A systematic review of the self‐concept of children with cerebral palsy compared with children without disability

Shields, Nora; Murdoch, Alison; Loy, Yijun; Dodd, Karen; Taylor, Nicholas F.

doi:10.1017/s0012162206000326

Cited by 79 publications

(64 citation statements)

References 45 publications

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“…9 Moreover, female adolescents with CP have a lower self-concept than their counterparts without disability in the domains of physical appearance, social acceptance, athletic competence, and scholastic competence. 10 Adequate levels of muscular strength and endurance are associated with increased bone mass, reduction in injury from falls, and a greater ability to complete activities of daily living. 9,11 A strength-training program for young patients with CP demonstrated increased strength, improved mental wellbeing, and better overall function.…”

mentioning

confidence: 99%

Promoting the Participation of Children With Disabilities in Sports, Recreation, and Physical Activities

Murphy¹,

Carbone²

2008

Pediatrics

329

192

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The benefits of physical activity are universal for all children, including those with disabilities. The participation of children with disabilities in sports and recreational activities promotes inclusion, minimizes deconditioning, optimizes physical functioning, and enhances overall well-being. Despite these benefits, children with disabilities are more restricted in their participation, have lower levels of fitness, and have higher levels of obesity than their peers without disabilities. Pediatricians and parents may overestimate the risks or overlook the benefits of physical activity in children with disabilities. Well-informed decisions regarding each child's participation must consider overall health status, individual activity preferences, safety precautions, and availability of appropriate programs and equipment. Health supervision visits afford pediatricians, children with disabilities, and parents opportunities to collaboratively generate goal-directed activity "prescriptions." Child, family, financial, and societal barriers to participation need to be directly identified and addressed in the context of local, state, and federal laws. The goal is inclusion for all children with disabilities in appropriate activities. This clinical report discusses the importance of physical activity, recreation, and sports participation for children with disabilities and offers practical suggestions to pediatric health care professionals for the promotion of participation.

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mentioning

confidence: 99%

Promoting the Participation of Children With Disabilities in Sports, Recreation, and Physical Activities

Murphy¹,

Carbone²

2008

Pediatrics

329

192

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“…Assessments of QOL and HRQOL thus reflect personal valuations of daily experience, much like other subjective outcomes, such as life satisfaction, 9 sense of coherence, 10 and self-concept. 11 Utility theory represents an econometric understanding of HRQOL 12 that can be used to calculate quality-adjusted life years. Operating under the assumption that functional status, health status, and QOL are effectively the same construct, 8 such an approach employs assessments of daily functioning rather than reports of perceived well-being.…”

mentioning

confidence: 99%

Quality of life and health‐related quality of life of adolescents with cerebral palsy

Rosenbaum

Livingston

Palisano

et al. 2007

Develop Med Child Neuro

121

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This study assessed quality of life (QOL) and health-related quality of life (HRQOL) of 203 adolescents with cerebral palsy (111 males, 92 females; mean age 16y [SD 1y 9mo]). Participants were classified using the Gross Motor Function Classification System (GMFCS), as Level I (n=60), Level II (n=33), Level III (n=28), Level IV (n=50), or Level V (n=32). QOL was assessed by self (66.5%) or by proxy (33.5%) with the Quality of Life Instrument for People With Developmental Disabilities, which asks about the importance and satisfaction associated with the QOL domains of Being, Belonging, and Becoming; HRQOL was captured through proxy reports with the Health Utilities Index, Mark 3 (HUI3), which characterizes health in terms of eight attributes, each having five or six ordered levels of function. GMFCS level was not a source of variation for QOL domain scores but was significantly associated with the eight HRQOL attributes and overall HUI3 utility scores (p<0.05). Some QOL domain scores varied significantly by type of respondent (self vs proxy; p<0.05). Overall HUI3 utility values were significantly but weakly correlated with QOL Instrument scores for Being (r=0.37), Belonging (r=0.17), Becoming (r=0.20), and Overall QOL (r=0.28), and thus explain up to 14% of the variance (r 2 ). These findings suggest that although QOL and HRQOL are somewhat related conceptually, they are different constructs and need to be considered as separate dimensions of the lives of people with functional limitations.Important aspects of life for individuals with cerebral palsy (CP) include social participation and having meaning and purpose in life. During the past decade there has been a growing interest in concepts and measures associated with quality of life (QOL). Discussion continues about the meaning of various constructs of QOL, 1 as people work to describe the important conceptual variations among terms such as functional status, health status, and health-related quality of life (HRQOL). Livingston et al. 2 have reviewed the literature that reports various aspects of well-being among adolescents with CP. They concluded that measurement of QOL and HRQOL poses methodological challenges and observed that emphasis has traditionally been on functional or health status rather than personal perspectives of well-being.In brief, 'functional status' refers to 'the degree to which an individual is able to perform socially allocated roles free of physical or mental limitations'; 3 it focuses on the performance of specific tasks, such as activities of daily living. When people refer to 'health status' they generally consider broader medical and functional well-being, sometimes reported in terms of 'impact of disability'. 4 Assessments of QOL and HRQOL shift the emphasis on well-being to the realm of the subjective, toward outcomes not directly observable by a third party and not usually measured along a physical dimension. 5 Although the area of health or function measured in QOL and HRQOL may be either objective or subjective (such as the abil...

