Educational intervention for patients with head and neck cancer in the discharge phase

Meulen, Ingeborg C. van der; Leeuw, J.R.J. de; Gamel, Claudia; Hafsteinsdøttir, Thóra B.

doi:10.1016/j.ejon.2012.05.007

Cited by 9 publications

(7 citation statements)

References 35 publications

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“…Prospective studies investigating the psychological impact of breast cancer diagnosis before mastectomy, with or without IBR, and after the surgery, are needed to better accompany women facing these surgeries. In addition, women of our sample expressed a higher need for information compared to patients with head and neck cancer 33 and reported a lower shared decision-making with the physician compared to melanoma, 34 colorectal and patients with pancreatic cancer facing treatment decision-making. 35 This confirms BR decision-making is a complex treatment choice requiring clinicians' attention in care.…”

Section: Discussionmentioning

confidence: 89%

Women and Partners’ Information Need, Emotional Adjustment, and Breast Reconstruction Decision-Making Before Mastectomy

2020

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Objective: Our aim was to explore the differences between women and their partners on information need, emotional adjustment, and breast reconstruction (BR) decision-making after breast cancer diagnosis. A second aim was to explore these differences regarding surgery type (mastectomy vs immediate BR). Methods: Women newly diagnosed with a first nonmetastatic breast cancer and having a mastectomy were invited to fill out online questionnaires, in conjunction with their partners, before mastectomy. Questionnaires assessed their information need (Patient Information Need Questionnaire), emotional adjustment (Profile of Mood States), motivations to have BR or not, shared decision-making (Shared Decision-Making Questionnaire), and partner influence in BR decision-making. Results: Thirty (15 women and their partners) people took part in the study. Women and partners had similar levels of information need, emotional adjustment, and shared decision-making. However, partners did not entirely perceive why BR is wished or not by the women. Furthermore, partners of women having a mastectomy alone had higher scores of mood disturbance and a greater need for information, compared to partners of women having an immediate BR ( P < .05). Likewise, men expressed a greater need for disease-oriented information than their loved ones ( P < .05). Conclusions: This is the first study to highlight differences in couples’ experiences of breast cancer diagnosis and BR decision-making before mastectomy. Partners express an important need for information and do not entirely perceive why BR is wished or not by their loved ones. An online tool providing information to both women and partners could help them in breast cancer care pathway and BR decision-making.

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Section: Discussionmentioning

confidence: 89%

Women and Partners’ Information Need, Emotional Adjustment, and Breast Reconstruction Decision-Making Before Mastectomy

2020

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“…There were a range of study designs: quantitative ( n = 10) 26 , 27 , 28 , 29 , 30 , 31 , 32 , 33 , 34 , 35 , randomized controlled trials ( n = 6) 36 , 37 , 38 , 39 , 40 , 41 , mixed methods studies ( n = 3) 42 , 43 , 44 , qualitative ( n = 1) 45 , and a quantitative non-randomized controlled study ( n = 1). 46 The majority of the participants included had prostate, 27 , 30 , 33 , 34 , 39 , 40 , 44 , 45 colorectal, 32 , 42 lung, 41 , 43 head and neck, 46 renal, 35 esophageal 37 and mixed cancer. 26 , 28 , 29 , 31 , 36 , 38 The methodological quality of the included studies was overall good, but some caution should be taken in the interpretation of the results due to non-response bias and a lack of acknowledgment of the divergence between the qualitative and quantitative data in the mixed methods studies, see Table 3 .…”

Section: Resultsmentioning

confidence: 99%

“…The nurse-led interventions were cancer-specific and included: prostate, 27 , 30 , 33 , 34 , 39 , 40 , 44 , 45 colorectal, 32 , 42 lung, 41 , 43 head and neck, 46 renal, 35 radiotherapy, 36 palliative care, 28 , 38 virtual-telephone 26 and only one geriatric-oncology 31 intervention, see Table 4 . Heterogeneity existed in the nurse-led interventions for patients ≥ 65 years in terms of the duration, composition, mode of delivery, and outcomes measured to quantify their impact.…”

Section: Resultsmentioning

confidence: 99%

Nurse-led interventions among older adults affected by cancer: An integrative review

Alemania,

Hind,

Samara

et al. 2023

Asia-Pacific Journal of Oncology Nursing

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“…Participants wanted the HCP to guide them through the laryngeal cancer resource to allow them to clarify any misunderstanding or unmet needs at diagnosis. 34 Information available in multiple formats caters for the variety in learning styles and health literacy levels.…”

Section: Discussionmentioning

confidence: 99%

Assessment of an evidence-based laryngeal cancer fact sheet: A mixed methods study

Jabbour

Shepherd

Beddow

et al. 2021

Health Informatics J

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To evaluate perceptions of a laryngeal cancer fact sheet amongst people with direct experience of the disease and its treatment. A mixed methods study (questionnaire and interview) evaluating the information resource was conducted across two institutions. In total 20 participants responded to the questionnaire. Overall participants reported the information resource was detailed and understandable. Insufficient information was provided on: impact on family in eight participants (40%); impact on work in six (33%); and, second opinions and long-term side effects in five (25%). The majority (67%) wanted a large amount of information with the preferred source being one-on-one meetings with their doctor. The thematic analysis identified three main themes: preferences for information, self-management; and, information sources. People with direct experience of laryngeal cancer and its treatments reported the information resource was comprehensive and clear. There were some gaps in the information provided, particularly related to survivorship issues.

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Educational intervention for patients with head and neck cancer in the discharge phase

Cited by 9 publications

References 35 publications

Women and Partners’ Information Need, Emotional Adjustment, and Breast Reconstruction Decision-Making Before Mastectomy

Women and Partners’ Information Need, Emotional Adjustment, and Breast Reconstruction Decision-Making Before Mastectomy

Nurse-led interventions among older adults affected by cancer: An integrative review

Assessment of an evidence-based laryngeal cancer fact sheet: A mixed methods study

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