Ensuring Cross-Cultural Equivalence in Translation of Research Consents and Clinical Documents

Lee, Cheng-Chih; Li, Denise; Arai, Shoshana; Puntillo, Kathleen

doi:10.1177/1043659608325852

Cited by 63 publications

(42 citation statements)

References 22 publications

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“…Accuracy and face validity of the translated versions were tested in discussions with volunteer respondents and certified Somali medical interpreters who reviewed the content to ensure cross-cultural equivalence [18]. We leveraged a Community-Based Participatory Research partnership to mobilize community support wherein bilingual and 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 5 highly respected community members were trained as community mobilizers/surveyors [19].…”

Section: Data Collectionmentioning

confidence: 99%

Factors Associated with Access to Maternal and Reproductive Health Care among Somali Refugee Women Resettled in Ohio, United States: A Cross-Sectional Survey

Banke-Thomas

Agbemenu

Johnson‐Agbakwu

2018

J Immigrant Minority Health

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This study examined maternal and reproductive health (MRH) access of Somali refugees in the U.S. across four access dimensions (willingness to seek care, gaining entry to the health system, seeing a primary provider and seeing a specialist). We conducted a cross-sectional survey of 427 Somali refugee reproductive-age women in Franklin County, Ohio. Following descriptive statistics of demographics, we conducted multivariate analyses to test associations between demographics and the four access dimensions. Most Somali refugee women were married (68%), attained primary education (92%), employed (64%) and were circumcised (82%). Young (OR 2.61, 95% CI 1.25-5.60), single (OR 1.78, 95% CI 1.15-2.78), and minors upon arrival (OR 2.36, 95% CI 1.44-3.90) were more willing to seek care. Lack of insurance, limited language fluency and being circumcised limited access to care across all dimensions. Barriers to access need to be systematically addressed. Deconstructing beliefs regarding health systems may improve access, especially among older Somali women.

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Section: Data Collectionmentioning

confidence: 99%

Factors Associated with Access to Maternal and Reproductive Health Care among Somali Refugee Women Resettled in Ohio, United States: A Cross-Sectional Survey

Banke-Thomas

Agbemenu

Johnson‐Agbakwu

2018

J Immigrant Minority Health

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“…Although Navajo-specific data were not reported,Espey et al (2007) found that the age-adjusted breast cancer incidence rate for Southwest female American Indians (AI) was significantly lower than that for Southwest non-Hispanic White women (NHW; 50.4 vs. 127.2). Nevertheless, AI/Alaskan Native (AN) women have the lowest survival rates for breast cancer compared with any other ethnic group (Clegg, Li, Hankey, Chu, & Edwards, 2002;Lee, Li, Arai, & Puntillo, 2009;Ward et al, 2004). The smaller proportion of localized breast cancers among AI/AN female patients compared with NHW or other ethnic minority women could partly explain their relatively low survival rates (Clegg et al, 2002;Espey et al, 2007;Lee et al, 2009;Ward et al, 2004).…”

mentioning

confidence: 99%

“…Nevertheless, AI/Alaskan Native (AN) women have the lowest survival rates for breast cancer compared with any other ethnic group (Clegg, Li, Hankey, Chu, & Edwards, 2002;Lee, Li, Arai, & Puntillo, 2009;Ward et al, 2004). The smaller proportion of localized breast cancers among AI/AN female patients compared with NHW or other ethnic minority women could partly explain their relatively low survival rates (Clegg et al, 2002;Espey et al, 2007;Lee et al, 2009;Ward et al, 2004). Among U.S. NHW women, 63% of breast cancers are diagnosed at a localized stage in contrast to 56% among AI/AN women (American Cancer Society 2004;Espey, Paisano, & Cobb, 2005).…”

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confidence: 99%

Adapting a Cancer Literacy Measure for Use Among Navajo Women

et al. 2016

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Purpose The authors designed a community-based participatory research study to develop and test a family-based behavioral intervention to improve cancer literacy and promote mammography among Navajo women. Methods Using data from focus groups and discussions with a community advisory committee, they adapted an existing questionnaire to assess cancer knowledge, barriers to mammography, and cancer beliefs for use among Navajo women. Questions measuring health literacy, numeracy, self-efficacy, cancer communication, and family support were also adapted. Results The resulting questionnaire was found to have good content validity, and to be culturally and linguistically appropriate for use among Navajo women. Conclusions It is important to consider culture and not just language when adapting existing measures for use with AI/AN populations. English-language versions of existing literacy measures may not be culturally appropriate for AI/AN populations, which could lead to a lack of semantic, technical, idiomatic, and conceptual equivalence, resulting in misinterpretation of study outcomes.

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“…29 A multistep process involving translation, back-translation, and assessing for cultural equivalence, with validation for comprehension carried out through the piloting of documents, may be required. 30,31 Example 2: Informed Consent for a Randomized Clinical Trial in Tibet…”

Section: Informed Consentmentioning

confidence: 99%

Navigating the Challenges of Global Reproductive Health Research

Stenson

Kapungu

Geller

et al. 2010

Journal of Women's Health

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Reproductive health research in low-resource settings poses unique and complex challenges that must be addressed to ensure that global research is conducted with strict adherence to ethical principles, offers direct benefit to the research subjects, and has the potential for adoption of positive findings to the target population. This article addresses challenges to conducting reproductive health research in low-resource settings in the following areas: (1) establishment and maintenance of global collaboration, (2) community partnerships, (3) ethical issues, including informed consent and the role of incentives, (4) staff training and development, (5) data collection and management, and (6) infrastructure and logistics. Particular attention to these challenges is important to ensure that research is culturally appropriate and methodologically sound and enhances the adoption of health-promoting behaviors. Rigorous evaluation of interventions in low-resource settings may be a cost-effective and time-efficient way to identify interventions for large-scale program replication to improve women's health.

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Ensuring Cross-Cultural Equivalence in Translation of Research Consents and Clinical Documents

Cited by 63 publications

References 22 publications

Factors Associated with Access to Maternal and Reproductive Health Care among Somali Refugee Women Resettled in Ohio, United States: A Cross-Sectional Survey

Factors Associated with Access to Maternal and Reproductive Health Care among Somali Refugee Women Resettled in Ohio, United States: A Cross-Sectional Survey

Adapting a Cancer Literacy Measure for Use Among Navajo Women

Navigating the Challenges of Global Reproductive Health Research

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