Electronic Health Record Portal Use by Family Caregivers of Patients Undergoing Hematopoietic Cell Transplantation: United States National Survey Study

Gupta, Vibhuti; Raj, Minakshi; Hoodin, Flora; Yahng, Lilian; Braun, Thomas; Choi, Sung Won

doi:10.2196/26509

Cited by 15 publications

(17 citation statements)

References 32 publications

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“…Our finding that caregivers with depression were less likely to use their care recipient’s portal was in contrast with other recent research that finds the opposite relationship [ 32 ]. Although it is possible that the use of the care recipient’s patient portal is a way of gathering information if the depression is related to caregiving or that using the portal actually facilitates social engagement by enabling the caregiver to communicate with information or with the health care system, it is also possible that the use of a care recipient’s patient portal could actually exacerbate depression or anxiety—an area requiring further study.…”

Section: Discussioncontrasting

confidence: 99%

Evaluation of Family Caregivers’ Use of Their Adult Care Recipient’s Patient Portal From the 2019 Health Information National Trends Survey: Secondary Analysis

Raj

Iott

2021

JMIR Aging

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Background Patient engagement is critical for realizing the value of telehealth modalities such as the patient portal. Family caregiver engagement may also be critical for facilitating the use of the patient portal among adult patients, including older adults. Objective This study aims to analyze the 2019 Health Information National Trends Survey to characterize family caregivers’ use of their care recipient’s patient portal in terms of sociodemographic, health, and caregiving characteristics and caregivers’ use of their own portal. Methods We conducted a secondary analysis of cross-sectional data from the National Cancer Institute’s Health Information National Trends Survey 5 Cycle 3. This survey was administered to 5438 US adults between January and May 2019. We analyzed data from 320 respondents who were identified as family caregivers. We created measures to reflect family caregivers’ use of their care recipient’s and their own portal, caregiver demographic and caregiving characteristics, and care recipient health characteristics. Results Over half of the caregivers (179/320, 55.9%) reported using their own portal at least once, whereas only one-third (105/320, 32.8%) reported using their care recipient’s record in the previous 12 months. Caregivers using their own portal were significantly more likely to use their care recipient’s portal (odds ratio 11.18; P<.001). Conclusions Policies should enable patients to designate family caregivers who can access their patient portal. Providers could screen caregivers for challenges in their caregiving responsibilities that may be addressed through the portal so they can better support their adult relatives. Interventions to support family caregivers, especially older caregivers, in using their own portal may facilitate their use of their care recipient’s portal.

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Section: Discussioncontrasting

confidence: 99%

Evaluation of Family Caregivers’ Use of Their Adult Care Recipient’s Patient Portal From the 2019 Health Information National Trends Survey: Secondary Analysis

Raj

Iott

2021

JMIR Aging

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“…We report findings from our National Caregiver Health Survey, 30 , 31 which is part of a larger, multi-phase project. 19 , 30 , 32 – 40 The survey was implemented by the Center for Survey Research at Indiana University (LY).…”

Section: Methodsmentioning

confidence: 99%

“…We used a subset of 16 items from the 28-item Brief COPE, which assesses the self-reported frequency of use of 14 different coping strategies to deal with a particular situationally specific life event (in this case, self-care and caregiving for a person undergoing HCT), including self-distraction, active coping, denial, alcohol and drug use, use of emotional support, use of instrumental support, behavioral disengagement, venting, positive framing, planning the use of humor, acceptance, and religion. 31 , 43 We used exploratory factor analysis to reduce the 16 items into a smaller set of factors. Based upon a scree plot, we found that four factors were sufficient, with eigenvalues of 1.85, 1.52, 1.23, 0.83, and 34% of total variance explained.…”

Section: Methodsmentioning

confidence: 99%

“… 26 – 28 However, there remains a gap in the literature on the use of wearables and mHealth applications among older caregivers of patients with cancer. 29 Thus, the current study drew upon our National Caregiver Health Survey of caregivers of HCT patients 30 , 31 to examine the association between caregiving characteristics, including care partner–recipient relationship, age, coping style, and different types of digital health technologies (i.e. health behavior-specific) used.…”

Section: Introductionmentioning

confidence: 99%

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Evaluating mobile Health technology use among cancer caregivers in the digital era

et al. 2022

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Introduction Digital health technology-based interventions have the potential to support cancer caregivers in caregiving responsibilities and in managing their own health and well-being. The objective of this study was to examine the association between caregiving characteristics and different types of digital health technologies used in a national sample of caregivers of patients undergoing hematopoietic cell transplantation (HCT). Methods We conducted an online, cross-sectional survey of 948 HCT caregivers. Results Spousal caregivers comprised nearly one-third of respondents (27.1%) with a median age of 59 years (range: 18–80 years), compared with parents (32.9%: 38 years), adult children (28.9%: 38 years), and other (11.1%; e.g. friend, other family member: 36 years). Almost two-thirds (65.4%) of all respondents reported using an app for fitness or step counting and 41.3% reported using a smartwatch. However, spousal caregivers were the least likely group to use mobile apps (0.72; P < 0.005) or smartwatches (OR = 0.46; P < 0.005) compared with parent caregivers in models adjusted for demographics and coping style. Caregiving for six months or greater was associated with the use of fewer apps compared with caregiving for less than six months in adjusted models (OR = 0.80, P < 0.005). Caregivers of patients receiving an allogeneic transplant (i.e. non-self-donor) used more apps on average than caregivers of patients receiving an autologous transplant (i.e. self-donor) in adjusted models (OR = 1.36, P < 0.005). Conclusion Digital health technologies reflect promising avenues for supporting cancer caregivers. While digital technologies are becoming increasingly pervasive, older caregivers remain an underserved population. Future research should integrate older adult caregivers in the co-design and development activities of technology-driven caregiver support products.

