Effects of family-centered empowerment intervention on stress, anxiety, and depression among family caregivers of patients with epilepsy

Etemadifar, Shahram; Heidari, Maryam; Jivad, Nahid; Masoudi, Reza

doi:10.1016/j.yebeh.2018.08.030

Cited by 52 publications

(45 citation statements)

References 24 publications

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“…Most of the time, mothers undertake the job of nursing the sick child and fathers played an assistive role. Etemadifar and colleague [ 15 ] reported that the majority of caregivers for patients with epilepsy are female housekeepers who care for many hours daily which significantly increase their levels of stress, anxiety, and depression. Mothers always had to be highly alert and vigilant because of the uncertainty of where and how their child will get seizures which made them over-protective and over-concerned about the child’s health and well-being.…”

Section: Discussionmentioning

confidence: 99%

Stress and perceived stigma among parents of children with epilepsy

Rani

Thomas

2019

Neurol Sci

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Purpose The present study aimed at understanding the stress and perceived stigma among parents of children with epilepsy seeking treatment at a tertiary referral center for neurology in South India. Materials and methods Parents of sixty children suffering from epilepsy in the age group of 4–15 years were interviewed to explore parental stress and perceived stigma. They were recruited consecutively over a period of 6 months in 2015. Tools administered were Childhood-Illness related Parenting Stress Inventory (Manford in J Neurol 264(8):1811–24, 2017 ) and the Parent Stigma Scale (Baca et al. in Value Health 13(6):778–786, 2010 ). Results The mean age of parents was 37.2 years, and the majority of parents who used to bring their child to the hospital were male (71.7%) and educated up to the secondary/intermediate level (36%) and were from lower socio-economic status. The mean age of children with epilepsy was 8.4 years with the majority of them being male (66.7%), affected with chronic seizures (58.3%) with most commonly occurring seizure type being generalized seizures (50%), with a co-morbid diagnosis of cerebral palsy (26.7%). A significant number of parents reported difficulty in communicating with medical team (58.3%) and significant others (51.7%) about their child’s seizures and difficulty in making decisions related to their child’s medical care (43.3%) which strained their financial resources and created difficulty in adequate role functioning. Findings indicated that most of the parents of children with chronic seizures perceived reactions of others to be negative (53.3%) and would limit family social interaction which resulted into emotional reaction in the form of anger, guilt, fear, anxiety, and depression. Conclusion Parents are important figures in the process by which children with epilepsy came to acknowledge themselves being different from other children. Parents often feared divulging their child’s epilepsy to their friends and relatives because they experienced a sense of shame, self-blame, and rejection which also increased their stress.

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Section: Discussionmentioning

confidence: 99%

Stress and perceived stigma among parents of children with epilepsy

Rani

Thomas

2019

Neurol Sci

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“…The role of the family is sometimes the role of the group that seeks to shape its members in different situations of life as it wants. Therefore, to assist the family and to succeed, they should be guided to be able to change their own lives, including single members (14). Other factors affecting empowerment are self-efficacy.…”

Section: Introductionmentioning

confidence: 99%

Family‐centred empowerment program for health literacy and self‐efficacy in family caregivers of patients with multiple sclerosis

Jafari

Tehrani

Esmaily

et al. 2020

Scandinavian Caring Sciences

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Family-centred empowerment program for health literacy and self-efficacy in family caregivers of patients with multiple sclerosis Background: With the obtained advancement in solving health problems, family caregivers are replaced with the care institutions. The accompanying and supporting patients during the disease treatment is very effective in the Iranian culture. Aim: This study aims at determining the effect of health intervention based on family-centred empowerment model on health literacy and self-efficacy among caregivers of patients with multiple sclerosis. Methods: In this quasi-experimental study, 70 family caregivers were randomly assigned to the two control and experimental groups, who were evaluated using demographic TOFHLA health literacy and self-efficacy questionnaires. Then, based on training needs in the experimental group, intervention was conducted based on the family-centred empowerment model during one month. The control group received no intervention, and immediately after training and three months after implementing the program, the health literacy and self-efficacy in both the experimental and control groups were reevaluated. Results: Before intervention, mean of health literacy in the experimental group was 57.2 AE 9.15 and 3 months after intervention, it reached 62.45 AE 9.39, (p < 0.001). The self-efficacy score in the experimental group was 17.2 AE 3.48 before intervention and it reached to 19.34 AE 11.3 after intervention, which was also significant(p < 0.001). Conclusion: interventions based on family-centred empowerment approach can improve the health literacy and self-efficacy of caregivers, assist them to provide specialised and efficient care and lead to improved quality of care in caregiving.

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“…Few studies to date have analyzed the impact of information and education on patients during the ICU stay and discharge and most have limitations in the design, sample and lack of randomization [40]. Patient empowerment studies in other fields have shown that nursing interventions improve patient stress, anxiety and depression [41,42]. Patients' emotional state should be evaluated to determine where, how, and when to intervene and ensure the patient is emotionally prepared for the change between the ICU and the general ward.…”

Section: Discussionmentioning

confidence: 99%

Nursing Interventions for Patient Empowerment During Intensive Care Unit Discharge: A Systematic Review

Cuzco¹,

Torres‐Castro²,

Torralba³

et al. 2021

Preprint

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Intensive care unit discharge is an important transition which impacts on patient wellbeing. Nurses can play an essential role in this scenario, potentiating patient empowerment. A systematic review was conducted using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses: the PRISMA Statement. Embase, PubMed/MEDLINE, CINAHL, and Cochrane Central Register of Controlled Trials (CENTRAL) databases were evaluated in May 2021. Two independent reviewers analyzed the studies, extracted the data, and assessed the quality of evidence. Quality of the studies included was assessed using the Cochrane risk-of-bias tool. Of the 273 articles initially identified, eight randomized controlled trials reported nursing interventions mainly focused on patients’ ICU discharge preparation through information and education. The creation of ICU Nurse-Led and nurses’ involvement in critical care multidisciplinary teams also aimed to support patients during ICU discharge. This systematic review provides an update on clinical practice aimed at improving the patient experience during ICU discharge. The main nursing interventions were based on information and education, as well as the development of new nursing roles. Understanding transitional needs and patient empowerment are key to making the transition easier.

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Effects of family-centered empowerment intervention on stress, anxiety, and depression among family caregivers of patients with epilepsy

Cited by 52 publications

References 24 publications

Stress and perceived stigma among parents of children with epilepsy

Stress and perceived stigma among parents of children with epilepsy

Family‐centred empowerment program for health literacy and self‐efficacy in family caregivers of patients with multiple sclerosis

Nursing Interventions for Patient Empowerment During Intensive Care Unit Discharge: A Systematic Review

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