Effects of consumers and health providers working in partnership on health services planning, delivery and evaluation

Lowe, Dianne; Ryan, Rebecca; Schonfeld, Lina; Merner, Bronwen; Walsh, Louisa; Graham‐Wisener, Lisa; Hill, Sophie

doi:10.1002/14651858.cd013373.pub2

Cited by 17 publications

(24 citation statements)

References 369 publications

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“…This may reflect similarities between the purpose of PPI in research, healthcare, and the development of HTA and guidelines (27;28). For example, patients and the public are seen as equal partners in research and healthcare (24;29). Their lived experiences contribute additional expertise and give valuable, novel insights that can significantly enhance the relevance and impact of research outputs as well as improve patient-centeredness of services (30).…”

Section: Discussionmentioning

confidence: 99%

Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review

Pinho-Gomes

Stone

Shaw

et al. 2022

Int J Technol Assess Health Care

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The importance of patient and public involvement (PPI) is recognized by agencies involved in health technology assessment (HTA) and guideline development. However, a comprehensive overview of the underlying PPI principles, values, strategies, and frameworks is lacking. This scoping review aimed to summarize the available evidence on principles, values, frameworks, and strategies underpinning PPI carried out by agencies involved in HTA and guideline development. A total of twelve records were included, of which four referred to guidelines and eight to HTA. Overall, this review demonstrated a lack of consistency in the definition and application of the concepts of values and principles to PPI in the context of guideline development and HTA. There was significant overlap between values and principles, with some broad themes emerging, such as representation, transparency, relevance, equity, fairness, and reconciling different types of knowledge. Frameworks were typically based on the stages of guideline development or HTA, despite heterogeneity in how stages were labeled and described. Strategies were also mapped to the stages of guideline development and HTA and varied substantially depending on the context and setting. Both strategies and frameworks demonstrated patients and the public can be involved, albeit to a variable extent, throughout the stages of guideline development and HTA. However, frameworks often failed to explicitly link the values and principles with the HTA and guideline development stages through actionable PPI strategies. Further research is warranted to better understand the values, principles, and frameworks underpinning PPI in guideline development and HTA.

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Section: Discussionmentioning

confidence: 99%

Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review

Pinho-Gomes

Stone

Shaw

et al. 2022

Int J Technol Assess Health Care

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“…If active identification and outreach is not undertaken, then there is a real risk of amplifying only the voices of selected experts with experience of cardiac arrest, unintentionally reinforcing existing barriers. 11 , 19 Incorporating a diversity of voices and representations is likely to support the most equitable cardiac arrest care in the future.…”

Section: The Importance Of Ensuring Diversity In Co-designmentioning

confidence: 99%

Diverse stakeholder engagement at the heart of co-designing cardiac arrest care

et al. 2022

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This is a PDF file of an article that has undergone enhancements after acceptance, such as the addition of a cover page and metadata, and formatting for readability, but it is not yet the definitive version of record. This version will undergo additional copyediting, typesetting and review before it is published in its final form, but we are providing this version to give early visibility of the article. Please note that, during the production process, errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain.

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“…The term consumer is inclusive of past, present, and future health service users (patients), family members, and the public or community 3 . Including consumer partnerships in service planning, delivery, and evaluation aims to improve person‐centred care and is linked with the paradigms of consumerism, democracy, human rights, recovery, and empowerment 4 . A systematic review reported benefits from CCI in healthcare quality improvement (QI) including improved service delivery, enhanced governance, and better‐informed policies and planning 5 .…”

Section: Introductionmentioning

confidence: 99%

“…3 Including consumer partnerships in service planning, delivery, and evaluation aims to improve person‐centred care and is linked with the paradigms of consumerism, democracy, human rights, recovery, and empowerment. 4 A systematic review reported benefits from CCI in healthcare quality improvement (QI) including improved service delivery, enhanced governance, and better‐informed policies and planning. 5 Despite these benefits, authentic partnerships in QI are not the norm and changes are needed at the individual, organizational, and system levels.…”

Section: Introductionmentioning

confidence: 99%

Refining a capability development framework for building successful consumer and staff partnerships in healthcare quality improvement: A coproduced eDelphi study

Cox

Kendall

Molineux

et al. 2022

Health Expectations

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Background: The capability of consumers and staff may be critical for authentic and effective partnerships in healthcare quality improvement (QI). Capability frameworks describe core knowledge, skills, values, attitudes, and behaviours and guide learning and development at individual and organizational levels.Objective: To refine a capability framework for successful partnerships in healthcare QI which was coproduced from a scoping review.Design: A two-round eDelphi design was used. The International Expert Panel rated the importance of framework items in supporting successful QI partnerships, and suggested improvements. They also rated implementation options and commented on the influence of context.Participants: Seven Research Advisory Group members were recruited to support the research team. The eDelphi panel included 53 people, with 44 (83%) and 42 (77. 8%) participating in rounds 1 and 2, respectively. They were from eight countries and had diverse backgrounds. Results:The Research Advisory Group and panel endorsed the framework and summary diagram as valuable resources to support the growth of authentic and meaningful partnerships in QI across healthcare contexts, conditions, and countries.A consensus was established on content and structure. Substantial rewording included a stronger emphasis on growth, trust, respect, inclusivity, diversity, and challenging the status quo. The final capability development framework included

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Effects of consumers and health providers working in partnership on health services planning, delivery and evaluation

Abstract: Cochrane Database of Systematic Reviews E ects of consumers and health providers working in partnership on health services planning, delivery and evaluation (Review)

Cited by 17 publications

References 369 publications

Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review

Values, principles, strategies, and frameworks underlying patient and public involvement in health technology assessment and guideline development: a scoping review

Diverse stakeholder engagement at the heart of co-designing cardiac arrest care

Refining a capability development framework for building successful consumer and staff partnerships in healthcare quality improvement: A coproduced eDelphi study

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