Ethnic Differences

Hardie, Grace E.; Janson, Susan; Gold, Warren M.; Carrieri‐Kohlman, Virginia; Boushey, Homer A.

doi:10.1378/chest.117.4.935

Cited by 102 publications

(14 citation statements)

References 15 publications

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“…Most predictors identified by Michel et al were consistent with the parameters we found associated with not knowing "wheezing", which reflects an overlap between not knowing the term and defining it inadequately [16]. Educational levels of parents were associated with all study outcomes, in line with findings from qualitative studies highlighting the relevance of social, cultural and linguist backgrounds in parental understanding of respiratory symptoms [20,21,30]. …”

Section: Discussionsupporting

confidence: 81%

The multiple meanings of "wheezing": a questionnaire survey in Portuguese for parents and health professionals

et al. 2011

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BackgroundMost epidemiological studies on pediatric asthma rely on the report of "wheezing" in questionnaires. Our aim was to investigate the understanding of this term by parents and health professionals.MethodsA cross-sectional survey was carried out in hospital and community settings within the south of Portugal. Parents or caregivers self-completed a written questionnaire with information on social characteristics and respiratory history. Multiple choice questions assessed their understanding of "wheezing". Health professionals (physicians, nurses and physiotherapists) were given an adapted version. We used bivariate analysis and multivariate models to study associations between definitions of "wheezing" and participants' characteristics.ResultsQuestionnaires from 425 parents and 299 health professionals were included. The term "wheezing" was not recognized by 34% of parents, more frequently those who were younger (OR 0.4 per 10-year increment, 95% CI 0.3-0.7), had lower education (OR 3.3, 95% CI 1.5-7.4), and whose children had no history of respiratory disease (OR 4.6, 95% CI 2.5-8.7) (all ORs adjusted). 31% of parents familiar with "wheezing" either did not identify it as a sound, or did not locate it to the chest, while tactile (40%) and visual (34%) cues to identify "wheezing" were frequently used. Nurses reported using visual stimuli and overall assessments more often than physicians (p < 0.01). The geographical location was independently associated with how parents recognized and described "wheezing".ConclusionsDifferent meanings for "wheezing" are recognized in Portuguese language and may be influenced by education, respiratory history and regional terminology. These findings are likely applicable to other non-English languages, and suggest the need for more accurate questionnaires and additional objective measurement instruments to study the epidemiology of wheezing disorders.

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Section: Discussionsupporting

confidence: 81%

The multiple meanings of "wheezing": a questionnaire survey in Portuguese for parents and health professionals

et al. 2011

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“…There is also limited validation of instruments in diverse populations, which is problematic given differences in symptom perception and reporting across different patient subgroups. 8–10 Further, evidence of minimal clinically important difference (MCID) in a change in symptoms in longitudinal studies is largely lacking. Finally, the routine use of either symptom diaries or questionnaires introduces a level of participant and study personnel (eg, study coordinator) burden that needs to be evaluated in the context of the value of that information relative to other indices in asthma health.…”

Section: Review Of Symptoms As An Outcome Measurementioning

confidence: 99%

Asthma outcomes: Symptoms

Krishnan

Lemanske

Canino

et al. 2012

Journal of Allergy and Clinical Immunology

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Background Respiratory symptoms are commonly used to assess the impact of patient-centered interventions. Objective At the request of National Institutes of Health (NIH) institutes and other federal agencies, an expert group was convened to propose which measurements of asthma symptoms should be used as a standardized measure in future clinical research studies. Methods Asthma symptom instruments were classified as daily diaries (prospectively recording symptoms between research visits) or retrospective questionnaires (completed at research visits). We conducted a systematic search in PubMed and a search for articles that cited key studies describing development of instruments. We classified outcome instruments as either core (required in future studies), supplemental (used according to study aims and standardized), or emerging (requiring validation and standardization). This work was discussed at an NIH-organized workshop in March 2010 and finalized in September 2011. Results Four instruments (3 daily diaries, 1 for adults and 2 for children; and 1 retrospective questionnaire for adults) were identified. Minimal clinically important differences have not been established for these instruments, and validation studies were only conducted in a limited number of patient populations. Validity of existing instruments may not be generalizable across racial-ethnic or other subgroups. Conclusions An evaluation of symptoms should be a core asthma outcome measure in clinical research. However, available instruments have limitations that preclude selection of a core instrument. The working group participants propose validation studies in diverse populations, comparisons of diaries versus retrospective questionnaires, and evaluations of symptom assessment alone versus composite scores of asthma control.

