Emotional Distress in 652 Dutch Very Long-term Survivors of Childhood Cancer, Using the Hospital Anxiety and Depression Scale (HADS)

Geest, Ivana M.M. van der; Dorp, Wendy van; Hop, Wim C. J.; Neggers, Sebastian J C M M; Vries, Andrica C H de; Pieters, Rob; Aarsen, Femke K.; Heuvel‐Eibrink, Marry M. van den

doi:10.1097/mph.0b013e31829f2799

Cited by 28 publications

(25 citation statements)

References 24 publications

(37 reference statements)

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“…A longitudinal study noted worsening physical health predicted greater depression, anxiety, and somatization . Some large studies report no differences in mental health outcomes between CCS and siblings, and no differences in anxiety and depression scores between CCS and population controls . Negative outcomes are generally associated with a diagnosis or treatment for CNS tumors, premorbid learning or emotional difficulties, perceived poor health, female gender, and low socioeconomic status…”

Section: Resultsmentioning

confidence: 99%

Psychosocial Follow‐Up in Survivorship as a Standard of Care in Pediatric Oncology

Lown

Phillips

Schwartz

et al. 2015

Pediatric Blood & Cancer

104

113

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Childhood cancer survivors (CCS) have a high risk of medical late effects following cancer therapy. Psychosocial late effects are less often recognized. Many CCS do not receive long-term follow-up (LTFU) care, and those who do are rarely screened for psychosocial late effects. An interdisciplinary team conducted a systematic review of qualitative and quantitative studies to assess social, educational, vocational, psychological, and behavioral outcomes along with factors related to receipt of LTFU care. We propose that psychosocial screening be considered a standard of care in long-term follow-up care and that education be provided to promote the use LTFU care starting early in the treatment trajectory.

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Section: Resultsmentioning

confidence: 99%

Psychosocial Follow‐Up in Survivorship as a Standard of Care in Pediatric Oncology

Lown

Phillips

Schwartz

et al. 2015

Pediatric Blood & Cancer

104

113

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“…Anxiety is more common among cancer survivors than among the general population [43]. Although most childhood cancer survivors have normal psychological functioning [44, 45, 46], distressed psychological states may give rise to multiple needs. Adult patients with cancer who do not have psychological clinical syndromes still experience worries, fears, anxiety, and other forms of psychological stress; they report fear about the future, inability to make plans, uncertainty, and a heightened sense of vulnerability.…”

Section: Discussionmentioning

confidence: 99%

The unmet emotional, care/support, and informational needs of adult survivors of pediatric malignancies

et al. 2016

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Purpose Describe the prevalence and predisposing factors for potentially modifiable unmet emotional, care/support, and information needs among adult survivors of childhood malignancies. Methods A randomly selected/stratified sample of participants in the Childhood Cancer Survivor Study (CCSS) responded to the CCSS-Needs Assessment Questionnaire (CCSS-NAQ) (n=1189; mean [SD] current age, 39.7 [7.7], range=26–61 years; 60.9% women; mean [SD] years since diagnosis, 31.6 [4.7]). Survivors self-reported demographic information, health concerns, and needs; diagnosis/treatment data were obtained from medical records. Adjusted proportional risk (PR) ratios were used to evaluate 77 separate needs. Results Fifty-four percent of survivors reported unmet psycho-emotional, 41%, coping, and 35%, care/support needs; 51%, 35%, and 33%, respectively, reported unmet information needs related to cancer/treatment, the health care system, and surveillance. Female sex and annual income <$60K were associated with multiple needs; fewer needs were linked to diagnosis/years since/ or age at diagnosis. Having moderate/extreme cancer-related anxiety/fear was associated with all needs, including a >6-fold increased prevalence for help dealing with “worry” (PR=6.06; 95% CI, 3.79 – 9.69), anxiety (PR=6.10; 95% CI, 3.82–9.72), a >5-fold increased prevalence for “needing to move on with life” (PR=5.56; 95% CI, 3.34–9.25), and dealing with “uncertainty about the future” (PR=5.50; 95% CI, 3.44–8.77). Radiation exposure and perceived health status were related to 42 and 29 needs, respectively. Conclusions Demographic factors, disease/treatment characteristics, and intrapersonal factors can be used to profile survivors’ unmet emotional, care/support, and information needs. Implications for Survivors These data can be used to enhance provider-survivor communication, identify at-risk subsamples, and appraise core intervention content.

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“…In contrast to CCSS, a cohort of Dutch childhood cancer survivors found no difference in anxiety or depression between the survivors and controls. 19 In the CCSS cohort, those with chronic health conditions such as cardiovascular, endocrine or pulmonary issues also had higher levels of anxiety and PTSS. 20 …”

Section: Anxiety and Depression In Different Populations Of Survivorsmentioning

confidence: 92%

Anxiety and Depression in Cancer Survivors

Syrjala

2017

Medical Clinics of North America

227

146

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Synopsis Most cancer survivors adjust well to life after cancer but some experience persisting negative mood such as cancer-related fears, post-traumatic stress, anxiety, or depression. Mood fluctuations may not reach criteria for a clinical diagnosis but sub-clinical symptoms can interfere with quality of life. Females, and adolescents and young adults are particularly at risk for mood disturbances. Behavioral interventions such as cognitive behavioral therapy and pharmacological treatments can effectively treat these distressing emotions. Much of the research on managing emotional needs after cancer has been completed with breast cancer survivors and more work is needed with diverse groups of survivors.

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Emotional Distress in 652 Dutch Very Long-term Survivors of Childhood Cancer, Using the Hospital Anxiety and Depression Scale (HADS)

Abstract: Emotional distress does not occur more often in childhood cancer survivors than in the normal population. No disease-related or treatment-related variable was independently associated with emotional distress.

Cited by 28 publications

References 24 publications

Psychosocial Follow‐Up in Survivorship as a Standard of Care in Pediatric Oncology

Psychosocial Follow‐Up in Survivorship as a Standard of Care in Pediatric Oncology

The unmet emotional, care/support, and informational needs of adult survivors of pediatric malignancies

Anxiety and Depression in Cancer Survivors

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