Effect of education on quality of life of family caregivers of children with leukemia referred to the Oncology Clinic at Kerman’s Afzali-Poor Hospital (Iran), 2012

Abstract

Invest Educ Enferm. 2013;31(3) • 41 Effect of education on quality of life of family caregivers of children with leukemia referred to the Oncology Clinic at Kerman's Afzali-Poor Hospital (Iran), 2012Objective. To investigate the impact of education on the quality of life of parent of children with leukemia referred to the oncology clinic at Kerman's Afzali-Poor hospital (Iran). Methodology. This was an interventional study with 80 parents of children with leukemia; all of the caregivers were mothers and were included in the research. They were chosen using the convenience sampling method and categorized randomly into two groups (intervention and control, each with 40 participants). Research tools included demographic information and Quality of Life (QoL) scale (a specific form for first-degree family caregivers of patients with leukemia). Questionnaires were applied at the beginning of the research and after three months; this second evaluation coincided in the study group with the end of the intervention. The intervention lasted four sessions of 45-to 65-minute classes, with lectures and question and answer sessions, educational booklets, and posters in groups with 4 -6 members. Results. In the first evaluation, mean QoL scores in the study and control groups were 224.9 and 225.7, which, after three months changed to 338.2 and 226.7, respectively. T-test verified these increases (p<0.05) in quality of life in the intervention group. Conclusion. According to the effectiveness of the education on the parent's quality of life, it is recommended to implement consulting and educational programs for parents, especially parents of children with leukemia, to promote care, reduce anxiety, and consequently, enhance quality of life. Efecto de la educación en la calidad de vida de los cuidadores familiares de menores con leucemia referidos a la Clínica Oncológica en el hospital Afzali-Poor en Kerman (Iran), 2012Objetivo. Investigar el impacto de la educación en la calidad de vida de padres y madres de menores con leucemia referidos

Quality of life of mothers of children with cancer: an integrative review / Qualidade de vida das mães de criança com câncer: revisão integrativa

“…Having a child with cancer dramatically changes the psychological health of these mothers due to fear, anxiety, uncertainty of the future, and the social and financial changes imposed by the treatment from diagnosis to final outcome. [14][15][16][17] The use of psychosocial intervention measures has been shown to favor meeting the demands of the caregiver of the child with cancer, showing significant improvements in the group of mothers who had this type of support. 18 In the sociodemographic data and quality of life category, the relationship of the sociodemographic factors with the quality of life of mothers of children with cancer was described in four studies, punctuating situations of unemployment, larger number of children, family disorganization, and scarcity of financial resources as impediments to the access to minimum requirements and important to human dignity, translating into low scores of quality of life.…”

The Burden of Care and Life Satisfaction of the Turkish Mothers of Children With Cancer

“…In the study conducted by Ghodsbin et al (2014) in Iran, the mean age of the mothers of children with ALL was 34.1-34.8 years. It was observed that the mean caregiver burden score (42.68±16.66) of the mothers in this study was moderately high while the mean life satisfaction score (13.82±7.00) was low.…”

Impact of family-centered care interventions on parental related outcomes among parents of children with cancer: A Systematic Review

“…All studies selected for nal analysis were published from 2014 to 2022. Four studies were published in 2019 (35,36,44,48), another four studies in 2021 (38,41,43,49), two studies in 2022 (34,40), two studies in 2018 (39,47) and one study in 2014 (37) and 2015 (42).…”

“…The sixteen studies included in the review included ve studies from Iran (34)(35)(36)(37)(38), four from Sweden (39-42), three from USA (43)(44)(45) and one study each from Chile (46), China (47) and Indonesia (48). One study was conducted in both USA and Saudi Arabia (49).…”