Effects of enhanced caregiver training program on cancer caregiver’s self-efficacy, preparedness, and psychological well-being

Hendrix, Cristina C.; Bailey, Donald E.; Steinhauser, Karen E.; Olsen, Maren K.; Stechuchak, Karen M.; Lowman, Sarah G.; Schwartz, Abby J.; Riedel, Richard F.; Keefe, Francis J.; Porter, Laura S.; Tulsky, James A.

doi:10.1007/s00520-015-2797-3

Cited by 141 publications

(163 citation statements)

References 34 publications

(39 reference statements)

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“…), cancer patients (Hendrix et al . ) or adults with developmental disabilities (Erickson & LeRoy ). Caregiver sample sizes ranged from 8 to 464 (SD ± 136.1; Chiarchiaro et al .…”

Section: Resultsmentioning

confidence: 99%

“…, Erickson & LeRoy , Hendrix et al . ), two focused on literacy status/reading ability (Eames et al . , Hoffmann et al .…”

Section: Resultsmentioning

confidence: 99%

“…, , Rahman ) or its shortened version (Hendrix et al . ) and two used the Newest Vital Sign (NVS; Levin et al . , Rahman ) developed by Weiss et al .…”

Section: Resultsmentioning

confidence: 99%

“…, Hendrix et al . , Lindquist et al . ), while one differentiated between three levels (inadequate/marginal/adequate; Chiarchiaro et al .…”

Section: Resultsmentioning

confidence: 99%

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Health literacy of caregivers of adult care recipients: A systematic scoping review

Yuen

Knight

Ricciardelli

et al. 2016

Health Soc Care Community

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Caregivers play a vital role in providing support to adults with a chronic condition, or cognitive or physical impairment. Low health literacy in caregivers has the potential to impact adequate care provision, and consequently, care recipient health outcomes. The aim of the study was to systematically review literature related to health literacy of caregivers of adult care recipients, and examine its relationship with care recipient, and caregiver, health outcomes. Electronic databases were searched for relevant English-language publications that assessed health literacy in caregivers. Included studies were abstracted into evidence tables and assessed using an eight-item quality scale. The search identified 2717 new titles and abstracts, with 67 shortlisted for full review. Twelve papers from 2003 to 2015 met the inclusion criteria. The prevalence of limited health literacy in caregivers ranged from 0% to 52.5% depending on the measure and cut-off criteria used. Associations were found between low caregiver health literacy and (i) poorer care recipient self-management behaviours; (ii) increased care recipient use of health services; and (iii) increased caregiver burden. The quality of the studies ranged from fair to excellent. Low health literacy in caregivers differed depending on the measures and scoring criteria used. Evidence to support the relationship between caregiver health literacy and care recipient, and caregiver health outcomes was limited to single studies. Recommendations for further research include: the development of caregiver health literacy measures across different populations; examination of associations between caregiver health literacy and care recipient outcomes; and the development of interventions designed to improve caregiver health literacy.

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“…), cancer patients (Hendrix et al . ) or adults with developmental disabilities (Erickson & LeRoy ). Caregiver sample sizes ranged from 8 to 464 (SD ± 136.1; Chiarchiaro et al .…”

Section: Resultsmentioning

confidence: 99%

“…, Erickson & LeRoy , Hendrix et al . ), two focused on literacy status/reading ability (Eames et al . , Hoffmann et al .…”

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Health literacy of caregivers of adult care recipients: A systematic scoping review

Yuen

Knight

Ricciardelli

et al. 2016

Health Soc Care Community

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“…However, that same trial did not focus on the caregiver's competencies to interpersonally support the patient [13]. Further, despite the impact of the illness on the spouse caregiver's well being, no study has helped equip the caregiver with a broad range of self-care skills during early diagnosis and treatment.…”

Section: Introductionmentioning

confidence: 99%

Taking Care of Her: A Pilot Feasibility Study of a Caregiver Intervention for Women with Advanced Stage Ovarian Cancer

