Evaluating physical function in an adolescent bone tumor population

Abstract

The search for a measure of physical functioning for adolescent sarcoma patients requires an exploration of many developmental and measurement issues. Based on the sensibility review presented, the TESS, PODCI, and ASK are recommended for further evaluation of content and of the measurement properties of reliability, validity, and responsiveness, prior to their use in evaluating adolescent sarcoma patients.

An Examination of Adolescent Bone Tumor Patient Responses on the Activities Scale for Kids (ASK)

“…In 1996, the Toronto Extremity Salvage Score (TESS) was developed as the first self-report measure of physical functioning specifically for adult patients with sarcoma and has subsequently become widely accepted in clinical practice and research (Davis et al, 1996). Unfortunately, there is no disease-specific measure for adolescents with bone tumors (Pakulis, Young, & Davis, 2005). Since osteosarcoma and Ewing sarcoma are most often diagnosed between the ages of 14 and 16 years, (Saeter et al, 1997) it is essential to find an adolescent corollary for the TESS.…”

Motor Performance After Treatment for Pediatric Bone Tumors

“…2,10,[20][21][22][23][24] Furthermore, patients after the treatment of bone tumors are at high risk of developing chronic health conditions in adulthood. 25,26 Functional outcomes are usually assessed using selfreported measures (eg, Toronto Extremity Salvage Score or Musculoskeletal Tumor Society Score), 27 but are rarely tested objectively. Correlations between Musculoskeletal Tumor Society Score and objective measures could not be confirmed for adolescents.…”

What is the Emotional Acceptance After Limb Salvage with an Expandable Prosthesis?

“…The PODCI directly addresses patient and parent perceptions of body image, social acceptance, as well as physical function and satisfaction with treatment. The PODCI has been validated by numerous authors and has been applied previously to pediatric populations with bone sarcoma [13,27,28].…”