Evaluation of Family Caregivers’ Use of Their Adult Care Recipient’s Patient Portal From the 2019 Health Information National Trends Survey: Secondary Analysis

Raj, Minakshi; Iott, Bradley

doi:10.2196/29074

Cited by 5 publications

(9 citation statements)

References 31 publications

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“…Greater health literacy and educational level (5 of 8 articles), 25 , 26 , 45 , 52 , 53 female gender (5 articles), 25 , 45 , 47 , 48 , 54 and being a family member (6 articles) 25 , 26 , 42 , 45 , 47 , 53 were facilitators of care partner use of the portal. Evidence regarding care partner race (5 articles) 25 , 45 , 53 , 54 , 55 and household income (5 articles) 21 , 25 , 45 , 53 , 55 was mixed. Two articles 26 , 54 examined care partners’ use of their own portal and both found it to be a facilitator.…”

Section: Resultsmentioning

confidence: 99%

“…Evidence regarding care partner race (5 articles) 25 , 45 , 53 , 54 , 55 and household income (5 articles) 21 , 25 , 45 , 53 , 55 was mixed. Two articles 26 , 54 examined care partners’ use of their own portal and both found it to be a facilitator.…”

Section: Resultsmentioning

confidence: 99%

“…Greater health literacy and educational level (5 of 8 articles), female gender (5 articles), and being a family member (6 articles) were facilitators of care partner use of the portal. Evidence regarding care partner race (5 articles) and household income (5 articles) was mixed.…”

Section: Resultsmentioning

confidence: 99%

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Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations

et al. 2022

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ImportanceFamily and other unpaid care partners may bridge accessibility challenges in interacting with the patient portal, but the extent and nature of this involvement is not well understood.ObjectiveTo inform an emerging research agenda directed at more purposeful inclusion of care partners within the context of digital health equity by (1) quantifying care partners’ uptake and use of the patient portal in adolescent and adult patients, (2) identifying factors involving care partners’ portal use across domains of the System Engineering Initiative for Patient Safety model, and (3) assessing evidence of perceived or actual outcomes of care partners’ portal use.Evidence ReviewFollowing Arksey and O’Malley’s methodologic framework, a scoping review of manuscripts published February 1 and March 22, 2022, was conducted by hand and a systematic search of PubMed, PsycInfo, Embase, and Web of Science. The search yielded 278 articles; 125 were selected for full-text review and 41 were included.FindingsFew adult patient portal accounts had 1 or more formally registered care partners (&lt;3% in 7 of 7 articles), but care partners commonly used the portal (8 of 13 contributing articles reported &gt;30% use). Care partners less often authored portal messages with their own identity credentials (&lt;3% of portal messages in 3 of 3 articles) than with patient credentials (20%-60% of portal messages in 3 of 5 articles). Facilitators of care partner portal use included markers of patient vulnerability (13 articles), care partner characteristics (15 articles; being female, family, and competent in health system navigation), and task-based factors pertaining to ease of information access and care coordination. Environmental (26 articles) and process factors (19 articles, eg, organizational portal registration procedures, protection of privacy, and functionality) were identified as influential to care partner portal use, but findings were nuanced and precluded reporting on effects. Care partner portal use was identified as contributing to both patient and care partner insight into patient health (9 articles), activation (7 articles), continuity of care (8 articles), and convenience (6 articles).Conclusions and RelevanceIn this scoping review, care partners were found to be infrequently registered for the patient portal and more often engaged in portal use with patient identity credentials. Formally registering care partners for the portal was identified as conferring potential benefits for patients, care partners, and care quality.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations

et al. 2022

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“…Training on portals among patients and caregivers can encourage use and dispel concerns about technology and security risks. Allowing patients to set boundaries on what information can be accessed by caregivers will also be important for protecting patient privacy [ 36 ].…”

