Health literacy of caregivers of adult care recipients: A systematic scoping review

Yuen, Eva; Knight, Tess; Ricciardelli, Lina A.; Burney, Susan

doi:10.1111/hsc.12368

Cited by 94 publications

(108 citation statements)

References 77 publications

(283 reference statements)

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“…According to previous research, younger individuals, especially males, tended to favor digital communication services over nondigital services . Research also reported that family members preferred health‐care professionals as sources of information . However, because of difficulties in accessing these professionals, they turned to CISs, such as the KID, using the telephone to replace direct conversations with health‐care providers.…”

Section: Discussionmentioning

confidence: 98%

“…According to the literature, females and middle‐aged adults are more likely than males and younger or older adults to seek cancer‐related information or to contact a CIS on behalf of a cancer patient . Furthermore, surrogate seekers' information needs differ from patients' information and psychological needs . In addition, although many family members prefer health‐care professionals as sources of information, they often experience difficulties in accessing information from these professionals .…”

Section: Introductionmentioning

confidence: 99%

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Demographic and cancer‐related differences between self‐seeking patients and supported patients: Analysis of cancer information–service data

et al. 2019

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Objective Surrogate information seeking is quite common, and several studies have presented data on caregivers, family members, and friends who seek health information on the Internet or from a cancer‐information service (CIS) on behalf of cancer patients. However, these studies provide little information about the patients who are supported by surrogate seekers. Therefore, this study analyzed demographic and cancer‐related differences, including diverse informational needs, between self‐seeking patients and patients who benefited from surrogate seekers (ie, caregivers, family, or friends) requesting information on their behalf. Methods We conducted a retrospective audit of phone and e‐mail inquiries to a German CIS between January and December 2016 from self‐seeking patients (n = 13 723) and surrogate information seekers, as well as the corresponding supported patients (n = 6696). Results Supported patients were more likely to be males (P < 0.001), older than self‐seeking patients (P < 0.001), and older than the corresponding surrogate seekers (P < 0.001). They were also more likely to be in the diagnostic or palliative stage (P < 0.001) and were less likely to suffer from breast cancer or prostate cancer (P < 0.001) than self‐seeking patients. There were significant differences in the CIS requests of self‐seekers and surrogate seekers. Conclusions The results point to different support needs of self‐seekers and surrogate seekers. Thus, surrogate seekers and their corresponding supported patients should be seen as a separate target group to self‐seeking patients, with the former requiring informational and emotional support on diverging topics and at different disease stages.

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Section: Discussionmentioning

confidence: 98%

Section: Introductionmentioning

confidence: 99%

Demographic and cancer‐related differences between self‐seeking patients and supported patients: Analysis of cancer information–service data

et al. 2019

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“…However, a systematic review by Cajita, Cajita, Han concluded that people with low health literacy may have trouble processing information on disease management. Conversely, the study of Yuen, Knight, Ricciardelli, Burney indicated that epileptic patients who have limited knowledge about their sickness specification obtain poorer outcome of care in terms of seizure control and quality of life. Patients with high health literacy have good health status, and vice versa.…”

Section: Literature Reviewmentioning

confidence: 99%

Do corporate governance mechanisms and internal control systems matter in reducing mortality rates?

Afriyie

Kong

Danso

et al. 2019

Health Planning & Management

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Summary Internal controls are critical to guarding an institution against fraud, error, and devastation. They are effective tools for preventing losses and achieving organizational goals. However, internal control mechanisms need to be relevant, because the organization cannot comprehend the effectiveness of the system if they are out‐of‐touch with the operation. Health care control practices are not exceptionally different from what pertains in other industries. The health care organizations require effective corporate governance mechanisms to uphold their operations and performances. These practices assist health care organizations to exhume cynical practices that generate unproductive results and also factors militating against the hospital's goals or objectives. This study revealed that practices such as enhanced Board diligence, Health Professionals on board, financial prudence, and effective communication have the tendency of reducing mortality, if well executed.

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“…29 Low health literacy in caregivers is associated with increased hospitalization and decreased quality of life for adults. 30,31 Therefore, it is important to ensure IHSS symptom assessment training and tools are easy to understand and provide step-by-step instructions.…”

Section: Symptom Assessment Solutionsmentioning

confidence: 99%

Symptom Assessment Solutions for In-Home Supportive Services and Diverse Older Adults: A Roadmap for Change

Odierna

Katen

Feuz

et al. 2018

Journal of Palliative Medicine

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Background: Millions of older adults require Medicaid-funded home care, referred to as In-Home Supportive Services (IHSS). Many of these individuals experience serious illness, disability, and common symptoms such as pain and shortness of breath. Objective: To explore whether and how to integrate symptom assessment into an IHSS program to identify and manage symptoms in diverse older adults who receive in-home care. Design: Qualitative study comprising 10 semistructured focus groups. Setting and Subjects: Fifty San Francisco IHSS administrators, case managers, providers, and consumers. Measurements: Two authors double-coded transcripts and conducted thematic analysis. Results: Four main themes emerged from the data: (1) Large unmet needs: gaps in understanding, training, standard assessment, and untreated symptoms, including identifying loneliness as a symptom; (2) Potential barriers: misunderstanding of palliative care, consumer reluctance, and the added burden on IHSS workforce; (3) Facilitators: consumer and provider buy-in and perceived benefits of such a symptom assessment program, and the ability to build on current IHSS relationships and infrastructure; and (4) Implementation logistics: taking an individualized, optional approach; consider appropriate messaging about quality of life and not end of life; and creating standardized, easy-to-use procedures, tools, training, and workflow to support providers. Conclusions: An IHSS symptom assessment program is desired, needed, and feasible and can leverage the established IHSS infrastructure and relationships of consumers and IHSS providers to assess symptoms in the home. Acknowledging consumer choice, developing appropriate tools and trainings for IHSS staff, and effective messaging of program goals can contribute to success.

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Health literacy of caregivers of adult care recipients: A systematic scoping review

Cited by 94 publications

References 77 publications

Demographic and cancer‐related differences between self‐seeking patients and supported patients: Analysis of cancer information–service data

Demographic and cancer‐related differences between self‐seeking patients and supported patients: Analysis of cancer information–service data

Do corporate governance mechanisms and internal control systems matter in reducing mortality rates?

Symptom Assessment Solutions for In-Home Supportive Services and Diverse Older Adults: A Roadmap for Change

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