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“…The patient's misunderstanding of professional language (or misunderstandings by the patient's caretaker), whether or not due to illiteracy [14], may lead to misunderstandings of crucial diagnostic or treatment information, and this may lead to a lack of proper compliance [15]. Previous studies, for example, have demonstrated a need for close attention to vocabulary differences in the education and treatment of patients with chronic conditions such as diabetes [16,17]and asthma [18-22]. …”

Section: Introductionmentioning

confidence: 99%

Evaluation of Controlled Vocabulary Resources for Development of a Consumer Entry Vocabulary for Diabetes

Patrick¹,

Monga²,

Sievert³

et al. 2001

J Med Internet Res

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BackgroundDigital information technology can facilitate informed decision making by individuals regarding their personal health care. The digital divide separates those who do and those who do not have access to or otherwise make use of digital information. To close the digital divide, health care communications research must address a fundamental issue, the consumer vocabulary problem: consumers of health care, at least those who are laypersons, are not always familiar with the professional vocabulary and concepts used by providers of health care and by providers of health care information, and, conversely, health care and health care information providers are not always familiar with the vocabulary and concepts used by consumers. One way to address this problem is to develop a consumer entry vocabulary for health care communications.ObjectivesTo evaluate the potential of controlled vocabulary resources for supporting the development of consumer entry vocabulary for diabetes.MethodsWe used folk medical terms from the Dictionary of American Regional English project to create exended versions of 3 controlled vocabulary resources: the Unified Medical Language System Metathesaurus, the Eurodicautom of the European Commission's Translation Service, and the European Commission Glossary of popular and technical medical terms. We extracted consumer terms from consumer-authored materials, and physician terms from physician-authored materials. We used our extended versions of the vocabulary resources to link diabetes-related terms used by health care consumers to synonymous, nearly-synonymous, or closely-related terms used by family physicians. We also examined whether retrieval of diabetes-related World Wide Web information sites maintained by nonprofit health care professional organizations, academic organizations, or governmental organizations can be improved by substituting a physician term for its related consumer term in the query.ResultsThe Dictionary of American Regional English extension of the Metathesaurus provided coverage, either direct or indirect, of approximately 23% of the natural language consumer-term-physician-term pairs. The Dictionary of American Regional English extension of the Eurodicautom provided coverage for 16% of the term pairs. Both the Metathesaurus and the Eurodicautom indirectly related more terms than they directly related. A high percentage of covered term pairs, with more indirectly covered pairs than directly covered pairs, might be one way to make the most out of expensive controlled vocabulary resources. We compared retrieval of diabetes-related Web information sites using the physician terms to retrieval using related consumer terms We based the comparison on retrieval of sites maintained by non-profit healthcare professional organizations, academic organizations, or governmental organizations. The number of such sites in the first 20 results from a search was increased by substituting a physician term for its related consumer term in the query. This suggests that the Dictionary of...

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Ethnic Differences

Cited by 102 publications

References 15 publications

The multiple meanings of "wheezing": a questionnaire survey in Portuguese for parents and health professionals

The multiple meanings of "wheezing": a questionnaire survey in Portuguese for parents and health professionals

Asthma outcomes: Symptoms

Evaluation of Controlled Vocabulary Resources for Development of a Consumer Entry Vocabulary for Diabetes

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