Ethically Aware Design of a Location System for People with Dementia

Casas, Roberto; Marco, Álvaro; Falcó, Jorge L.; Artigas, J.I.; Abascal, Julio

doi:10.1007/11788713_114

Cited by 9 publications

(5 citation statements)

References 7 publications

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“…(Latour, 2002). In a similar way, Casas et al (2006) claim that the technical design of many devices "include characteristics affecting the rights of the users that cannot be removed because they are substantially rooted in the conception of the application".…”

Section: Discussionmentioning

confidence: 95%

Ethical and practical concerns of surveillance technologies in residential care for people with dementia or intellectual disabilities: an overview of the literature

Niemeijer

Frederiks

Riphagen

et al. 2010

Int. Psychogeriatr.

116

147

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Section: Discussionmentioning

confidence: 95%

Ethical and practical concerns of surveillance technologies in residential care for people with dementia or intellectual disabilities: an overview of the literature

Niemeijer

Frederiks

Riphagen

et al. 2010

Int. Psychogeriatr.

116

147

View full text Add to dashboard Cite

show abstract

“…Rosenfield et al examined existing privacy policies, with a specific eye towards dementia in 2017 [65], finding that most apps for dementia lacked a privacy policy at all, and those that had them were insufficient and unclear. Solutions have been proposed for "privacy-aware" monitoring, such as m-Care [69] or specific location-obfuscation approaches [8]. However, we are still somewhat limited in thinking about dementia in online social communities specifically.…”

Section: Privacy and Securitymentioning

confidence: 99%

Roles in the Discussion

Johnson

Black

Hayes

2020

Proc. ACM Hum.-Comput. Interact.

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Social computing provides a variety of challenges and opportunities for people who are experiencing cognitive decline. Following a recent diagnosis of dementia, older adults sometimes engage in online communities designated for people with dementia. In this work, we analyzed all original posts from a seven-year period on a forum for persons with dementia to understand 1) who posts in this forum and 2) what kinds of social support posters seek to gain from this engagement. Our analyses indicate that, in addition to people with dementia, a variety of dementia-related stakeholders create original posts in this forum. Our results suggest that seeking and offering social support are key activities for all forum users, not just those with dementia for whom the forum was designated. Given these findings, we offer design implications for online spaces for vulnerable communities, with a focus on design that allows for external stakeholder participation while still maintaining the privacy and safety of vulnerable members of the community. CCS Concepts: • Human-centered computing → Collaborative and social computing design and evaluation methods;

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“…One study, Casas, Marco, Falcó, Artigas, and Abascal (2006), reviewed ethical issues including privacy and consent in a case study of a location monitoring system used in a care facility in Spain. They make the important point that technologists are not necessarily aware of ethical issues when they design systems and emphasise, as do others, the need for the use of assistive technologies to relate to real issues of care and to recognise the ethical dimensions of these.…”

Section: Assistive Technologymentioning

confidence: 99%