Enhancing Hispanic Participation in Mental Health Clinical Research: Development of a Spanish-Speaking Depression Research Site

Aponte‐Rivera, Vivianne; Dunlop, Boadie W.; Ramirez, Cynthia L.; Kelley, Mary E.; Schneider, Rebecca L.; Blastos, Beatriz; Larson, Brett; Mercado, Flavia; Mayberg, Helen S.; Craighead, W. Edward

doi:10.1002/da.22153

Cited by 28 publications

(21 citation statements)

References 42 publications

(50 reference statements)

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“…It is well known that minorities are underrepresented in clinical research, and crowdsourcing may offer an alternative approach to access these populations that otherwise are underrepresented 25. The paucity of data that is available examining stigma in minority populations may be supported by this study.…”

Section: Discussionmentioning

confidence: 75%

Evaluation of perceptions and knowledge of mental illness in the United States through crowdsourcing

Palmer

Douglass

Smith

et al. 2018

Mental Health Clinician

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Introduction:Crowdsourcing is a method of data collection with possible benefits in assessing perceptions of mental illness in a large US population.Methods:The objective was to describe perceptions and trends of stigma surrounding mental illness in the United States using crowdsourcing. An online survey was conducted evaluating adults in the United States recruited via the online resource Amazon Mechanical Turk. Questions evaluated demographics and perceptions of mental illness. Survey data were adjusted for demographic variables and compared via logistic regression.Results:Respondents (n = 1422) were predominately 18 to 30 years of age (n = 743; 52.3%) and white (n = 1101; 77.4%). Over half reported an individual close to them had mental illness (n = 932; 65.5%), and more than one quarter (n = 397; 27.9%) reported having a current or previous mental illness. Non-whites were less likely to agree that: medications are effective (odds ratio [OR] 0.63); they would be comfortable around a coworker with mental illness (OR 0.66); and mental illness is inheritable (OR 0.74). They are also more likely to agree that mental illness is preventable (OR 1.49). Individuals reporting mental illness were more likely to agree that medications (OR 1.34; 95% confidence interval 1.03 to 1.74) and talk therapy (OR 1.46; 95% confidence interval 1.12 to 1.90) are effective. Those reporting some or no college were more likely to agree that the United States has good access to mental health treatment.Discussion:Crowdsourcing may be an effective way to obtain information regarding demographics, stigma, and mental illness. Personal experiences with mental illness, ethnicity, and educational level appear to continue to impact perceptions of mental illness.

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Section: Discussionmentioning

confidence: 75%

Evaluation of perceptions and knowledge of mental illness in the United States through crowdsourcing

Palmer

Douglass

Smith

et al. 2018

Mental Health Clinician

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“…The importance of our results is the different manifestation of anxious-depression symptomatology among different Hispanic/Latino groups. Recent studies have emphasized the need to further study symptoms of anxiety and depression among different Hispanic/Latinos due to the severity of the symptoms that are usually unreported [50,51]. The anxious-depression construct presented here is an important step in studying how these symptoms varied among Hispanic/Latino groups and how they can predict outcomes related to health, socio-economic stressors, family cohesion and past emotional experiences and/or resilience [52,53,51].…”

Section: Discussionmentioning

confidence: 99%

Anxious-depression among Hispanic/Latinos from different backgrounds: results from the Hispanic Community Health Study/Study of Latinos (HCHS/SOL)

