Emotional well-being among adolescents with and without chronic conditions

Wolman, Clara; Resnick, Michael D.; Harris, Linda J.; Blum, Robert W.

doi:10.1016/1054-139x(94)90504-5

Cited by 175 publications

(122 citation statements)

References 18 publications

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“…[17][18][19][20][21][22][23][24][25][26][27][28][29][30][31][32][33] Ten articles were excluded because although they included a proportion of participants with CP, they did not report specific results for only those with CP. 9,11,[34][35][36][37][38][39][40][41] Three articles were excluded because they did not compare their results with children without disability or normative data. [42][43][44] Two articles were excluded because they Review 153 Spastic diplegia (45) Mild (36) Children from junior high and Self-perception profile for children 2 Hemiplegia (7) Moderate (17) elementary schools in Toronto Quadriplegia (6) Severe (5) Spastic diplegia (4) Not stated Recruited by scouting and Piers Harris Self-concept Scale 57 Quadriplegia (5) guiding leaders Hemiplegia (6) Athetoid (4) Spastic diplegia (9) Mild ( 10,45 and one article was excluded because it contained data that were also reported in another study.…”

Section: Resultsmentioning

confidence: 99%

A systematic review of the self‐concept of children with cerebral palsy compared with children without disability

Shields

Murdoch

Loy

et al. 2006

Develop Med Child Neuro

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Young people with cerebral palsy (CP) are often assumed to have low self-concept, in other words, they do not feel good about themselves. We systematically searched the literature to determine whether this assumption was supported by empirical research. Relevant trials were identified by searching electronic databases, and this was supplemented by citation tracking. Of 1355 papers initially identified, six met the criteria for review. Results showed that adolescent females with CP have a lower self-concept than females without disability in the domains of physical appearance (d=-1.16; 95% confidence interval [CI] -2.06 to -0.26); social acceptance (d=-1.24; 95% CI -2.15 to -0.33); athletic competence (d=-0.93; 95% CI -1.79 to -0.07); and scholastic competence (d=-0.86; 95% CI, -1

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Section: Resultsmentioning

confidence: 99%

A systematic review of the self‐concept of children with cerebral palsy compared with children without disability

Shields

Murdoch

Loy

et al. 2006

Develop Med Child Neuro

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“…The challenge of adolescence is to achieve the desired independency and autonomy, while at the same time maintaining close and supportive ties with the nuclear family. Unique stressors are associated with chronic disease as a function of these developmental domains (Stevens, Steele, Jutai, Kalnins, Botolussi & Biggar, 1996;Wolman, Resnick, Harris & Blum, 1994). Ungerer and colleagues (1988) have pointed out the social consequences of arthritis for teenagers, compared with younger children.…”

Section: Discussionmentioning

confidence: 99%

Fitting into the prevailing teenage culture: A grounded theory on female adolescents with chronic arthritis

Sällfors

Hallberg

2009

International Journal of Qualitative Studies on Health and Well

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The aim of this study was to deepen the understanding of female adolescents' daily living with chronic arthritis. Taperecorded open interviews were conducted once with six teenage girls (14Á17 years), who also wrote diaries for a 12-month period. In addition, 12 interviews of female adolescents diagnosed with chronic arthritis selected from another sample in an earlier study by the authors were included in the data. The Grounded Theory (GT) method was used for analysing the diaries and the transcribed interviews. A core category, labelled Fitting into the prevailing teenage culture, and four related categories labelled (1) mastering a body in pain; (2) living one day at time; (3) using social support; and (4) fighting for health emerged. The categories formed a substantive theory illuminating living with chronic arthritis during adolescence. The theory explains and provides a deeper understanding of the main concern of these female adolescents and their strategies in managing their situation.

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“…21% of CF and 30% of SCD adolescents had smoked and those with CF were less likely to have had early sexual intercourse than those with SCD (28% versus 50%). 2 In a study by Britto in 1998, 14 significantly fewer teens with CF reported ever smoking or regular tobacco use compared with their healthy peers. Specifically, 21.1% of adolescents with CF reported ever smoking compared with 53.3% of ever-smokers among adolescents without CF matched on age, race, and gender.…”

Section: Experimentationmentioning

confidence: 99%

“…Family connectedness is of fundamental importance to emotional wellbeing. 2 New diagnoses in middle adolescence, for example diabetes mellitus in addition to CF, are particularly hard to deal with, and additional diagnoses in both early and middle adolescence may provoke concerns about body image and are linked to increased risk of developing an eating disorder. 3 Newacheck and Stoodard showed that where more than one chronic disease is present, there is increased morbidity across various measures.…”

Section: The Reciprocal Effects Of Cf On Adolescent Developmentmentioning

confidence: 99%

Adolescence: What the cystic fibrosis team needs to know

Segal

2008

J R Soc Med

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Adolescence can be defined as a period of biopsychosocial transition from a dependent child to an autonomous/independent adult, usually taking place between 13 and 20 years of age. There is considerable variation between individuals and cultures-in some it is truncated to circumcision. As a group adolescents make up 13% of the general population, but they probably account for about 30-40% of both the paediatrician and adult physician's workload, especially when dealing with a chronic disease of limited life span. Adolescence constitutes a large proportion of the life of a patient with cystic fibrosis (CF). The treatment of adolescents poses specific challenges for treating disease and promoting health. In working with adolescents, the treatments for disease are played out against a background of rapid physical, psychological and social developmental changes; changes that produce unique communication and management challenges. At no other time of life are the physical and psychosocial elements of illness and behaviour so inextricably intertwined as in adolescence. This can make working with adolescents difficult; however, given the right skills-which can be learned!-practising medicine with young people can be extremely rewarding and productive.

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Emotional well-being among adolescents with and without chronic conditions

Cited by 175 publications

References 18 publications

A systematic review of the self‐concept of children with cerebral palsy compared with children without disability

A systematic review of the self‐concept of children with cerebral palsy compared with children without disability

Fitting into the prevailing teenage culture: A grounded theory on female adolescents with chronic arthritis

Adolescence: What the cystic fibrosis team needs to know

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