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“…Em contrapartida aos estudos que indicam mais baixo autoconceito em crianças com deficiência física, o fato de alguns estudos (SHIELDS et al, 2007;SCHUENGEL et al, 2006) não apontarem diferenças significativas nas dimensões do autoconceito, com exceção da competência atlética por Schuengel et al (2006), entre os grupos de crianças com e sem deficiência física nos parece bastante positivo, enfraquecendo a visão social/estigma que existe, principalmente entre os adultos, familiares e profissionais, de que a condição de deficiência física faz com que estas crianças possam não se sentir bem consigo mesmas (SHIELDS et al, 2006). Assim, ainda não há evidências suficientes para concluir que este constructo seja inferior em crianças com PC, de maneira equivalente aos achados de Shields e colaboradores, que realizaram revisão sistemática sobre o assunto no ano de 2006, com o propósito de verificar se a suposição de que crianças e jovens com PC frequentemente têm assumido autoconceito mais baixo é sustentada por pesquisas empíricas.…”

Section: Autoconceito Autoeficácia E Criança Com Deficiência Física unclassified

“…De 1.355 artigos inicialmente identificados, apenas seis atenderam aos critérios de inclusão: os participantes terem diagnóstico de PC com idade abaixo de 18 anos; a pesquisa ter comparado o autoconceito de crianças com PC com o de crianças sem deficiência ou com dados normativos; estudo completo em inglês; estudo ter registrado as variáveis mensuradas. A qualidade dos estudos identificados também foi considerada (SHIELDS et al, 2006).…”

Section: Autoconceito Autoeficácia E Criança Com Deficiência Física unclassified

Autoconceito e Autoeficácia em Crianças com Deficiência Física: Revisão Sistemática da Literatura1

Oliveira

Matsukura

Fontaine

2017

Rev. bras. educ. espec.

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RESUMO: a presente pesquisa objetivou identificar estudos que investigaram sobre o autoconceito e a autoeficácia em crianças com deficiência física, evidenciar e discutir sobre o que eles têm revelado acerca das autoavaliações nesta população. Trata-se de um levantamento bibliográfico com critérios de revisão sistemática da literatura. A busca foi realizada nas bases de dados eletrônicas MEDLINE, LILACS, SCIELO, Biblioteca Cochrane, Index Psi Periódicos, PubMed, PePSIC e Redalyc, utilizando os termos criança, autoeficácia, autoconceito, autopercepção, pessoas com deficiência e paralisia cerebral, além de seus respectivos em inglês. Após triagem e seleção dos artigos por meio de critérios de inclusão, sete estudos foram analisados. Observou-se que todos os estudos analisados são estrangeiros, apenas um deles aborda a autoeficácia e seis investigaram sobre o autoconceito especificamente em crianças com paralisia cerebral. Os resultados sugerem que não há conformidade sobre o autoconceito em crianças com paralisia cerebral, sem evidências suficientes para concluir que este constructo seja inferior nestas crianças. Em relação a autoeficácia, crianças com deficiência física se classificam como menos competentes que crianças com outros problemas no neurodesenvolvimento. Considera-se que novas investigações são necessárias para confirmar o que a literatura sugere sobre o autoconceito e a autoeficácia em crianças com deficiência física, incluindo investigação no cenário brasileiro e contribuindo para o conhecimento de profissionais da Educação e Saúde acerca das autoavaliações nesta população. PALAVRAS-CHAVE:Educação Especial. Criança. Autoconceito. Autopercepção. Paralisia cerebral. ABSTRACT:The present review aimed to identify studies, which investigated self-concept and self-efficacy in children with physical disabilities, highlights and discusses what they have revealed about the self-assessments in this population. It is a literature review with systematic review criteria. The search was conducted in MEDLINE, LILACS, SCIELO, Cochrane Library, Index Psi Journals, PubMed, PePSIC and Redalyc databases using the terms child, self-efficacy, self-concept, self-perception, disabled persons and cerebral palsy, as well as their respective in Brazilian Portuguese. After screening and selection of articles using the inclusion criteria, seven studies were analyzed. It was observed that all of the analyzed studies are foreign, just one of them deals with self-efficacy and six investigated self-concept specifically in children with cerebral palsy. Results suggest that there is no compliance on self-concept of children with cerebral palsy, and there is no sufficient evidence to conclude that this construct is lower in these children. Regarding self-efficacy, children with disabilities are classified as less competent than children with other problems in neurodevelopment. It is considered that further investigations are needed to confirm the literature suggestions about self-concept and self-efficacy in children with physical disa...

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A systematic review of the self‐concept of children with cerebral palsy compared with children without disability

Cited by 79 publications

References 45 publications

Promoting the Participation of Children With Disabilities in Sports, Recreation, and Physical Activities

Promoting the Participation of Children With Disabilities in Sports, Recreation, and Physical Activities

Quality of life and health‐related quality of life of adolescents with cerebral palsy

Autoconceito e Autoeficácia em Crianças com Deficiência Física: Revisão Sistemática da Literatura1

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