Ethical issues when using social media for health outside professional relationships

DeCamp, Matthew

doi:10.3109/09540261.2014.1001726

Cited by 15 publications

(17 citation statements)

References 45 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…There is a possibility that such work would be extended to the general Chinese population. Regardless of which types of social media are used, ethical issues such as the protection of privacy and confidentiality should be considered [24].…”

Section: Discussionmentioning

confidence: 99%

Dementia Literacy in the Greater Bay Area, China: Identifying the At-Risk Population and the Preferred Types of Mass Media for Receiving Dementia Information

Leung

Molassiotis

Zhang

et al. 2020

IJERPH

View full text Add to dashboard Cite

Background: The aim of this cross-sectional study was to assess the dementia literacy of community-dwelling adults in four cities (Hong Kong, Guangzhou, Macau, and Zhuhai) of the Greater Bay Area of China, and to determine their mass media preferences for receiving dementia information. Methods: The survey was completed by 787 community-dwelling adults. Dementia literacy was indirectly measured using two validated scales—the 30-item Alzheimer’s Disease Knowledge Scale and the 20-item Dementia Attitude Scale (DAS). Participants were also asked to indicate whether they wanted to receive dementia information via digital or traditional media. Chi-square tests, logistic regressions, and MANOVA analyses were conducted. Results: Unemployed or retired people had poor attitudes towards dementia and lower levels of knowledge about dementia. Single, cohabiting, or divorced people in Hong Kong and Macau had lower DAS scores than married people. Young people and those with a secondary education preferred to get their dementia information from social media. People with a tertiary education and employed people enjoyed searching government or hospital websites for information. Middle-aged, unemployed, or retired people tended to learn about dementia from television or radio. Conclusion: It is worth educating the public about dementia and developing strategies consistent with their preferences for types of mass media.

show abstract

Section: Discussionmentioning

confidence: 99%

Dementia Literacy in the Greater Bay Area, China: Identifying the At-Risk Population and the Preferred Types of Mass Media for Receiving Dementia Information

Leung

Molassiotis

Zhang

et al. 2020

IJERPH

View full text Add to dashboard Cite

show abstract

“…Rooted within the concepts of risk to users are the issues of privacy and traceability or anonymity of the poster [34,38,39,41,48,71-73,77,81,87-93]. Whereas some respondents were happy for use of anonymous posts, others wanted to be cited (as is the case for published works).…”

Section: Discussionmentioning

confidence: 99%

Attitudes Toward the Ethics of Research Using Social Media: A Systematic Review

Golder¹,

Ahmed²,

Norman³

et al. 2017

J Med Internet Res

171

124

View full text Add to dashboard Cite

BackgroundAlthough primarily used for social networking and often used for social support and dissemination, data on social media platforms are increasingly being used to facilitate research. However, the ethical challenges in conducting social media research remain of great concern. Although much debated in the literature, it is the views of the public that are most pertinent to inform future practice.ObjectiveThe aim of our study was to ascertain attitudes on the ethical considerations of using social media as a data source for research as expressed by social media users and researchers.MethodsA systematic review was conducted, wherein 16 databases and 2 Internet search engines were searched in addition to handsearching, reference checking, citation searching, and contacting authors and experts. Studies that conducted any qualitative methods to collect data on attitudes on the ethical implications of research using social media were included. Quality assessment was conducted using the quality of reporting tool (QuaRT) and findings analyzed using inductive thematic synthesis.ResultsIn total, 17 studies met the inclusion criteria. Attitudes varied from overly positive with people expressing the views about the essential nature of such research for the public good, to very concerned with views that social media research should not happen. Underlying reasons for this variation related to issues such as the purpose and quality of the research, the researcher affiliation, and the potential harms. The methods used to conduct the research were also important. Many respondents were positive about social media research while adding caveats such as the need for informed consent or use restricted to public platforms only.ConclusionsMany conflicting issues contribute to the complexity of good ethical practice in social media research. However, this should not deter researchers from conducting social media research. Each Internet research project requires an individual assessment of its own ethical issues. Guidelines on ethical conduct should be based on current evidence and standardized to avoid discrepancies between, and duplication across, different institutions, taking into consideration different jurisdictions.

show abstract

“…There is a possibility of extending this work to the general public in Chinese population. No matter which types of social media is used, ethical issues such as protecting privacy and confidentiality should be considered [26].…”

Section: Discussionmentioning

confidence: 99%

Dementia Literacy in Greater Bay Area, China: Identifying the At-risk Population and the Preferred Mass Media for Receiving Dementia Information

Leung¹,

Molassiotis²,

Zhang³

et al. 2019

Preprint

View full text Add to dashboard Cite

Background: This study aimed to assess the dementia literacy (DL) level of community-dwelling adults in the four cities (Hong Kong, Guangzhou, Macau and Zhuhai) of the Greater Bay Area of China and to determine the preferred mass media for receiving dementia information. Methods: A multi-city cross-sectional study with 788 community-dwelling adults completed the survey. Dementia literacy was indirectly measured by two validated scales, 30-item Alzhiemer’s Disease Knowledge Scale (ADKS) and 20-item Dementia Attitudes Scale (DAS). When the ADKS total score was <15 and DAS total score was <70, it was considered as ‘inadequate dementia literacy’. Participants were also asked to indicate whether they would like to receive dementia information via digital media or traditional media. Chi-square tests and logistic regressions were undertaken. Results: About one-third of the participants had inadequate dementia literacy. Those with young age or secondary education preferred to get dementia information from social media. But people living in public housing would like to get information from government or hospital websites. Middle-aged participants inclined to learn dementia from television or radio. Conclusion: It is worthy to conduct territory-wide public education in dementia and develop strategies according to their preferences in the types of mass media.

show abstract

Ethical issues when using social media for health outside professional relationships

Cited by 15 publications

References 45 publications

Dementia Literacy in the Greater Bay Area, China: Identifying the At-Risk Population and the Preferred Types of Mass Media for Receiving Dementia Information

Dementia Literacy in the Greater Bay Area, China: Identifying the At-Risk Population and the Preferred Types of Mass Media for Receiving Dementia Information

Attitudes Toward the Ethics of Research Using Social Media: A Systematic Review

Dementia Literacy in Greater Bay Area, China: Identifying the At-risk Population and the Preferred Mass Media for Receiving Dementia Information

Contact Info

Product

Resources

About