Empower Me? Yes, Please, But in My Way: Different Patterns of Experiencing Empowerment in Patients with Chronic Conditions

Vázquez, Ana Suárez; Lanza, Ana Belén del Río; Álvarez, Leticia Suárez; Casielles, Rodolfo Vázquez

doi:10.1080/10410236.2016.1196409

Cited by 10 publications

(5 citation statements)

References 30 publications

(26 reference statements)

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“…Thirteen of the twenty articles described a standardized measurement tool. Ten unique tools were identified: the “Specialist/Nurses” subscale of Hemo‐SAT, the “treatment satisfaction” domain of Hemofilia‐QoL, Mountain States Regional Haemophilia and Thrombosis Center Patient Satisfaction Survey, Multi‐dimensional Health Locus of Control Scale, University of Oviedo Survey (UOvS), QUOTE‐Communication Questionnaire (QUOTE), Theoretical Model of Deliberation Dialogues (TMDD), the “Communication” subscale of the Veritas‐PRO, the Wake Forest Trust in Physician Scale (WFTPS) and the Working Alliance Inventory for Chronic Conditions (WAI‐CC).…”

Section: Resultsmentioning

confidence: 99%

Measuring therapeutic relationship in the care of patients with haemophilia: A scoping review

McCabe

Miciak

Dennett

et al. 2018

Health Expectations

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ObjectiveWe conducted a scoping review of the tools used to measure therapeutic relationship in patients with haemophilia.BackgroundHaemophilia is an inherited bleeding disorder caused by a deficiency of a clotting factor in the blood. Therapeutic relationship is foundational to the management of patients with chronic diseases like haemophilia. A reliable and valid measurement tool for assessing therapeutic relationship is needed to evaluate the quality of care received by these patients, and to rigorously study the association between therapeutic relationship and the outcomes of treatment.MethodsWe adopted the Arksey and O'Malley framework for scoping studies. The following electronic databases were searched for studies that measured a construct related to therapeutic relationships in haemophilia care: MEDLINE, EMBASE, CINAHL, PsycINFO and Scopus. We inventoried these studies, identified the measurement tools used, and described each tool by purpose, content, measurement properties and target population. We identified gaps in the current evidence and directions for future research.ResultsThere were 253 unique records retrieved in the search, and twenty studies were deemed relevant. Ten measurement tools were identified. None of the tools measured therapeutic relationship as a single entity; however, six tools measured constructs considered part of patient‐provider relationship (eg trust, communication, working alliance). There has been little validation testing of these tools in haemophilia patient populations.ConclusionsThere is a need for a validated tool for measuring therapeutic relationship in the care of patients with haemophilia. This review provides a foundation for future research in this area.

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Section: Resultsmentioning

confidence: 99%

Measuring therapeutic relationship in the care of patients with haemophilia: A scoping review

McCabe

Miciak

Dennett

et al. 2018

Health Expectations

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“…Faced with this public health problem, one of the responses of health policies is based on the development of empowerment, in other words, the autonomy of individuals [29]. It seems obvious to leave people free to make their own choices and decisions in the daily management of their illness [30]. However, there is a risk of over-empowerment for some by allowing them to manage their disease in its entirety [31].…”

Section: Discussionmentioning

confidence: 99%

Exploring Strategies for Developing Enabling Environments for People with Chronic Heart Disease: An Ethnographic Study Protocol

Loizeau

Kilpatrick

Bertrand

et al. 2023

IJERPH

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The impact of chronic diseases on people’s daily lives and the exponential number of people affected is a major public health issue. The consequences on individuals and their families is significant, particularly in terms of quality of life. In the literature, this phenomenon is well described in terms of care policy and cost. Although there is a link between a supportive environment and empowerment, there is little literature describing a supportive environment and the daily lives of people living with cardiovascular disease. The objectives of this study are to identify the strategies people use to develop an enabling environment. It will be a qualitative ethnographic study that will address both human behavior and the notion of culture in a broad sense. In the context of this study, an orientation towards critical ethnography will be considered for its particular interest in vulnerable people and in the power relations that may exist in the socio-cultural system. Data will be collected directly in people’s homes through observations and interviews with 10 people with cardiovascular disease. For each person, the data collection will take place over three days and will represent approximately 210 h of observation. This protocol was registered in the Research Register on 30 June 2021 and its number is 6933. This study will explore strategies for developing an enabling environment for people living with heart disease and eventually provide recommendations for nursing practices in terms of support.

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“…If the assessment of needs and the adaptation of responses appear to be fundamental, [ 24 , 27 , 46 , 52 , 69 ] the accompaniment, support, improvement of knowledge and use of ICTs must also be considered for the person [ 25 , 63 , 70 , 71 ]. At the same time, the engagement of professionals and the organization of care interact with those above, without which the system would not be sufficiently balanced to enable the desired autonomy.…”

Section: Discussionmentioning

confidence: 99%

Defining an enabling environment for those with chronic disease: an integrative review

Loizeau

Morvillers

Bertrand³

et al. 2021

BMC Nurs

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Background Health policies are currently being implemented to cope with the 37% of those affected by chronic disease and 63% of deaths worldwide. Among the proposals, there is accelerating support for greater autonomy for patients, which incorporates several concepts, including empowerment. To achieve this, develop an environment to increase an individual’s capacity for action seems to be a fundamental step. The aim of this study is to characterize an enabling environment for patients in the context of chronic disease management. Methods An integrative review design was applied. Medline, CINAHL, and Web of Science databases were searched to identify relevant literature published between 2009 and 2019. Overall, the review process was guided by the PRISMA 2020 checklist. The Mixed Methods Appraisal Tool for quality evaluation was used. Results A total of 40 articles were analyzed, divided into 18 quantitative studies, 11 qualitative studies, two mixed studies, seven expert opinions, one theory and one conference report. The following characteristics defining an enabling environment were taken from the literature relating to those with a chronic condition: Needs assessment-adaptation of responses, supporting “take care”, involvement in support, knowledge improvement, engagement with professionals, use of information and communication technologies, and organization of care. Beyond that, the interactions highlighted between these seven categories characterize an enabling environment. Conclusion This review specifies the essential elements of an enabling environment for patients with chronic conditions. It encompasses the partnership between the healthcare professional, such as the advanced practice nurse, and the individual for whom interventions and care strategies must be devised.

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Empower Me? Yes, Please, But in My Way: Different Patterns of Experiencing Empowerment in Patients with Chronic Conditions

Cited by 10 publications

References 30 publications

Measuring therapeutic relationship in the care of patients with haemophilia: A scoping review

Measuring therapeutic relationship in the care of patients with haemophilia: A scoping review

Exploring Strategies for Developing Enabling Environments for People with Chronic Heart Disease: An Ethnographic Study Protocol

Defining an enabling environment for those with chronic disease: an integrative review

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