Evaluating the benefit of early patient and public involvement for product development and testing with small companies

Hinton, Elanor C.; Fenwick, Cameron; Hall, Martin; Bell, Michael J.; Hamilton-Shield, Julian; Gibson, Andrew K.

doi:10.1111/hex.13731

Cited by 5 publications

(1 citation statement)

References 20 publications

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“…Previous research has used the ‘Cube’ framework to evaluate PI activities [ 34 ]. The benefits of using this framework were that it enabled cross-sectional comparisons between the two workshops and the results were immediately available allowing for activities to be modified in a timely manner.…”

Section: Resultsmentioning

confidence: 99%

An evaluation of a public partnership project between academic institutions and young people with Black African, Asian and Caribbean heritage

Moult,

Knight,

Medina

et al. 2024

Res Involv Engagem

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Background This project (named Reinvent) aimed to promote Public Involvement (PI) in health research. Academics worked with a community group, the Eloquent Praise & Empowerment Dance Company, to develop a community partnership with young people from Black African, Asian and Caribbean heritage communities. The goal of this paper is to evaluate the Reinvent project for key learnings on how to engage and build partnerships with young people from Black African, Asian and Caribbean heritage communities. Methods Reinvent developed a steering group which consisted of five young people, one academic, a Race Equality Ambassador and the Director of Eloquent. The steering group co-produced an agenda for two workshops and the evaluation tools used. The content of the workshops included drama exercises, discussions on physical and mental health, nutrition and school-life, short introductions to the concepts of research and PI, and group work to critique and improve a video currently used to promote PI in health research to young people. The evaluation tools included using the ‘Cube’ evaluation framework, video-blogging and collecting anonymous feedback. Findings The responses to the ‘Cube’ evaluation framework were positive across all four domains (agenda, voice, contribute change) in both workshops. A few of the young people described having a better understanding of the meaning and practice of PI in a video-blog. The anonymous feedback suggested that the workshops had increased young people’s confidence in sharing their thoughts and opinions about health and PI. Conclusion Reinvent has shown that academic institutions and young people from an under-served community can partner to co-design workshops and apply evaluation tools. Working with young people in an environment in which they were comfortable, and by researchers joining in with the activities that the young people enjoyed (such as dance), enabled more informal and open conversations to develop. More work is needed to build upon this project so that young people can feel confident and supported to get involved in PI activities relating to research.

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Section: Resultsmentioning

confidence: 99%

An evaluation of a public partnership project between academic institutions and young people with Black African, Asian and Caribbean heritage

Moult,

Knight,

Medina

et al. 2024

Res Involv Engagem

View full text Add to dashboard Cite

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Evaluating the benefit of early patient and public involvement for product development and testing with small companies

Hinton

Fenwick

Hall³

et al. 2023

Health Expectations

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Introduction: There is a growing understanding of the benefits of patient and public involvement (PPI), and its evaluation, in research. An online version of the CUBE PPI evaluation framework has been developed. We sought to use the CUBE to evaluate the value of early PPI with two small healthcare companies during product development.Methods: Contributors were recruited online and had lived experience of either type 1 diabetes or obesity. Two 1-h sessions were run with a company developing a smartphone application to manage diabetes (DEE-EM): one with young people (YP; n = 5) and one with parents (n = 7). Two 1-h sessions were run with a company developing a weight-loss product, both with adults (n = 7 in each session). Sessions were facilitated by an independent University researcher and attended by company representatives, who presented their product. One facilitator led the evaluation of the session by giving a demonstration of the CUBE and asking simple questions in the YP session.Results: A high proportion of contributors completed the CUBE (80.5% DEE-EM; 93% Oxford Medical Products). Responses were positive to all four CUBE dimensions (in italics). Contributors felt there were diverse ways to contribute to the sessions, and that they had a strong voice to add to the discussion. Balance was achieved regarding whose concerns (public or company) led the agenda, and contributors felt that both companies would make changes based on the discussion.The supportive attitude of both companies resulted in most contributors feeling comfortable participating in PPI sessions with the industry, while recognising the profit-making aspect of their work.Conclusions: PPI with small healthcare companies is both feasible and worthwhile.

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A proposal to embed patient and public involvement within qualitative data collection and analysis phases of a primary care based implementation study

et al. 2023

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Background Patient and public involvement (PPI) is increasingly seen as essential to health service research. There are strong moral and ethical arguments for good quality PPI. Despite the development of guidance aimed at addressing the inconsistent reporting of PPI activities within research, little progress has been made in documenting the steps taken to undertake PPI and how it influences the direction of a study. Without this information, there are minimal opportunities to share learnings across projects and strengthen future PPI practices. The aim of this paper is to present details on the processes and activities planned to integrate PPI into the qualitative research component of a mixed-methods, multi-site study evaluating the implementation of a smart template to promote personalised primary care for patients with multiple long-term conditions. Methods This proposal describes the processes and activities planned to integrate PPI into the development and piloting of qualitative data collection tools (topic guides for both practice staff and patients) and a tailored data analysis package developed for PPI members incorporating broad concepts and specific methods of qualitative data analysis. Discussion Outputs relating to PPI activity may include clear, concise and suitably worded topic guides for qualitative interviews. Piloting of the topic guides via mock interviews will further develop researchers’ skills including sensitisation to the experiences of participants being interviewed. Working with PPI members when analysing the qualitative data aims to provide reciprocal learning opportunities and may contribute to improving the overall rigour of the data analysis. The intent of publishing proposed PPI activities within this project is to inform the future delivery of high quality PPI.

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Evaluating the benefit of early patient and public involvement for product development and testing with small companies

Cited by 5 publications

References 20 publications

An evaluation of a public partnership project between academic institutions and young people with Black African, Asian and Caribbean heritage

An evaluation of a public partnership project between academic institutions and young people with Black African, Asian and Caribbean heritage

Evaluating the benefit of early patient and public involvement for product development and testing with small companies

A proposal to embed patient and public involvement within qualitative data collection and analysis phases of a primary care based implementation study

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