Evaluating Stakeholder-Identified Barriers in Accessing Palliative Care at an NCI-Designated Cancer Center with a Rural Catchment Area

Abstract

This study highlights aspects of integration of PC that can be enhanced from a process, education, and systems perspective with a particular focus on the care coordination of a rural cancer population.

Provider‐Identified Barriers to Cervical Cancer Screening and Perceptions Toward Self‐Collection of Human Papillomavirus in Southwest Virginia

“…These findings are in agreement and build upon results of other studies exploring barriers to cervical cancer screening in Appalachian women. The two most common barriers health care workers identified in this study, education and cost, mirror those reported by prior studies of the patient perspective of barriers to screening (Documét et al., ; Elnicki et al., ; Keim‐Malpass et al, ). However, the study by Documét et al.…”

“…These findings are in agreement and build upon results of other studies exploring barriers to cervical cancer screening in Appalachian women. The two most common barriers health care workers identified in this study, education and cost, mirror those reported by prior studies of the patient perspective of barriers to screening (Docum et et al, 2008;Elnicki et al, 1995;Keim-Malpass et al, 2015). However, the study by Docum et et al (2008) which also addressed provider-identified barriers, reported more organizational and societal level barriers, such as lack of insurance and lack of access to a provider, compared to individual level factors such as education.…”

Palliative care utilization in oncology and hemato-oncology: a systematic review of cognitive barriers and facilitators from the perspective of healthcare professionals, adult patients, and their families

“…Others showed a lack of knowledge of locally available palliative care services among HPs [22,62]. Often physicians (e.g., oncologists), nurses, and other HPs specifically reported a lack of education in palliative care [21,22,40,45,51,64]. Other studies reported a lack of practical training [22,27,34,64] or working experience [23,34] in palliative care.…”

“…In particular, low awareness about palliative care [38,42,51], and lack of knowledge of palliative care and local services [33,46,61,64] were recurrent barriers. Other studies reported uncertainty about palliative care scope [30], difficulty in defining palliative care [48], and lack of patient education [40] or lack of guidelines for patient education [22] as obstacles to palliative care use. Recent studies reported lack of information on hospital and home palliative care services by HPs [61] and difficulty in navigating the home palliative care system among patients [50] as barriers to palliative care use.…”

Is patient information on palliative care good enough? A literature review and audit

“…The lack of clear referral pathways often meant that health professionals were hesitant in making a referral as they were unsure of the steps they should follow (Keim-Malpass et al, 2015). In some cases, palliative care services were simply not available (Charalambous et al, 2014) or the available palliative care service was not sufficient to meet the level of demand therefore only patients in serious need of palliative care support would be referred (Ward et al, 2009, Keim-Malpass et al, 2015.…”