Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment

Maurice‐Stam, Heleen; Oort, Frans J.; Grootenhuis, Martha A.

doi:10.1002/pon.1260

Cited by 82 publications

(116 citation statements)

References 56 publications

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“…In this regard, emerging evidence shows that family functioning and parenting predict parent mental health in the context of childhood cancer. Higher parent distress is correlated with lower family supportiveness Fuemmeler et al 2003), higher family conflict Patino-Fernandez et al 2008), lower family satisfaction , poorer communication , and lower family cohesion Maurice-Stam et al 2008;Patino-Fernandez et al 2008). Longitudinal work yields similar results, with family supportiveness and cohesion predicting lower parent distress (Phipps et al 2005;Sloper 2000).…”

Section: Discussionsupporting

confidence: 72%

Family Adjustment to Childhood Cancer: A Systematic Review

Long

Marsland

2011

Clin Child Fam Psychol Rev

319

325

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This systematic review integrates qualitative and quantitative research findings regarding family changes in the context of childhood cancer. Twenty-eight quantitative, 42 qualitative, and one mixed-method studies were reviewed. Included studies focused on family functioning, marital quality, and/or parenting in the context of pediatric cancer, were written in English, and were published between 1996 and 2009. Overall, qualitative findings show that families alter roles, responsibilities, and day-to-day functioning to accommodate the needs of children with cancer. Although some degree of family reorganization is normative, the extent and impact of these changes varies. Quantitative work shows that mean levels of family functioning (e.g., cohesion, flexibility) are similar between families facing cancer and normative or comparison samples. However, families follow different trajectories of improvement, decline, or stability in family closeness and marital quality. Parenting has received limited quantitative research attention, but qualitative work suggests that parents perceive deeper bonds with ill children and may spoil or overprotect them. Conclusions support future work examining the influence of family-level variables on the adjustment of individual family members.

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Section: Discussionsupporting

confidence: 72%

Family Adjustment to Childhood Cancer: A Systematic Review

Long

Marsland

2011

Clin Child Fam Psychol Rev

319

325

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“…In most studies, generic measures of psychological maladjustment have been used to assess parental distress. Significant differences with the reference group were found in some [25], but not in all studies [26].…”

Section: Introductionmentioning

confidence: 95%

Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi‐center study

et al. 2010

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Egeler, R. M. (2010). Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi-center study. Psycho-oncology, 19(4), 368-375. DOI: 10.1002/pon.1571 Copyright Other than for strictly personal use, it is not permitted to download or to forward/distribute the text or part of it without the consent of the author(s) and/or copyright holder(s), unless the work is under an open content license (like Creative Commons).Take-down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim.Downloaded from the University of Groningen/UMCG research database (Pure): http://www.rug.nl/research/portal. For technical reasons the number of authors shown on this cover page is limited to 10 maximum. AbstractObjectives: Diagnosis and treatment of childhood cancer are continuous stressors in the lives of the entire family involved. Disease-related tools for the assessment of parental stress and adaptation are scarce. For that reason, the Pediatric Inventory for Parents (PIP), a diseaserelated measure, was translated into Dutch and its psychometric qualities were determined to prove its value. Methods: The PIP and three other measures (State-Trait Anxiety Inventory, General Health Questionnaire and Parenting Stress Index, Short Form) were administered to 174 parents of 107 children diagnosed with cancer in three university medical centers in the Netherlands.Results: Internal consistency (Crohnbach's a 5 0.94 and 0.95) and test-retest reliability (Pearson's r between 0.67 and 0.87) of the Dutch PIP total scales are satisfactory. Validity was illustrated by a high correlation between PIP-scores and anxiety and general stress. Confirmatory factor analysis showed acceptable fit to the data for the original four-factor and the one-factor models; the four-factor model showed slightly better fit.Conclusion: The PIP can be used in clinical practice to assess disease-related parental stress. Further psychometric testing is highly recommended.

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“…A diagnosis of childhood cancer is a dramatic event that disrupts the daily life and emotional well-being of all family members [54,55]. The psychosocial impact of a diagnosis of cancer in a child may continue for up to 2 years following treatment completion [54] and may, therefore, negatively influence the cognitive environment through its effect over an extended period of time on the quality of parent-child interactions [18][19][20][21][22] and the stability in the home environment [24]. As a result, it is possible that the language skills of neither ACB nor SIB are indicative of their innate potential.…”

Section: Acb Is In the Intermediate/stage 2 Of Survivorship (Withinmentioning

confidence: 99%

Indices of Language Outcome 11 Years After Intrathecal Chemotherapy for Acute Lymphoblastic Leukemia: A Sibling Case-Control Study

Lewis

Murdoch

2012

Pediatric Hematology and Oncology

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Studies are emerging that suggest that major language indices do not differentiate children treated for acute lymphoblastic leukemia (ALL) with risk-adapted intrathecal chemotherapy (ITC) from control children matched on age, gender, and educational level. No study to date has controlled for cognitive environment, an important variable influencing language achievement and outcome. This case-control study applies the deconfounding principle by using a sibling as a control to investigate language outcomes in a male child 11 years after administration of ITC for ALL at the age of 2 years 3 months. A comprehensive behavioral language test battery failed to differentiate the siblings on current language performance when descriptively compared, but neurophysiological assessment revealed that the ITC-treated child required more time and elicited a smaller N400 component compared to his sibling during picture-word matching. The findings suggest that in the absence of pretreatment performance indices, comparison with sibling achievement may supplement what is known on posttreatment language skill development drawn from comparative studies using children matched on age, sex, and educational level drawn from the community. The study's findings offer pilot data of language outcomes following ITC beyond the early stage of survivorship. The benefits and limitations of using siblings in research where the cognitive environment is known to make an important contribution to skill development are discussed.

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Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment

Cited by 82 publications

References 56 publications

Family Adjustment to Childhood Cancer: A Systematic Review

Family Adjustment to Childhood Cancer: A Systematic Review

Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi‐center study

Indices of Language Outcome 11 Years After Intrathecal Chemotherapy for Acute Lymphoblastic Leukemia: A Sibling Case-Control Study

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