Embryo donation in New Zealand: a pilot study

Goedeke, Sonja; Payne, Deborah

doi:10.1093/humrep/dep116

Cited by 20 publications

(16 citation statements)

References 17 publications

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“…Participants were cognizant of a child's rights to genetic heritage with a philosophy valuing transparency, honesty, and identity needs for the donor-conceived child and recognizing a child's right to disclosure about circumstances of conception and to biological knowledge. The results of this study are congruent with other studies showing that prospective recipient parents have donor information needs, including knowledge of biological lineage for their children (49)(50)(51) with an increasing proportion of recipient parents now wanting to disclose circumstances of conception (52). Whether donor information exchange needs can be reliably fulfilled through international CBRC donor conception programs, however, has not been put to the empirical test.…”

Section: Discussionsupporting

confidence: 83%

Motivations and experiences of patients seeking cross-border reproductive care: the Australian and New Zealand context

Rodino

Goedeke

Nowoweiski

2014

Fertility and Sterility

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Section: Discussionsupporting

confidence: 83%

Motivations and experiences of patients seeking cross-border reproductive care: the Australian and New Zealand context

Rodino

Goedeke

Nowoweiski

2014

Fertility and Sterility

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“…The experiences of those who are embryo donors and recipients are rare; only three qualitative studies exist across Australia and New Zealand (de Lacey, 2007a; Millbank et al ., 2013a; Goedeke et al ., 2009, 2015), each drawing upon a small pool of interviewees. The de Lacey study interviewed 15 people (seven women and four couples) who donated embryos (de Lacey, 2007a).…”

Section: Introductionmentioning

confidence: 99%

Embryo donation and understanding of kinship: the impact of law and policy

2016

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STUDY QUESTIONWhat is the impact of law and policy upon the experience of embryo donation for reproductive use?SUMMARY ANSWERAccess to, and experience of, embryo donation are influenced by a number of external factors including laws that impose embryo storage limits, those that frame counselling and approval requirements and allow for, or mandate, donor identity disclosure.WHAT IS KNOWN ALREADYTo date only three qualitative studies in Australia and New Zealand have been completed on the experience of embryo donation for reproductive purposes, each with a small cohort of interviewees and divergent findings.STUDY DESIGN, SIZE, DURATIONEmbryo donors, recipients, and would-be donors were interviewed between July 2010 and July 2012, with three additional interviews between September 2015 and September 2016, on their experiences of embryo donation. The sampling protocol had the advantage of addressing donation practices across multiple clinical sites under distinct legal frameworks.PARTICIPANTS/MATERIALS, SETTINGS, METHODSParticipants were recruited from five Australian jurisdictions and across 11 clinical sites. Twenty-six participants were interviewed, comprising: 11 people who had donated embryos for the reproductive use of others (nine individuals and one couple), six recipients of donated embryos (four individuals and one couple) and nine individuals who had attempted to donate, or had a strong desire to donate, but had been prevented from doing so. In total, participants reported on 15 completed donation experiences; of which nine had resulted in offspring to the knowledge of the donor.MAIN RESULTS AND THE ROLE OF CHANCEDonors positively desired donation and did not find the decision difficult. Neither donors nor recipients saw the donation process as akin to adoption . The process and practice of donation varied considerably across different jurisdictions and clinical sites.LIMITATIONS, REASONS FOR CAUTIONBecause the pool of donors and recipients is small, caution must be exercised over drawing general conclusions. Saturation was not reached on themes of counselling models and future contact.WIDER IMPLICATIONS OF THE FINDINGSThe differences between our findings and those of a previous study are attributable to varied legal and counselling regimes. Therefore, law and policy governing embryo storage limits, counselling protocols and identity disclosure shape the donation experience and how it is described.STUDY FUNDING/COMPETING INTEREST(S)This research was supported by Discovery Project Grants DP 0986213 and 15010157 from the Australian Research Council and additional funding from UTS: Law. There are no conflicts of interest to declare.TRIAL REGISTRATION NUMBERNot applicable.

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“…A further inferred danger of limitless storage is the increasing numbers of embryos in storage across the world (Goedeke and Payne 2009). This is occurring across Western developed countries such as the United States and France (Michelmann and Nayudu 2006, 140).…”

Section: Tick Tock Goes the Clock 301mentioning

confidence: 99%

Tick Tock Goes the Clock: Rethinking Policy and Embryo Storage Limits

Stuhmcke

2014

Fem Leg Stud

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Cryopreservation of human embryos remains, in many jurisdictions, a critical component of the use of the technology of in vitro fertilisation (IVF) in assisted reproduction. However, although the reasons for the freezing of reproductive material-such as cost effectiveness and reducing risks of IVF-are a constant across jurisdictions, the desirable length of storage remains subject to ongoing regulatory debate. Internationally embryo storage limits are variable. This article features data from a recent Australian research project which explores individual attitudes, desires and understandings of law of IVF patients (and their partners) who had or who have embryos in storage. This article uses interviews from the study to argue that storage limits, like any apparently neutral regulatory tool, apply unequally causing unintended physical, mental and emotional harm-particularly to women. This analysis of storage limits exposes the interaction of time, science and law to create, apply and enforce norms and practices of 'natural' embryo storage, suggesting that the imposition of inflexible legislative restrictions upon embryo storage are socially contingent and value laden rather than 'natural' or 'scientific'. This outcome has relevance to wider debates over assisted reproduction policies, suggesting that legal frameworks should adopt more flexibility in application to the patients who use this technology.

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Embryo donation in New Zealand: a pilot study

Abstract: The emphasis on genetic lineage as a priority in decision-making needs to be recognized especially within contexts where guidelines emphasize donor registration and cultures are shaped by open-adoption practices and the importance of knowing one's lineage.

Cited by 20 publications

References 17 publications

Motivations and experiences of patients seeking cross-border reproductive care: the Australian and New Zealand context

Motivations and experiences of patients seeking cross-border reproductive care: the Australian and New Zealand context

Embryo donation and understanding of kinship: the impact of law and policy

Tick Tock Goes the Clock: Rethinking Policy and Embryo Storage Limits

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