2020
DOI: 10.1186/s13643-020-01503-6
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Elevating the uses of storytelling approaches within Indigenous health research: a critical and participatory scoping review protocol involving Indigenous people and settlers

Abstract: Background There is a complicated and exploitative history of research with Indigenous peoples and accompanying calls to meaningfully and respectfully include Indigenous knowledge in healthcare. Storytelling approaches that privilege Indigenous voices can be a useful tool to break the hold that Western worldviews have within the research. Our collaborative team of Indigenous and non-Indigenous researchers, and Indigenous patients, Elders, healthcare providers, and administrators, will conduct a critical partic… Show more

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Cited by 17 publications
(12 citation statements)
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“…Critical interactionist analytical approaches also use narratives to facilitate shifting the discourse away from the dominant academic/social voice and centering the perspectives of marginalized groups, so that 'their lived experience becomes the vehicle through which new knowledge is not only created but also made relevant to the communities of concern' [37:499]. Narrative-and storytelling-methods are increasingly being used in public health research [40][41][42][43][44] because they enable healthcare providers and policy makers to virtually experience, and thus better understand and address, the multi-level effects of social determinants on their patients' lives, health, and healthcare experiences [13,14,[42][43][44][45]. The results of the quantitative multivariable analyses also supported the connections described by focus group participants between socioeconomic, psychological, health, and healthcare system factors and the healthcare access, economic barrier, health behavior and mental health outcomes we examined.…”
Section: Discussionmentioning
confidence: 99%
“…Critical interactionist analytical approaches also use narratives to facilitate shifting the discourse away from the dominant academic/social voice and centering the perspectives of marginalized groups, so that 'their lived experience becomes the vehicle through which new knowledge is not only created but also made relevant to the communities of concern' [37:499]. Narrative-and storytelling-methods are increasingly being used in public health research [40][41][42][43][44] because they enable healthcare providers and policy makers to virtually experience, and thus better understand and address, the multi-level effects of social determinants on their patients' lives, health, and healthcare experiences [13,14,[42][43][44][45]. The results of the quantitative multivariable analyses also supported the connections described by focus group participants between socioeconomic, psychological, health, and healthcare system factors and the healthcare access, economic barrier, health behavior and mental health outcomes we examined.…”
Section: Discussionmentioning
confidence: 99%
“…We also consulted with leaders in the Indigenous research community who, along with the Elder, reviewed our talking circle questions and provided feedback. This initiative resulted in developing important partnerships with Indigenous patients and community members, which has enabled our ongoing research to be authentically cocreated with a diverse team of Indigenous peoples and settlers (Rieger et al, 2020).…”
Section: Methods and Datamentioning
confidence: 99%
“…The early collaboration during our digital storytelling workshop has helped us to develop relevant, acceptable, and feasible research plans guided by direct input from our patient partners, and to move forward together with a Two-eyed Seeing approach. The purpose of this study is to identify and examine how storytelling has been used as a method within Indigenous health research (Rieger et al, 2020). This second study is the next step in our work together and will lead to future studies in which we employ digital storytelling as a qualitative research method to explore First Nations peoples' experiences of cancer and other health and illness experiences.…”
Section: Further Reflections and Future Workmentioning
confidence: 99%
“…Recognizing relationships as fundamental to the collaboration and useful research outcomes means taking time to learn about shared interests and develop mutual respect and trust—one step toward decolonizing the research process. Genuine relationships generate research focused on issues relevant to the community, adoption of methods that are accessible and respectful (Montreuil et al, 2019), and strategies for interpreting and sharing findings in keeping with the community’s cultural characteristics (Rieger et al, 2020; Tremblay et al, 2020). It is incumbent on lead researchers to budget for and provide the training and support necessary to sustain patient and community collaborators’ participation.…”
Section: Patient and Community Engagementin Researchmentioning
confidence: 99%