Effects of social support, stress, and level of Illness on caregiving of children with AIDS

Hughes, Cynthia B.; Caliandro, Gloria

doi:10.1016/s0882-5963(96)80079-0

Cited by 31 publications

(23 citation statements)

References 41 publications

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“…Parents reported a broad range of competing needs as well. Our study and other studies have indicated that HIV-infected parents may have only limited social support from families and friends [32][33][34][35] ; by comparison, previous studies conducted with physically ill and general samples found that only 2% of the people had no close friends or relatives. 36,37 About 20% of the children lived with neither the respondent nor the other parent.…”

Section: Discussionsupporting

confidence: 44%

HIV-infected parents and their children in the United States

et al. 2000

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OBJECTIVES: This study sought to determine the number, characteristics, and living situations of children of HIV-infected adults. METHODS: Interviews were conducted in 1996 and early 1997 with a nationally representative probability sample of 2864 adults receiving health care for HIV within the contiguous United States. RESULTS: Twenty-eight percent of infected adults in care had children. Women were more likely than men to have children (60% vs 18%) and to live with them (76% vs 34%). Twenty-one percent of parents had been hospitalized during the previous 6 months, and 10% had probably been drug dependent in the previous year. Parents continued to have children after being diagnosed with HIV: 12% of all women conceived and bore their youngest child after diagnosis, and another 10% conceived before but gave birth after diagnosis. CONCLUSIONS: Clinical and support services for people affected by the HIV epidemic should have a family focus.

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Section: Discussionsupporting

confidence: 44%

HIV-infected parents and their children in the United States

et al. 2000

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“…Conducting further qualitative or mixed methods studies may therefore help us understand these concepts from the perspective of Iranian caregivers. This subscale showed a poor internal consistency compared to the other subscales in studies conducted in other countries and on different groups of caregivers as well (13,19,21,22,35,36). The test-retest reliability and stability of the scale and the ICC showed favorable values, since ICC ≥ 0.8 indicates a favorable stability (33).…”

Section: Discussionmentioning

confidence: 98%

Validity and Reliability of the Persian Version of the Revised Caregiving Appraisal Scale in Iranian Family Caregivers of Older Adults with Dementia

Farhadi

Foroughan

Mohammadi

et al. 2016

Iran Red Crescent Med J

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Background: Caregivers' self-assessments of the care they provide are the main vehicles that help explore their experiences and are thought to have a major role in care outcomes. The rising number of people with dementia and their need for care provided within the family makes family caregiving a major topic for study and evaluation. Objectives: The present study was conducted to assess the psychometric characteristics of the Persian version of the revised caregiving appraisal scale (RCAS) in family caregivers of older adults with dementia. Methods: In this cross-sectional methodological study, 236 family caregivers were recruited through convenience sampling. The revised caregiving appraisal scale (RCAS) was translated using the international quality of life assessment (IQOLA) protocol, and then a panel of experts examined its face and content validities. To ensure construct validity, the translated revised caregiving appraisal scale (RCAS) was completed by 236 family caregivers, and the factor construct of the scale was assessed using five initial factors for confirmatory factor analysis. Internal consistency was confirmed using Cronbach's alpha, and test-retest using the intraclass correlation coefficient (ICC). The confirmatory factor analysis was performed with LISREL-8.8 software for Windows®.

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“…It does not appear to be the caregiver role per se that causes strain but the extent to which the role impedes the ability of caregivers to fulfill their own needs and function in other roles. Social support, including emotional support and assistance from spouses and informational support from health care professionals, has been shown to help caregivers cope with the daily stresses of caregiving (Hughes and Caliandro 1996;Kuster and Merkle 2004;Stewart et al 1994). Such support for single mothers, in particular, might be particularly critical.…”

Section: Discussionmentioning

confidence: 99%

Impact of Spina Bifida on Parental Caregivers: Findings from a Survey of Arkansas Families

Grosse¹,

Flores²,

Ouyang³

et al. 2009

J Child Fam Stud

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The well-being of caregivers of children with spina bifida and other conditions is an important topic. We interviewed the primary caregivers of 98 children aged 0-17 years with spina bifida sampled from a populationbased birth defects registry in Arkansas and the caregivers of 49 unaffected children. Measures of caregiver wellbeing were compared between the groups and by level of lesion (sacral, lower lumbar, and upper lumbar/thoracic). We performed linear and logistic regression analysis to test the associations controlling for other characteristics. Among caregivers of children with spina bifida, the average number of hours of sleep was significantly less than reported by other caregivers and was associated with lesion level among children less than 7 years of age. Significant associations, often varying by child age, were also found for the caregiver's reports of lower Quality of Well-Being (QWB) score, often feeling blue, rarely feeling happy, fair or poor health, lack of leisure days, and not hosting friends, but no significant association was found with not visiting friends. The intensive long-term care required by children with spina bifida, particularly by those with higher lesions, can negatively impact caregiver health and well-being. Support for these caregivers is needed.

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Effects of social support, stress, and level of Illness on caregiving of children with AIDS

Cited by 31 publications

References 41 publications

HIV-infected parents and their children in the United States

HIV-infected parents and their children in the United States

Validity and Reliability of the Persian Version of the Revised Caregiving Appraisal Scale in Iranian Family Caregivers of Older Adults with Dementia

Impact of Spina Bifida on Parental Caregivers: Findings from a Survey of Arkansas Families

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