Lewis¹,

Alzawad²,

Griffith³

et al. 2017

JCT

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The purpose of this study is to examine the feasibility and short-term impact of a fully manualized, telephone-delivered intervention for spouse caregivers, Taking Care of Her (TCH). A total of 12 study participants from the Pacific NW were enrolled whose wife was diagnosed with Stage III ovarian cancer within 8 months. Feasibility was confirmed by rates of recruitment and retention; the quality of delivery of the intervention by telephone; and through data obtained on program acceptability during follow up exit interviews. Outcomes from the within-group analysis revealed improvements on standardized measures of spouses' and patients' depressed mood and anxiety; marital communication about the cancer; caregivers' skills and confidence to manage the emotional toll of the illness on themselves and wives; and wives' positive appraisal of spousal support. Study results suggest that the TCH Program has the potential to positively affect both spouse caregiver and patients' adjustment to recently diagnosed advanced ovarian cancer. Telephone delivery holds promise for sustainability. A future clinical trial with a larger study sample is warranted.

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Postdischarge Caregiver Burden Among Family Caregivers of Older Trauma Patients

et al. 2023

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ImportanceCaregiver burden, characterized by psychological distress and physical morbidity, affects more than 50 million family caregivers of older adults in the United States. Risk factors for caregiver burden among caregivers of older trauma patients have not been well characterized.ObjectiveTo characterize postdischarge caregiver burden among caregivers of older trauma patients and identify targets that can inform interventions to improve their experience.Design, Setting, and ParticipantsThis study used a repeated cross-sectional design. Participants were family caregivers for adults 65 years or older with traumatic injury who were discharged from 1 of 2 level I trauma centers. Telephone interviews were conducted at 1 month and 3 months postdischarge with family caregivers (identified by the patient as family or friends who provided unpaid care). Admissions occurred between December 2019 and May 2021, and data were analyzed from June 2021 to May 2022.ExposureHospital admission for geriatric trauma.Main Outcome and MeasuresHigh caregiver burden was defined by a score of 17 or higher on the 12-item Zarit Burden Interview. Caregiver self-efficacy and preparedness for caregiving were assessed via the Revised Scale for Caregiving Self-Efficacy and Preparedness for Caregiving Scale, respectively. Associations between caregiver self-efficacy, preparedness for caregiving, and caregiver burden were tested via mixed-effect logistic regression.ResultsThere were 154 family caregivers enrolled in the study. Their mean (SD) age was 60.6 (13.0) years (range, 18-92 years), 108 of 154 were female (70.6%). The proportion of caregivers experiencing high burden (Zarit Burden Interview score ≥17) was unchanged over time (1 month, 38 caregivers [30.9%]; 3 months, 37 caregivers [31.4%]). Participants with lower caregiver self-efficacy and preparedness for caregiving were more likely to experience greater caregiver burden (odds ratio [OR], 7.79; 95% CI, 2.54-23.82; P &lt; .001; and OR, 5.76; 95% CI, 1.86-17.88; P = .003, respectively).Conclusion and RelevanceThis study found that nearly a third of family caregivers of older trauma patients experience high caregiver burden up to 3 months after the patients’ discharge. Targeted interventions to increase caregiver self-efficacy and preparedness may reduce caregiver burden in geriatric trauma.

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Effects of enhanced caregiver training program on cancer caregiver’s self-efficacy, preparedness, and psychological well-being

Cited by 141 publications

References 34 publications

Health literacy of caregivers of adult care recipients: A systematic scoping review

Health literacy of caregivers of adult care recipients: A systematic scoping review

Taking Care of Her: A Pilot Feasibility Study of a Caregiver Intervention for Women with Advanced Stage Ovarian Cancer

Postdischarge Caregiver Burden Among Family Caregivers of Older Trauma Patients

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