A Conceptual Model to Promote the Retention of Women with Physical Disabilities in Research

Abstract

Inadequate participant recruitment and retention practices can affect sample representativeness and thus the generalizability of research findings. Retention of research participants has been examined within the literature to some extent; however, there is no consensus on best practice in achieving acceptable results. Furthermore, there is a gap in understanding how to engage and retain women with physical disabilities (WPDs) in research. To address these oversights, we review (1) the significance of retention as a methodologic concern, (2) factors that influence the involvement and retention of participants in research, including individual, population, and health-illness considerations, and (3) particular circumstances impacting the inclusion and retention of WPDs in research. Based on a review of the literature and our experience with the Healing Pathways randomized-controlled trial (RCT), we present a conceptual model to guide culturally-sensitive health research implementation with WPDs, and promote the engagement and retention of this group in RCTs and other forms of interventional health research.

How to improve participant compliance and retention in clinical trials：A Scoping Review

“…People with high-income will have higher compliance and retention [9-11,15-18,28,29,31,36,37,40,45,48,49,58,59,61-63,65,71,72,80,81,85,87- Trust for the trial The more trust, the higher compliance and retention [9,11,12,14,[16][17][18][19]27,29,31,32,36,38,41,45,47,48,53,55,58,61,63,64,69,71,73,79,[81][82][83]…”

“…Patients with different races have different compliance and retention. For example, minorities have lower or higher compliance and retention [10,11,13,18,19,25,28,30,31,37,57,71,72,76,81,82,[88][89][90]92,102,109,116,118,120,123,130,136,137,[142][143][144]150,151,[153][154][155][156]162,168,169,171,185,186] 43/182 Habitat G 7 1…”

“…The degree of matching between researcher's language and patient's language influences compliance and retention [9,11,12,49,56,71,73,81,83,100,101,116,130,136,142,162,171] .…”

“…Patient with severe illness have higher compliance and retention than those with less severe illness. But they may also withdraw due to the worsening of their condition [17,24,31,33,36,47,48,56,57,59,64,70,72,78,81,93,97,102,105,109,119,123,134,135,136,140,146,150,151,156,157,161,170,172,173,178,179,182,185] 39/182 Types of diseases…”

How to improve participant compliance in clinical trials: A Scoping Review of process factors

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