Do family caregivers perceive more difficulty when they look after patients with early onset dementia compared to those with late onset dementia?

Arai, Asuna; Matsumoto, Teruhisa; Ikeda, Manabu; Arai, Yasuhiko

doi:10.1002/gps.1935

Cited by 102 publications

(113 citation statements)

References 25 publications

Supporting

Mentioning

108

Contrasting

Unclassified

Order By: Relevance

“…Female caregivers are more likely to be depressed 1 and burdened 2 than their male counterparts. By contrast, a care-recipient factor, younger age of dementia onset, predicts greater caregiver burden 3 and depression. 4 Central to understanding caregiver outcomes is caregiver coping 5 : the cognitive and behavioral effort to manage demand.…”

mentioning

confidence: 80%

Predictive Factors for the Uptake of Coping Strategies by Spousal Dementia Caregivers

Roche

MacCann

Croot

2016

Alzheimer Disease &Amp; Associated Disorders

View full text Add to dashboard Cite

An understanding of spousal dementia caregivers' coping strategies and their predictive factors is imperative for caregivers' well-being. Although several reviews have explored the relationship between coping strategies and outcomes, no review has investigated factors that predict caregivers' use of one type of coping strategy over another. The current review aimed to identify factors that predict caregivers' coping strategies. Within this, we attempted to identify caregivers who are more likely to adopt dysfunctional coping strategies and be at risk of adverse outcomes. Several electronic databases were systematically searched. Twenty-one studies were eligible for review, describing 18 caregiver and care-recipient factors related to the 3 coping strategies. No factors were classified "predictive," however, 16 factors were "potentially predictive." Younger, more highly educated caregivers with greater emotional supports and knowledge of dementia were associated with solution-focused coping. Younger, less educated caregivers were associated with emotional support/acceptance-based coping strategies. Whereas nonwhite caregivers with less emotional supports caregiving for persons with more behavioral problems were associated with dysfunctional coping strategies. Enhancing caregiver self-efficacy, knowledge of dementia, improving social supports, linking to support groups, managing behavioral problems, as well as coaching adaptive coping strategies while flagging caregivers at risk for dysfunctional coping may improve outcomes for caregivers.

show abstract

mentioning

confidence: 80%

Predictive Factors for the Uptake of Coping Strategies by Spousal Dementia Caregivers

Roche

MacCann

Croot

2016

Alzheimer Disease &Amp; Associated Disorders

View full text Add to dashboard Cite

show abstract

“…Both found that, despite no significant differences in cognitive functioning or behavioral disturbance, there was a significant difference between carers. Carers of younger people with dementia had significantly higher levels of burden (Freyne et al 1999) and they were also more likely to perceive difficulties due to behavioral problems (Arai et al 2007). This difference in burden may be due to carers of younger people with dementia having a longer duration of caring and less support than older carers, or to individual factors influencing carer response (Freyne et al 1999).…”

Section: Impact On the Family G E N E R A L C A R E R O U T C O M E Smentioning

confidence: 92%

The impact of young onset dementia on the family: a literature review

Svanberg

Spector

Stott

2010

Int. Psychogeriatr.

111

138

View full text Add to dashboard Cite

show abstract

“…Still, neuropsychiatric symptoms should be paid appropriate attention to in the diagnosis, treatment, support and psycho-education of YO-AD patients and caregivers, especially since previous research indicated that YOD caregivers perceive greater difficulties due to neu-ropsychiatric disturbances than do LOD caregivers [57]. Similar to LO-AD, apathy is the most important symptom to focus on in YO-AD.…”

Section: Discussionmentioning

confidence: 99%

Prevalence of Neuropsychiatric Symptoms in Young-Onset Compared to Late-Onset Alzheimer’s Disease – Part 1: Findings of the Two-Year Longitudinal NeedYD-Study

Vliet

Vugt

Aalten

et al. 2012

Dement Geriatr Cogn Disord

View full text Add to dashboard Cite

Background/Aims: Knowledge about neuropsychiatric symptoms in young-onset Alzheimer’s disease (YO-AD) is scarce, but essential to establish a prognosis and plan care for YO-AD patients. The aim of this study is to assess frequency parameters of neuropsychiatric symptoms in YO-AD over 2 years and investigate whether there are differences compared with late-onset Alzheimer’s disease (LO-AD). Methods: 98 YO-AD and 123 LO-AD patients and caregivers from two prospective cohort studies were included and assessed every 6 months for 2 years, using the Neuropsychiatric Inventory to evaluate neuropsychiatric symptoms. Results: Over the course of 2 years, the incidence, prevalence and persistence of neuropsychiatric symptoms were in general lower in YO-AD than in LO-AD, specifically for delusions, agitation, depression, anxiety, apathy, irritability and aberrant motor behavior. Frequency of individual symptoms showed large variability in both groups. Within the group of YO-AD patients, apathy was the most prevalent symptom. Conclusion: Neuropsychiatric symptoms, notably apathy, should be paid appropriate attention to in the diagnosis and treatment of YO-AD patients. Further research is needed to gain insight into the mechanisms underlying the differences in neuropsychiatric symptoms between YO-AD and LO-AD.

show abstract

Do family caregivers perceive more difficulty when they look after patients with early onset dementia compared to those with late onset dementia?

Abstract: Our findings demonstrated that additional resources, such as care services, should be provided for sufferers of EOD, in order to allow family caregivers to cope with difficulties associated with patient behavioural problems.

Cited by 102 publications

References 25 publications

Predictive Factors for the Uptake of Coping Strategies by Spousal Dementia Caregivers

Predictive Factors for the Uptake of Coping Strategies by Spousal Dementia Caregivers

The impact of young onset dementia on the family: a literature review

Prevalence of Neuropsychiatric Symptoms in Young-Onset Compared to Late-Onset Alzheimer’s Disease – Part 1: Findings of the Two-Year Longitudinal NeedYD-Study

Contact Info

Product

Resources

About