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“…(45,45%), são do ano de 2020 13,14,[16][17][18] , seguido do ano de 2021 com 2 (18,18%) das publicações 15,19 18,20 .…”

Section: Resultsunclassified

Aplicativos móveis para pacientes pós transplante de medula óssea: revisão integrativa

Sanches¹,

Herbert²,

Rabin³

2022

Revista Recien

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Revisão integrativa da literatura com objetivo de analisar produções científicas sobre uso de aplicativos móveis na área de Transplante de Medula Óssea. Busca realizada com os descritores Bone Marrow Transplantation, Hematopoietic Stem Cell Transplantation, Mobile Applications, nas bases de dados SCOPUS, Pubmed e LILACS, em abril de 2021. Encontrou-se 46 publicações, destas 11 foram incluídas na revisão e classificadas por: base de dados, título, autores, país de origem, periódico e ano de publicação, delineamento, grau de recomendação, nível de evidência, tema, objetivo e resultados. Dos artigos 5 (45,45%), publicados em 2020, 9 (81,81%) desenvolvidos nos Estados Unidos, 10 (90,90%), possuem grau de recomendação B e 5 (45,45%) apresentam nível de evidência 2c. Conclui-se o êxito dos aplicativos móveis como produto de tecnologia em saúde, porém é necessário investimento em mais estudos buscando disseminar a tecnologia em saúde e melhora nos níveis de evidência e qualidade das publicações na área. Descritores: Aplicativos Móveis, Transplante de Medula Óssea, Transplante de Células-Tronco Hematopoéticas, Revisão. Mobile apps for post bone marrow transplant patients: integrative review Abstract: Integrative literature review aiming to analyze scientific productions on the use of mobile applications in the area of Bone Marrow Transplantation. Search performed with the descriptors Bone Marrow Transplantation, Hematopoietic Stem Cell Transplantation, Mobile Applications, in SCOPUS, Pubmed and LILACS databases, in April 2021. 46 publications were found, of which 11 were included in the review and classified by: database data, title, authors, country of origin, journal and year of publication, design, degree of recommendation, level of evidence, theme, objective and results. Of the 5 articles (45.45%) published in 2020, 9 (81.81%) developed in the United States, 10 (90.90%) have a degree of recommendation B and 5 (45.45%) have a level of evidence 2c. The success of mobile applications as a health technology product is concluded, but investment in more studies is needed to disseminate health technology and improve the levels of evidence and quality of publications in the area. Descriptors: Mobile Applications, Bone Marrow Transplantation, Hematopoietic Stem Cell Transplantation, Review. Aplicaciones móviles para pacientes post trasplante de médula ósea: revisión integradora Resumen: Revisión integrativa de la literatura con el objetivo de analizar las producciones científicas sobre el uso de aplicaciones móviles en el área del Trasplante de Médula Ósea. Búsqueda realizada con los descriptores Bone Marrow Transplantation, Hematopoytic Stem Cell Transplantation, Mobile Applications, en las bases de datos SCOPUS, Pubmed y LILACS, en abril de 2021. Se encontraron 46 publicaciones, de las cuales 11 fueron incluidas en la revisión y clasificadas por: datos de la base de datos, título, autores, país de origen, revista y año de publicación, diseño, grado de recomendación, nivel de evidencia, tema, objetivo y resultados. De los 5 artículos (45,45%) publicados en 2020, 9 (81,81%) desarrollados en Estados Unidos, 10 (90,90%) tienen un grado de recomendación B y 5 (45,45%) tienen un nivel de evidencia 2c. Se concluye el éxito de las aplicaciones móviles como producto de tecnología sanitaria, pero se necesita invertir en más estudios para difundir la tecnología sanitaria y mejorar los niveles de evidencia y calidad de las publicaciones en el área. Descriptores: Aplicaciones Móviles, Trasplante de Médula Ósea, Trasplante de Células Madre Hematopoyéticas, Revisión.

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Electronic Health Record Portal Use by Family Caregivers of Patients Undergoing Hematopoietic Cell Transplantation: United States National Survey Study

Cited by 15 publications

References 32 publications

Evaluation of Family Caregivers’ Use of Their Adult Care Recipient’s Patient Portal From the 2019 Health Information National Trends Survey: Secondary Analysis

Evaluation of Family Caregivers’ Use of Their Adult Care Recipient’s Patient Portal From the 2019 Health Information National Trends Survey: Secondary Analysis

Evaluating mobile Health technology use among cancer caregivers in the digital era

Aplicativos móveis para pacientes pós transplante de medula óssea: revisão integrativa

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