Is patient information on palliative care good enough? A literature review and audit

Taylor, Sally; Wyld, Lucy; Ziegler, Lucy; Bennett, Michael I.

doi:10.7748/cnp.2018.e1506

Cited by 7 publications

(9 citation statements)

References 31 publications

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“…Participants also felt educational resources about specialist palliative care were lacking for patients considering phase I trial enrolment. An audit of palliative care information resources available to cancer patients in 20 hospitals revealed that information leaflets are often not in routine circulation and are often only distributed to patients after a palliative care referral 32. Specialist palliative care information should be made more readily available in outpatient and inpatient settings to raise awareness of the role of palliative care and to address misconceptions.…”

Section: Discussionmentioning

confidence: 99%

Phase I cancer trials: a qualitative study of specialist palliative care

Bellhouse

Galvin

Turner

et al. 2019

BMJ Support Palliat Care

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ObjectiveIn recent years, a simultaneous care model for advanced cancer patients has been recommended meaning that palliative care services are offered throughout their cancer journey. To inform the successful adoption of this model in a phase I trial context, the study aimed to explore patients’ care needs and their perceptions of specialist palliative care.MethodsSemi-structured interviews were conducted with 10 advanced cancer patients referred to the Experimental Cancer Medicine team. Interviews were transcribed verbatim and thematically analysed with a framework approach to data organisation.ResultsDespite reporting considerable physical and psychological impacts from cancer and cancer treatment, participants did not recognise a need for specialist palliative care support. Understanding of the role of specialist palliative care was largely limited to end of life care. There was perceived conflict between considering a phase I trial and receiving specialist palliative care. Participants felt specialist palliative care should be introduced earlier and educational resources developed to increase patient acceptability of palliative care services.Significance of resultsPatients with advanced cancer referred for phase I trials are likely to benefit from specialist palliative care. However, this study suggests patients may not recognise a need for support nor accept this support due to misperceptions about the role of palliative care. Developing a specific educational resource about specialist palliative care for this population would help overcome barriers to engaging with a simultaneous care model.

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Section: Discussionmentioning

confidence: 99%

Phase I cancer trials: a qualitative study of specialist palliative care

Bellhouse

Galvin

Turner

et al. 2019

BMJ Support Palliat Care

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“…Timely introduction of palliative care is an important facilitating factor to successful referrals (Fliedner et al, 2019; McCaughan et al, 2018; Taylor et al, 2018); however, our study showed the timing of these conversations remains difficult for patients and HCPs. Dedicating time to discussing a patient's current perception of their health, treatment and prognosis has been shown as a key underlying factor in successful palliative care trials (Bakitas et al, 2017) and can enhance understanding of palliative services and the relevance to future care (Fliedner et al, 2019).…”

Section: Discussionmentioning

confidence: 66%

Section: Discussionmentioning

confidence: 80%

Patient and professional experiences of palliative care referral discussions from cancer services: A qualitative interview study

et al. 2020

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Objectives The aim of this paper was to identify current barriers, facilitators and experiences of raising and discussing palliative care with people with advanced cancer. Methods Semi‐structured interviews were conducted with patients with advanced cancer and healthcare professionals (HCPs). Patients were included who had and had not been referred to palliative care. Transcripts were analysed using framework analysis. Results Twenty‐four patients and eight HCPs participated. Two overarching themes and five sub‐themes emerged: Theme one—referral process: timing and triggers, responsibility. Theme two—engagement: perception of treatment, prognosis and palliative care, psychological and emotional preparedness for discussion, and understanding how palliative care could benefit present and future care. Conclusion There is a need to identify suitable patients earlier in their cancer trajectory, address misconceptions about palliative care, treatment and prognosis, and better prepare patients and HCPs to have meaningful conversations about palliative care. Patients and HCPs need to establish and communicate the relevance of palliative care to the patient's current and future care, and be clear about the referral process.

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“…Similarly,Taylor et al, found that less than 13% of inpatient units, 7% of outpatient units and 25% of daily chemotherapy units have written materials available on palliative care. To increase patients' awareness of palliative care services and eliminate misconceptions related to palliative care, it is imperative to prepare appropriate educational lea ets and make them available to patients in oncology departments to increase patient information and help start a discussion about the role of palliative care and its' integration into the plan of care in a timely manner (26).…”

Section: Discussionmentioning

confidence: 99%

“…Some patients think that any patient who is referred to palliative care has reached the end of his / her lifespan (24). Lack of palliative care education programs for patients and their families is a barrier that reduces use of palliative care (25).In fact, lack of information is an important challenge at present and should be investigated because cancer patients need to be aware of the goals and bene ts of palliative care and have access to this information in various departments of oncology (26). It is very important to identify patients' awareness in this regard and to consider patients' decisions about type of care will use for the remainder of their lives (27).…”

Section: Introductionmentioning

confidence: 99%

Knowledge About Palliative Care in Cancer Patients

Dadgari

Bagheri

Rassouli

et al. 2021

Preprint

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Background: Patient awareness plays an important role in integrating palliative care into the patient care process. Lack of awareness can create a negative attitude towards palliative care and affect patients' decisions during the treatment process. The present study was conducted to determine the level of knowledge about palliative care in cancer patients.Methods: The descriptive-analytical study was conducted with a convenience sample of 103 cancer patients admitted to an oncology ward in Yazd, Iran, A three-part questionnaire including demographic information, sources of palliative care information and the Palliative Care Knowledge Scale (PaCKS) was used to collect data. All statistical analyses were performed using software SPSS 21.Results: The mean age of patients was 36.2 ±13.5 years. Of the total, 38.8% of patients received information about palliative care through the media and 36.9% from the treatment team. On a scale of 0 to 13, the mean PaCKS score was 6.7 ± 3.7. A good level of knowledge was reported by 29.1% of participants; however 84.5% stated that they should leave other doctors at the time of receiving palliative care, 71.8% considered palliative care for patients in the last six months of life, 84.5% considered palliative care for patients with cancer, and 70.9% stated that palliative care encourages people to discontinue treatments aimed at treating their disease.Conclusion: Our study found most cancer patients have a moderate to weak level of knowledge and considerable misinformation about palliative care, which highlights the importance of providing palliative care education. The development of training programs in this area could play an effective role in improving patients' knowledge of palliative care.

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Is patient information on palliative care good enough? A literature review and audit

Abstract: Background

Cited by 7 publications

References 31 publications

Phase I cancer trials: a qualitative study of specialist palliative care

Phase I cancer trials: a qualitative study of specialist palliative care

Patient and professional experiences of palliative care referral discussions from cancer services: A qualitative interview study

Knowledge About Palliative Care in Cancer Patients

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