Camacho

González

Buelna

et al. 2015

Soc Psychiatry Psychiatr Epidemiol

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Background Anxious-depression is a constellation of symptoms, frequently encountered among patients in primary care centers. There is a need to study how anxious-depression presents among Hispanic/Latinos of different backgrounds. Objective To study the construct of anxious-depression among 16,064 Hispanic/Latinos of different backgrounds participating in the Hispanic Community Health Study/ Study of Latinos (HCHS/SOL). We hypothesized that Hispanic/Latinos will cluster in 3 classes: low anxiety/high depression, high anxiety/low depression and a combined anxious-depression construct. Methods Using latent profile analysis, symptoms of depression and anxiety measured by the 10-item Center for Epidemiologic Studies Depression Scale (CES-D) and 10-item State-Trait Anxiety Inventory (STAI) were evaluated to determine if an anxious-depression typology would result. A multinomial logistic regression analysis explored the association of the 3-class solution with different Hispanic/Latino backgrounds controlling for age, gender, language, education and income. Results A 3-class mixed anxious-depression structure emerged with 10% of Hispanic/Latinos in the high, 30% in the moderate and 60% in the low anxious-depression category. After adjusting for age, gender, language preference, income and education, individuals of Puerto-Rican background were more likely to experience high (OR=1.79,p<0.05) and moderate (OR=1.36,p<0.05) (vs.low) anxious-depression symptomatology compared to those of Mexican background. Individuals of Central-American and South-American background were less likely to experience high (OR=0.68,p<0.05) and moderate (OR=0.8,p<0.05) (vs.low) anxious-depression compared to those of Mexican background. Conclusion Anxious-depression symptomatology varied among this sample of Hispanic/Latino groups. These classes should be investigated as to their relationship with different health outcomes relevant to the Hispanic/Latino of different backgrounds.

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“…This high response rate confirmed what we had experienced in other studies and what is reported in the literature: The preferred method of communication for Spanishspeaking families, both for recruitment and data collection, is direct contact. [24][25][26][27] The presence of a Spanish-speaking research assistant who provided personalized attention and support to participants also contributed to the success of the recruitment strategy. Although telephone interviews are a more resource-intensive mode of data collection, and may be cost prohibitive in studies with large populations, they may be necessary to reach Hispanic people and other populations that typically have lower computer and health literacy.…”

Section: Original Research and Contributionsmentioning

confidence: 99%

A Survey of Parents with Children on the Autism Spectrum: Experience with Services and Treatments

Becerra

Massolo²,

Yau³

et al. 2017

TPJ

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Introduction: Autism spectrum disorders (ASD) are lifelong neurodevelopmental disorders, and little is known about how parents address the health and psychosocial consequences of ASD. Few studies have examined use of various treatments and services in a large, diverse sample of children with ASD and their families.Objective: This paper presents methods to create an autism research resource across multiple large health delivery systems and describes services and treatments used by children with ASD and their families.Methods: Four study sites conducted a Web survey of parents of children and adolescents with ASD who were members of Kaiser Permanente. We tabulated data distributions of survey responses and calculated c 2 statistics for differences between responders and nonresponders.Results: The children of the 1155 respondents were racially and ethnically diverse (55% white, 6% black, 5% Asian, 9% multiracial, 24% Hispanic) and representative of the total population invited to participate with respect to child sex (83% male), child age (57% < 10 years), and ASD diagnosis (64% autistic disorder). The most frequently used services and treatments were Individualized Education Programs (85%), family physician visits (78%), and occupational and speech therapy (55% and 60%, respectively). Home-based programs frequently included implementation of social skills training (44%) and behavior management (42%). Prescription medication use was high (48%). Caregivers reported disruption of personal and family routines because of problem behaviors.Conclusion: These survey data help to elucidate parents' experiences with health services for their children with ASD and serve as a potential resource for future research.

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Enhancing Hispanic Participation in Mental Health Clinical Research: Development of a Spanish-Speaking Depression Research Site

Cited by 28 publications

References 42 publications

Evaluation of perceptions and knowledge of mental illness in the United States through crowdsourcing

Evaluation of perceptions and knowledge of mental illness in the United States through crowdsourcing

Anxious-depression among Hispanic/Latinos from different backgrounds: results from the Hispanic Community Health Study/Study of Latinos (HCHS/SOL)

A Survey of Parents with Children on the Autism Spectrum: Experience with Services and Treatments

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