women with upper‐extremity physical or sensory impairments could open the mailing and sort through the included materials on their own.…”

Section: Principles and Strategies To Promote The Retention Of Wpdsmentioning

confidence: 99%

A Conceptual Model to Promote the Retention of Women with Physical Disabilities in Research

Mood

Hassouneh

McNeff

2015

Public Health Nursing

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Inadequate participant recruitment and retention practices can affect sample representativeness and thus the generalizability of research findings. Retention of research participants has been examined within the literature to some extent; however, there is no consensus on best practice in achieving acceptable results. Furthermore, there is a gap in understanding how to engage and retain women with physical disabilities (WPDs) in research. To address these oversights, we review (1) the significance of retention as a methodologic concern, (2) factors that influence the involvement and retention of participants in research, including individual, population, and health-illness considerations, and (3) particular circumstances impacting the inclusion and retention of WPDs in research. Based on a review of the literature and our experience with the Healing Pathways randomized-controlled trial (RCT), we present a conceptual model to guide culturally-sensitive health research implementation with WPDs, and promote the engagement and retention of this group in RCTs and other forms of interventional health research.

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Evaluation of an Innovative Methodology to Recruit Research Participants With Spinal Cord Injury Through Durable Medical Equipment Suppliers

Cited by 5 publications

References 28 publications

Self-rated health in persons with spinal cord injury: relationship of secondary conditions, function and health status

Self-rated health in persons with spinal cord injury: relationship of secondary conditions, function and health status

A systematic review of exercise as a therapeutic intervention to improve arterial function in persons living with spinal cord injury

A Conceptual Model to Promote the Retention of Women with Physical Disabilities in Research

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