Section: Discussionmentioning

confidence: 99%

Physicians’ Perspectives on Inpatient Portals: Systematic Review

Banguilan¹,

Sonnenberg²,

Chen³

2022

Interact J Med Res

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Background Inpatient portals are online platforms that allow patients to access their personal health information and monitor their health while in the acute care setting. Despite their potential to improve quality of care and empower patients and families to participate in their treatment, adoption remains low. Outpatient portal studies have shown that physician endorsement can drive patients' adoption of these systems. Insights on physicians’ perspectives on use of these platforms can help improve patient and physician satisfaction and inpatient portal uptake. Objective The purpose of this systematic review is to better understand physicians’ perspectives toward inpatient portals. Methods A systematic literature review was conducted for studies published between 1994 and November 2021 using keywords for physicians’ perspectives toward patient portals and personal health records. Databases included PubMed, MEDLINE, Web of Science, and Scopus. Articles solely focused on nonphysician clinicians or addressing only outpatient settings or shared notes were excluded from this review. Two reviewers performed title, abstract, and full-text screening independently. Bias assessment was performed using the JBI SUMARI Critical Appraisal Tool (Joanna Briggs Institute). Inductive thematic analysis was done based on themes reported by original authors. Data were synthesized using narrative synthesis and reported according to overarching themes. Results In all, 4199 articles were collected and 9 included. All but 2 of the studies were conducted in the United States. Common themes identified were communication and privacy, portal functionality and patient use, and workflow. In studies where physicians had no prior patient portal experience, concerns were expressed about communication issues created by patients’ access to laboratory results and potential impact on existing workflow. Concerns about negative communication impacts were not borne out in postimplementation studies. Conclusions Physicians perceived inpatient portals to be beneficial to patients and saw improvement in communication as a result. This is consistent with outpatient studies and highlights the need to improve training on portal use and include physicians during the design process. Health care organizations and information technology entities can take steps to increasing clinician comfort. Physician concerns involving patient portal usage and managing patient expectations also need to be addressed. With improved clinician support, initial pessimism about communication and workload issues can be overcome. Limitations of this review include the small number of pre- and postimplementation studies found. This is also not a review of perspectives on open notes, which merits separate discussion.

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“…Electronic health records (EHR) were designed to safely store transactional patient information and increase communication among healthcare team members (1). Over time, patient-facing EHR portals invited patients to access their health information remotely and communicate with healthcare providers securely (2–9). A secondary analysis of the 2019 Health Information National Trends Survey found that more than 55% of patients use a portal to access their health record electronically (3).…”

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confidence: 99%

Utilization of EHR to Improve Support Person Engagement in Health Care for Patients With Chronic Conditions

Hodgson

Welch

Tucker

et al. 2022

Journal of Patient Experience

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Innovations in electronic health record (EHR) systems invite new patient and family engagement methods and create opportunities to reduce healthcare disparities. However, many patients and their identified support persons (ie, proxies) are unsure how to interface with the technology. This phenomenological qualitative study served as a pilot study to investigate the patient, proxy, and provider lived experiences utilizing patient-facing EHR portals. Individual interviews and focus groups were utilized to collect qualitative data from 21 patient, proxy, and healthcare provider participants across 3 time points. Colaizzi's phenomenological data analysis method was utilized to interpret the data. Four themes emerged highlighting critical benefits and obstacles for patients and support persons interfacing with a patient portal: (a) agency, (b) connection, (c) support, and (d) technology literacy. Results help highlight strategies and dispel myths essential to advancing patient and family engagement using EHR patient portal systems. The study's outcomes reflect recommendations for onboarding proxies and improving patient/family engagement and family-centered care models.

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Evaluation of Family Caregivers’ Use of Their Adult Care Recipient’s Patient Portal From the 2019 Health Information National Trends Survey: Secondary Analysis

Cited by 5 publications

References 31 publications

Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations

Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations

Physicians’ Perspectives on Inpatient Portals: Systematic Review

Utilization of EHR to Improve Support Person Engagement in Health Care for Patients With Chronic Conditions

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